We are happy to support research that contributes to a greater understanding of the experience of living with chronic pain. This page is to present the opportunities that are available for people in pain to participate. Please let us know about your experiences if you are a participant in any of the studies that come this way.
25 September 2013
Opportunity to participate in the The "PoPP" (Perspectives on Persistent Pain) study
UPDATE - Closing date for this survey has been extended to Friday, 15 November.
Janelle White, a PhD candidate from the University of the Sunshine Coast, is seeking people living with chronic pain (for the purposes of this study – ‘Patients’) to participate in the Patient Perspectives Survey. Results will be used to inform paramedic prehospital care of people living with chronic pain. The survey is anonymous, takes 10 minutes to complete and is open until Friday the 25th of October.
Apart from providing important information to help improve paramedic prehospital care, everyone who does the survey will be eligible to win one of 3 iPad mini’s. For more info and to do the survey, go to: https://survey.usc.edu.au/opinio/s?s=5408
Questions? Contact Janelle White
This study has been approved by the relevant ethics committee of the University of the Sunshine Coast.
21 September 2013
Potential new treatment for chronic migraine
The Pain and Anesthesia Research Clinic (PARC) and the University of South Australia are investigating a potential new treatment for chronic migraine. Ibudilast has been used in Japan for asthma for over 20 years and has a good safety record. This study is a clinical trial designed to see if ibudilast is effective and safe in the treatment of high frequency migraine. This is a completely new approach to migraine treatment.
To be eligible for this study you must have migraines and suffer from headaches on at least 15 days per month. On 8 days per month you must have headaches which display some, but not necessarily all features of migraines, called 'migraine-like headaches'. Everybody undergoing screening will be seen by a specialist headache doctor as a free consultation and you and your GP will be given advice about headache management even if you do not join the trial.
The study will be conducted at the Pain and Anesthesia Research Clinic, which is located at the Royal Adelaide Hospital in South Australia.
For more information and to register your interest go to the study website:
This study has been approved by the Human Research Ethics Committee of the Royal Adelaide Hospital.
Closing date for recruitment - Anticipated 2014.
4 June 2013
Understanding the relationship between headaches and sleep
This is an opportunity to learn about your own headache triggers and contribute to a better understanding of why headaches occur.The majority of migraines and tension-type headaches usually occur within 48 hours following the presence of triggers. Some of the most common self-reported triggers are stress, menstruation, visual and audible disturbances, hunger/fasting, odours/smells and too little or too much sleep. Of these, the duration of sleep has been relatively less explored than most.
My name is Dominic Beer and I am currently undertaking a research project as a requirement of my 4th year Honours program in Psychology at Griffith University (Queensland) under the supervision of Professor Paul Martin, an experienced headache researcher. The project is examining the effect of too little or too much sleep as a precipitant for the onset of headaches. If you are a headache sufferer, it would be helpful if you would consider participating in this study. Our aim is to publish this study so that the information can be used to guide treatment strategies for all headache sufferers.
All participants can elect to enter a random draw to win one of two $50 Coles Myer vouchers.
2 June 2013
The Pain Course: An Internet-delivered Course for the Management of Chronic Pain and Emotional Wellbeing.
Researchers from the eCentreClinic at Macquarie University have developed a new internet-based Course, the Pain Course, which provides good information and practical skills for managing chronic pain, anxiety and depression. They have developed the Course because Chronic Pain is common. But, many people do not have access to good information about how to manage chronic pain and their emotional wellbeing. The aim of the eCentreClinic’s research is to create a Course that is practical, helpful, widely accessible and freely available to help people with Chronic Pain. The feedback and results from their initial trials are very encouraging, but they want to test, develop and improve the Course further. The Course comprises 5 Online Lessons available over 8 weeks, simple Homework Tasks to help you learn the material, lots of Additional Resources and Stories and examples from previous participants.
Here is the flyer for the research program.
2 June 2013
Shoulder laterality Study - Sydney
You are invited to participate in this research project which is investigating perceptual changes in people with shoulder pain compared to people without. We know from previous research that some people with longstanding hand or arm pain have difficulty recognising the laterality (left from right) of a picture of their affected hand (perception difficulties). The aim of this studyis to establish whether the same effects are seen in people with shoulder problems. This could lead us to better understand shoulder pain and in turn help us to develop more effective treatment strategies.
To do this we will investigate the accuracy and response time for the left right judgement task in a normal healthy population for making left/right judgement tasks of the shoulder and to compare the results to those with shoulder pain.
Here is the flyer for the research program
June 2013 - Using social media
My name is Mark Merolli, I am a physiotherapist in Melbourne. I am researching at the Health and Biomedical Informatics Centre, University of Melbourne and we have been conducting innovative research aimed at bringing increased rigor to the way in which evidence of improved health outcomes can be achieved using social media in chronic conditions, particularly pain. Especially, given the rise of health-related Internet use by patients.
