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Raphael needs your Guidance & and sympathetic ear

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5 years 5 months ago #12550 by Raphael
Raphael created the topic: Raphael needs your Guidance & and sympathetic ear
Hello Lovely CP’s
Feeling a little deflated this week. I went to a GP last week who specialises in lower back pain. Anyway, he was fairly confident that my pain was coming from an unstable SI Joint. He said he would be able to treat me with Prolotherapy, but I would need to have a diagnostic SI Joint injection first with cortisone to see if it gave me relief. There is no point proceeding with the Prolo if we are targeting the wrong area.

I had the injection on Monday. Initially with the anasetic I felt great! Once it wore off, I felt very sore and bruised and area got worse than better. It has settled down a little now but I have had little if no relief from the Cortisone.
I shouldn’t have put ‘all my eggs in the one basket” because now that it hasn’t worked, I feel even more frustrated and depressed. I just don’t know what to do. I am very teary and I feel that this is my life now and I just don’t know how to cope.

I am currently on holidays but will be back at work in a couple of weeks. My work environment is toxic. They aren’t very sympathetic to me and actual see me as a hindrance. My boss has actually told me that I am mentally unstable and I exaggerate the pain I am in, so the stress of going back doesn’t help. Just having time off for a doctors appointment is unfavourably accepted. I am so scared that I won’t be able to work and will end up on a disability pension barely exist
I am going to see a Spinal Specialist and see what they say…I am so scared and feel all my dreams fading away.

Can anyone recommend a Pain clinic or Pain Psychologist on the Gold Coast? Maybe I should talk to someone who understands. My Mum is wonderful, but the whole situation is stressing her out and it makes me feel more of a burden and guilty for putting this unwanted stress on her.

Blessings

"You never really understand a person until you consider things from his point of view - until you climb into his skin and walk around in it."
Atticus Finch - To Kill A Mockingbird

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5 years 5 months ago #12551 by Mary
Mary replied the topic: Re: Raphael needs your Guidance & and sympathetic ear
Hi Angela,

It's such bad luck that the SI joint wasn't your problem. It must be very disappointing for you. I can remember going through a similar experience with cortisone injections that did nothing (apart from a couple of days) some years ago.

I wii see if I can find out who or what may be available on the Gold Coast. I will get back to you as soon as I can. A pain psychologist or pain clinic (possibly both) will not only teach you how to cope with pain but also how to handle the negative people in your life. It is not a "quick fix" but it is definitely worth the effort.

Hang tight.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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5 years 5 months ago #12553 by Raphael
Raphael replied the topic: Re: Raphael needs your Guidance & and sympathetic ear
Thank you Mary. Most appreciated. Also another issue I have is Health Insurance. I have never had it and am unsure whether I should get it. I only bring this up because from what I can see most services are through a private provider. Public health is notorious for waiting periods. I guess though there would be lengthy waiting periods before I could claim anyway because of a pre-existing condition? I am so confused. I really dont know how it works.

"You never really understand a person until you consider things from his point of view - until you climb into his skin and walk around in it."
Atticus Finch - To Kill A Mockingbird

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5 years 5 months ago #12554 by BIY
BIY replied the topic: Re: Raphael needs your Guidance & and sympathetic ear
Hi Angela,

That is great that you are looking at getting some help through a pain clinic and pain psychologist. CP is not the easiest of journeys at the best of times, so having this input from a pain clinic is a bit like a light in a dark tunnel...at least that's how I experienced it :-)

Garfield Rules I think goes to a private pain clinic on the Gold Coast...not sure though.

I am in Victoria so sorry can't help there. You could also Google pain clinics in your state.

There are a lot of people out there who don't understand about CP and sounds like your boss is one of them. Like Mary says, a pain psychologist can help navigate through this.

Private health insurance can be confusing (I recently looked at changing providers). There's a website called www.iselect.com that you can compare all the different health funds to see what suits you best. Probably better to get into one sooner rather than later cos of the waiting periods. Once you've decided on a few possibilities, it may be a good idea to ring them to find out what their small print says about pre existing conditions. I think, from memory, the one I belong to said that you had to wait 12 months to claim or something like that if it was pre existing.

There should be a pain physician at a multi-disciplinary pain clinic who could review what treatment you've tried thus far and what options are open to you still. There's often not a magic treatment that gets rid of CP entirely, but there can be options that bring the pain down to a manageable level and then this, combined with pain self-management tools they can teach you can help you get your life back....it just may not look quite the same as the life before CP, but definitely the main thrust of pain clinics is to increase activity and quality of life.

Hugs,
Fee

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5 years 5 months ago #12555 by BIY
BIY replied the topic: Re: Raphael needs your Guidance & and sympathetic ear
Hi again Angela,

That web address for health insurance is

Www.iselect.com.au

Forgot about the au in the post above.

Hugs,
Fee

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5 years 5 months ago #12559 by GarfieldRules
GarfieldRules replied the topic: Re: Raphael needs your Guidance & and sympathetic ear
Hi Angela, I see Dr Leigh Kevin Dotchin at The Pain Doctors. He seems quite good. There phone number is 55/278025. He is located in Pindara Specialist Suites, Suite 4, Level 2. 29 Carrara St, Benowa. I don't have private health insurance but the cost of seeing him is not too bad because you can claim medicare back. Their website is www.paindoctors.com.au

My sister goes through Robina Hospital pain clinic. She has very long waits between appointments. But you don't pay for anything. But it is quite a long waiting list to see someone initially.

I hope this info will help you. Take care. GF

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