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TV reporting setting back CP progress

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5 years 5 months ago #12373 by BIY
BIY replied the topic: Re: TV reporting setting back CP progress
Guess what Di,

My husband came home from work today and, unbeknownst to me, had gone on the Today Tonight feedback section and told them about his 'friend' with CP and pointed out all the holes in their story.

To say I was blown away was an understatement! It is encouraging to know that there are people who don't suffer from CP themselves who are willing to advocate on our behalf. He told me the program last night really got up his nose!

:) Fee

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5 years 5 months ago #12376 by grappers
grappers replied the topic: Re: TV reporting setting back CP progress
Not that it will do any good, all they are after is ratings, the truth is never told and one side of the story is sensationalised

Don

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5 years 5 months ago #12379 by BIY
BIY replied the topic: Re: TV reporting setting back CP progress
Hi Guys,

Found the link to the Today Tonight story on their Facebook page where people have put comments about the story. The story is called "Holly's Fight".

www.facebook.com/TodayTonight

Lots of people have commented on how other previous diseases that doctors couldn't explain were put down to psychiatric conditions and now, further down the medical science track, have actually been labelled true biological illnesses. It is good to read in so many of the comments (some by nurses) that there were many who thought the story last night was a lot of rot. Good to see the message is trickling out there, albeitly very slowly.

I pity the poor buggers who had CP in the past before CP pain clinics and research even got this far; it's bad enough for all of us with the ignorance; imagine what it must have been like having CP 20 years ago :(

Fee

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5 years 5 months ago #12416 by kebsa
kebsa replied the topic: Re: TV reporting setting back CP progress
i am no surprised at the stories, medical scence is full of people with big egos' a lot of them just cannot admit that scince is imperfect, that we still have a lot to learn about the human body. Add to it the fact that evn what is know by the pain specialists is not widely known in medical and nursing circles- and you have these kinds of stories popping up= its far easier to say that something is conversion disorder or even munchousen syndrome if the person continues to try to get help than for the medicos to just sya i don't know! i am proud of my profession of nursing os of the time but then stores like this come up.

i know i have said it before, pain is not taught as subject, condition in its own rite, just as a symptom-that alone is just so wrong. now we have increasing numbers of people who are not willing to just stay quiet when they do not get the help they need, they go to programs likke TT and ACA, but with less than perfect resultsll at least they have tried to help with conditions like lyme disease but that is because it is our local australlian medicos that say it does not eist in australia when test have come back positive in australian patients- still the locl medicos will call it conversion disorder or attentions seeking- we all know how fibromyalgia has been labled things llike yuppie flu in the past too- medicine and its practioners just does not like to admit it is not 100% perfect!!

i think all we can hope is that gradually the general public is getting more likel to question this kind of story too- the time of the public fully accepting something just because a person in a white coat says it is ending thankfully- these girls will have friends and family who can help spread the message around too and thats how attitudes change but sadly they will have these lables to deal with for a while now - i did not see the story but saw them advertise it and felt it seemed like thy were questioning the vallidity of the coversion disorder diagnosis, the same way they have questioned the no lyme disease edict but i could be wrong- maybe thye do need some feedback about the way they represent this kind of story

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5 years 5 months ago #12432 by di
di replied the topic: Re: TV reporting setting back CP progress

BIY wrote: Guess what Di,

My husband came home from work today and, unbeknownst to me, had gone on the Today Tonight feedback section and told them about his 'friend' with CP and pointed out all the holes in their story.

To say I was blown away was an understatement! It is encouraging to know that there are people who don't suffer from CP themselves who are willing to advocate on our behalf. He told me the program last night really got up his nose!

:) Fee


Good on him Fee. :) Let's hope a lot more people follow suit. I'll go on the TT feedback section then, I thought I could only comment via their Face Book page but I'm not a member of FB... nor do I wish to be BTW!

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5 years 5 months ago #12435 by BIY
BIY replied the topic: Re: TV reporting setting back CP progress
Hi Di,

How did you go? I hadn't realised til after that my husband had done his feedback through Facebook. If you find another way, can you please share the link?

Great to hear your feedback Kebsa especially as a former nurse. You can still watch the story via the link I put in one of the posts earlier in this thread (I think it's about the third post).

:) Fee

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