The impact of chronic pain on the life of an Australian raised in the House of Reps Australian Federal Government by Louise Markus, member for Macquarie:
Here is the transcript:
"National Pain Week
National Carers Week
Mrs MARKUS (Macquarie) (13:57): I rise today to draw attention to National Pain Week, which will occur during the parliamentary winter break from 22 to 28 July, and National Carers Week, which occurred last week. These two important weeks are obviously connected, given that Australian carers often makes sacrifices to care and support those who are experiencing pain.
Earlier this month, I met with a resident from the electorate of Macquarie, Andrea Downing, who suffers from chronic pain on a daily basis. As a result of this chronic pain, Ms Downing faces daily challenges.
Many like Ms Downing have reduced opportunities for work, having to opt for cheaper accommodation in locations such as the Blue Mountains, where access to health services and suitable transport is limited.
Following my meeting with Ms Downing I have reviewed what I consider to be startling statistics with regard to pain that will be broadly advertised during National Pain Week. One in five Australians suffer from chronic pain. Eighty per cent of those—that is, 16 per cent of the national population—do not have adequate access to treatment for their pain. Chronic pain is a very real and debilitating illness resulting in loss and a lot of misunderstanding. It is a real condition that can manifest itself under a variety of banners and requires thorough recognition as a disability.
It is absolutely critical that people with a disability and their families and carers are provided with the regular care, support and therapy equipment that they need. Effectively, this government will pend more
each financial year on its interest repayments than it will spend in total over the next four years on the implementation of the National Disability Insurance Scheme. You can forgive Australian people such as Ms Downing for feeling short-changed because of the government's approach to chronic pain."
Dubbo Pain Support Dinner - Saturday 16th June Hotel Dubbo Guest speaker Dr Lynette Guy. Click here for the flyer.
Congratulations to all who made submissions about Lyrica - its been recommended by the PBAC! http://www.pbs.gov.au/info/industry/listing/elements/pbac-meetings/pbac-outcomes/2012-03/positive-recommendations
Peter is having great difficulty managing his pain after a couple of really bad accidents. Read Peter's story
"You are walking with a friend discussing a popular poet. A tiny quartz pebble has found its way into your shoe and is now directly under your heel, but your friend is about to sum up and you don't want to interrupt the flow of the conversation, so you continue walking, looking interested. Stab. Stab. Stab. Soon she smiles broadly and says, "Well what do you think?" But you think nothing. You have lost the thread." read more
If you were one of the people interested in participating in the neuropathic pain and Lyrica interviews please go to the box at the bottom of this page, click the item and it will take you through to a page with more information and contact details.
SIblings of kids with disability
This DVD will assist parents, and those who work with families, to understand the experience of brothers and sisters of a child with disability and how to support them. Parents and siblings share their stories and, together with professionals, explore a number of issues. It is an ideal resource for organisations to use with groups of parents, especially given the DVD includes notes to facilitate further discussion.
http://www.siblingsaustralia.org.au/ps_resources.asp. You will be able to view a short excerpt of the DVD on the Siblings Australia website.
Letter from Maeve Eikli, Communications and Consumer Participation Manager | Agency for Clinical Innovation
NSW Health has convened a Taskforce to advise the NSW Minister for Health on the development of a statewide plan for chronic pain. The Taskforce includes representatives of the Agency for Clinical Innovation (ACI) Pain Management Network.
The Taskforce is developing a report for the Minister that will include recommendations for services provided to people with chronic pain across NSW by 30 September 2011.
To inform its input to the Taskforce, the ACI Pain Management Network is:
- working closely with consumers to make sure that recommendations are based squarely on the needs of people in pain, their families and carers
- conducting a survey of all the tertiary units in Sydney to harness the practical experience and expertise of doctors, nurses and allied health professionals that provide care to people with chronic pain
- consulting with primary care clinicians across the spectrum of rural and metropolitan services
- building on the work of the National Pain Strategy, which involved over 150 healthcare professionals, people who live with pain, and not-for-profit bodies representing a broad range of health issues, including chronic diseases associated with pain.
The ACI Pain Management Network has established a Community Partnerships Working Group to identify priorities for patients, carers and families to be included in the statewide plan. The working group is chaired by Coralie Wales, President, Chronic Pain Australia and includes six community members that live with chronic pain. The Community Partnerships Working Group has identified draft recommendations for key outcomes of a proposed Model of Care from a consumer perspective.
To view these draft recommendations click on the following link:
You can also provide your feedback or input. The deadline for feedback is Friday 26 August 2011
Thank you for taking part in our survey. Please encourage others to provide feedback.
Communications and Consumer Participation Manager | Agency for Clinical Innovation
Tower A, Level 15, Zenith Centre, 821-843 Pacific Highway, Chatswood NSW 2067
PO Box 699 Chatswood NSW 2057