As part of my PhD research project, I have developed an online survey to better understand how social media is used to manage chronic pain. In particular, the aim is to study individual perceptions regarding ‘how’ different social media influence health outcomes. I explain the survey in this short video so please watch for further information. Click here:
The survey and further information can be found here. It will be open until June 30th
You can find a summary of the preliminary results of this survey at:
Interviews for market research
Surveytalk medical, a specialised medical market research company are looking to speak with men and women in sydney living with Chronic Pain to get feedback on their experiences.
The study involves being interviewed by a senior medical researcher in a private one on one face to face interview for approximately 1 hour, as well as completing a short homework task to prepare you for the interview. The interview will cover circumstances around your diagnosis and treatment.
We are looking to speak to people living with specific types of pain and experiences with various medications as such we have some qualifying questions which we will need to ask you before we can invite you to participate in the face to face interview. As a thank you for your time and participation in the face to face interview you will be paid an honorarium of $150 to cover your expenses.
All your responses will be treated in the strictest of confidence. Survey talk is a full member of the Australian Market and Social Research society (AMSRS) http://www.amsrs.com.au/ and adhere to the society's professional code of conduct. We are ISO20252 accredited.
The emotional aspects of pain
Have you had intermittent or consistent pain or discomfort for the past three months? If so, would you like to participate in a study looking at emotional aspects of pain? If you answered yes to both these questions then you will be helping me, Carmel Wright, a 4th year honours student in Psychology at UNE with my thesis. Participants need to be 18 years of age and all participants remain anonymous. You are free to withdraw from the study at any time without penalty.
Please use the link below to access the study in which you will be asked a few demographic questions and then to complete 4 scales. It should only take approximately 30 minutes of your time, and your support will help with future pain research and education.
This project has been approved by the Human Research Ethics Committee of the University of New England (Approval No.HE12-037, valid to 14/03/2013).
factors influencing chronic pain
Are you living with chronic pain? Has your pain persisted for more than 3 months? If so, please tell us about your experience.
Our study explores how psychosocial factors, such as stigma, influence the experience of people living with chronic pain.
Help us to improve research and practice for people living with persistent pain by completing a brief survey. We are interested in hearing from people with a wide variety of conditions ranging from chronic back pain, to arthritis, and fibromyalgia. Please contact Olivia Waugh at the Australian National University to take part or be provided with more information.
P: 02 6125 4100
INTERNET, SOCIAL MEDIA AND APP USE BY PEOPLE WITH CHRONIC PAIN - UPDATE
What is it about?
Researchers from The University of Queensland and Chronic Pain Australia are working together to better understand how Information and Communication Technology (ICT) can improve the lives of people living with chronic pain. ICT includes things like websites, Facebook, Twitter and Smartphone apps. The first step for us was to find out how people with pain are using ICT. We asked people to do an online survey that was open for five weeks in the late 2011. A total of 177 people completed the survey. We realise that it was a long survey, and would like to thank all those who participated.
Summary of early findings
The UQ researchers are still analysing the survey results. However, here are a few of the early findings.
1. The internet is an important way of obtaining information about chronic pain
Most (93%) of the people who did the survey said websites were one of the main ways they got information about chronic pain. This compares to 57% who said they got information from their doctor and 46% who said they got information from books.
Most people said they used websites to read information about chronic pain in general, to find information about treatments, and to find information about pain medications. Most (77%) thought websites about chronic pain were helpful, although 22% were not sure. 88% of people would like to see more people using websites with regards to chronic pain.
2. Facebook was the most used ‘social media platform’
By ‘social media’ we mean interactive online sites like Facebook, Twitter, YouTube and blogs. The most commonly used type of social media was Facebook – 69% of the people who did the survey used Facebook, followed by YouTube (34%) and Google+ (30%).
People used social media differently to websites, probably because social media allows them to share information and communicate with others. Of the 154 people who said they used social media, 47% said they used it to find information about chronic pain, pain medications and/or treatments and 71% said they use social media to find out about other s’ experiences of chronic pain. People also used social media to share information about chronic pain (46%), to meet others living with chronic pain (42%), and to raise awareness about chronic pain (40%).
Less people found social media helpful, when compared to what people said about websites – 61% of those who used social media said they found it helpful, with 35% undecided.
3. Less people use Smartphone or tablet apps
Ninety-three people (52%) who did the survey had either a Smartphone or a tablet, such as an iPad. 23% of these people used a chronic pain app on their phone or tablet. Of those who did use this kind of app, twelve used the app on a weekly basis, which is only 1% of all the people who did the survey. This is compared to 95% of people who used websites on a weekly basis and 74% who used social media on a weekly basis. This suggests that, at the moment at least, apps are not used by many people with chronic pain. However, this may change as apps become better known and more people own Smartphones or tablets.
Stay tuned for the next stage of this exciting research collaboration with The University of Queensland researchers! The next stages include a survey with health care professionals regarding how they use social media in their work with people with pain, and a broader community survey of ICT use by people with chronic pain.