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What's your thoughts on the eHealth records?

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5 years 5 months ago #12350 by BIY
BIY replied the topic: Re: What's your thoughts on the eHealth records?
Thanks for posting this link Di.

It does seem like a really good idea.

The only downside I can see to it is that I don't know about you guys, but I have come across docs in the past who have made snap and faulty diagnosis...and these can seem to follow you like a bad smell as it then colours further ongoing diagnosis as docs often form their opinions from what other docs have contributed in diagnosis.

Fee

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5 years 5 months ago #12351 by BIY
BIY replied the topic: Re: What's your thoughts on the eHealth records?
Hey Di,

I just realised what your new avatar was reminding me of....did you watch Mr Squiggle when you were a kid? He used to get put into a rocket at the end of the show and it opened up just like your spine pic did so Mr Squiggle could be put inside. He had a pencil for a nose and was a puppet and people used to send in squiggles and he'd make a picture out of it...but they were always upside down while he was drawing them (I think the puppeteer must have been driving the whole thing at the top of Mr Squiggles hat so would have been looking down at the picture right way up to him :)

Anyhoo.....

:) :) Fee

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5 years 5 months ago #12353 by di
di replied the topic: Re: What's your thoughts on the eHealth records?


I absolutely loved Mr Squiggle Fee...
If I squint real hard and maybe take a few more pain blockers that I should... I can just see the resemblance. :P :lol: :silly:

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5 years 5 months ago #12418 by kebsa
kebsa replied the topic: Re: What's your thoughts on the eHealth records?
in theory i think the e health stuff is great, for the reasons such as grappers has mentioned, i have an intrathecal pump in place and while i can have and have had MRI's with it in place, the pump has to be turned off as the magnetic field can signifcantly alter the infudion rate of the meds and can lead to overdose, not to mention that here could be complications with the pump itslef if it went wrong- at presnet i carry a card around in my wallet telling tehm what to do if they thing\k the pump is going wrong and i am at a site that they have n facilities to deal with it but that relies on me being able to remind them to check my wallet etc
there is just so much info that can be recorded on medic alerts and its limited! having said that the issue of inexperienced staff making por diagnosis then making notes that lead other medicos asstray is a real issue and i do understand that we, the patient has the rite to say what can be on the e record and what is not- that ibrings me to another issue- i know that i have spoken to some doctors who have said that if they were dealing with a patient they did know and only had the e record, to go by they would be a little worried, in case the patient has slelctively edited information from the record- and while as a patient, i would want that rite, i can understand the concerns!!

a few yrs back i cam across medic alert type bracelet that was basically a usb drive buil into a silicone bracelet -it then had a databas on it that i could scan doctors letters, medical test results, apointment schedules, medcal hisory etc etc emergency contacts the works!! and i liked the idea and started using one myself- it has been generally well recieved but the fact that the patient has access to and control of the informatio seemd to concern some of the doctors i spoke to- they all said they had come accross patiemts that they would not particularly trust whereas if they get a fax of a persons record they feel it is safe- when i raisded the potential issue of poor previous medical assessments and notes they agreed that that was a concern but they hoped that xperience would help wit h that but with patients such as us with chronic pain, how many of us have come across unsympathetic, nonbelieving mo's who think we are perhaps narcotic seekers or have some other motive for misleading a doctor

one example i have seen involved the records of a child, the child had come in with a severely fractured arm, one of a series of fracures that seemed excessive, the intern in ED documented ??silvermans syndrome, which was a way to documented possible physical abuse- however if the intern had read throught the notes further or listened to the childs hisorty from the parents, the child had been on high dose steroids due to severe renal problems and this had cuased several problems including osteoporosis, the reason for the poor kids fractures- all that was in his records as the hospital was where the kid had his ongoing treatment but either the intern had not read them properly or was too inexperienced to understand- instead he documented the rather unpleasat diagnosis of silvermans syndme- it was not amended later either and the parent had no way of knowing it was in the notes- when we nursing staff raised it as a problem we were told that hopefully the next doctor ould do a more thorough assessment!! i guess whati am saying is mud sticks and an inexperienced doctor who does not know his patient well can cause a lot of damage

i guess the upside is that if we register we can have easier access to the record and challenge it more easily- i know that thoughts are quite mixed about the whole idea in the medical community

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5 years 5 months ago #12425 by di
di replied the topic: Re: What's your thoughts on the eHealth records?
Kesba,

Thanks for the logic and perspective from the medico's point of view.
I can totally see how a doctor would be cautious that a patient may easily delete important records to suit themselves.

Yes, I sometimes think we forget that medicos are well use to their own overlooking important notes and conditions but I also think that we're conditioned to know there's a 'protect each other' type of mentality that exists in most fields as well.

Unfortunately for that reason, maybe the system of eHealth records is doomed before it even really starts to take off.
I did ring my own medical clinic and was told they had no intention of participating in eHealth at this stage.

Makes you wonder how many medicos intend to input information at all because any data base needs constant, reliable, updated mass data to be deem successful. :unsure:

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5 years 5 months ago #12442 by kebsa
kebsa replied the topic: Re: What's your thoughts on the eHealth records?
there is another issue relating to doctors in private practice, something that many are not aware of - the notes in the publi health system are basically the property of the health system and the patient has the right to access them by applying throught the freedom of information act, the same as any other government record, it just takes time and you cannot alter the content, However the notes that your GP and other Doctors in private practice hav are their property, not ours! so much so that if you move house and have to change doctors or change them for other reasons, and ask them to forward your notes to the new practice, currently they are not obliged to do so. there are many very reasonable doctors who will do it but then there are rothers who are worriedthat someone else may read those notes and perhaps see something that has been missed or some other issue- and that is enough for them to refuse- at best they may send a summary which means that the information may be incomplete but i had one friend who was changing gp's because of concerns- and she was denied even a summary!

So from talking to my Gp (who is very reasonable and has given me copies of notes, letters from other specialists etc- so has never had an isse with me accessing my notes) He told me that many doctors will refuse to sign up ver the issue of control of the notes and i must admit that in this day and age of increasing legal action against medical practioners, i can understand so concern . information technology is changing and developing so fast that legislation is just not keeping pace with the changes- until they do there will be resistence from the medical community to some degree

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