JR_619 replied the topic: Welcome to All Young Sufferers of Chronic Pain!
Hi all, my name is Jen and I am 22 years old. My chronic pain started just before my 20th birthday when I injured my back at work. I ended up being diagnosed with spondylolithesis (a degenerative bone disease) which affected my L4 and L5 discs. I met a surgeon who performed the ALIF surgery (going through my stomach to replace the two discs with mesh cages, screws and bone from my hip). I came through surgery well and recovery went fairly smoothly for the following 9 months but then I started to experience sciatic like pain. I had many scans and ultrasounds which found nothing wrong with my legs, it took about a year to discover I have what is called piriformis syndrome. I have since had 6 spinal injections and 4 injections to the piriformis muscle in my leg, all of which did not work. I depend on opiads and lyrica to get through the days but even they are starting to fail. I see a pain specialist and am just starting with a new physio who I think may be able to help me. To be so young and in so much pain frustrates me. It's hard to stay positive especially when noone understands what im going through. I have supportive friends and family though I have lost a lot of friends to this condition. I hope to gain some more support from this forum.
Thanks and best wishes to all who are suffering.
3 years 10 months ago - 3 years 10 months ago#21166by Peter
Peter replied the topic: Welcome to All Young Sufferers of Chronic Pain!
Welcome to the CPA forum!
We oldies don't normally post in here, because we want to leave this category for the youngens. But it has been fairly quiet, so if you want to get some great support sooner from other people who can give you some insights into what lies ahead of you, then maybe you might want to post this same post into this category and thread:
When you get there, just click on the 'Reply' button under the last post.
See you in the main forum!
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
brenden_88 replied the topic: Welcome to All Young Sufferers of Chronic Pain!
I posted this in the main section too but thought I'd also post it here.
Just curious what you all do for work? I love my job as a travel agent but I'm at the stage where I just don't think I can handle being on a computer anymore. In the past month my pain has spiked and im thinking I may need to find a new career path. The problem is what am I going to do. Nearly every job out there requires work on a computer, a long time on your feet, are strain on your arms which is freaking me out as I need to earn money. I'm 26 and I have neuropathic pain in my arms which eventually spread to my feet. Between my last job and this one I had a little gap and my arms and feet felt as good as they have in years. Unfortunately I have come to the realisation that I wont be able to continue doing what I love. I need to find something where the nerves in my arms have time to heal. So back to my original question what o you guys do?
Marley replied the topic: Welcome to All Young Sufferers of Chronic Pain!
brenden_88 wrote: I posted this in the main section too but thought I'd also post it here.
I'm 26 and I have neuropathic pain in my arms which eventually spread to my feet. Between my last job and this one I had a little gap and my arms and feet felt as good as they have in years. Unfortunately I have come to the realisation that I wont be able to continue doing what I love. I need to find something where the nerves in my arms have time to heal. So back to my original question what o you guys do?
I'm too old to be posting in here, but if you are still about, there are several medication and medication combinations that help with neuropathic pain. It is worth talking to Doc about your options and getting a referal to a pain clinic, if you are not on their waiting list, you will never get in.
Another option could be longer work breaks or part time on medical grounds.
Just a few optionf for thought.
Once I could laugh with everyone
Once I could see the good to me
Holding the world inside
Now the world is grey to me
Nobody can see you gotta believe it
Oh oh the night comes down
And I get afraid of losing my way
Oh oh the night comes down
And it’s dark again
“The Night Comes Down” Queen
Keira27.t.o.s replied the topic: Welcome to All Young Sufferers of Chronic Pain!
Alicia please can you help me. I have been diagnosed with Thoracic Outlet Syndrome 3 weeks ago. I am in Adelaide also. I have been ill for 5months. No doctors are helping me or treating me. My illness is getting worse. It began with just pain in my chest and collarbone and we found the calcified cervical rib. But after being palmed from doctor to doctor for 5months the symptoms have gotten progressively worse and I now have limited use of my arms. I am very concerned about the permanent damage that could be occurring while no one will take me as a patient. Please can you help me? Where do you go? Who has helped you? I see you are suffering with TOS in Adelaide too. I am very frightened I am becoming more disabled.