Johnno replied the topic: chronic pain beating methods
Hi Eliza & Diane,
Good to see you helping each other and giving support we need more of this as a smile and a g’day could prevent the unmentionable.
Coping with pain is a pain ,mine runs from my lower spine down and the nerve pain is the worst sunburn imaginable I take lyrica (some hate it but it’s worked for me).
Diane I feel your pain as I have similar every day I have to work out when enough is enough and start to slow down or stop what I’m doing due to pain,discomfort and everything else we suffer & pace myself he next few days to return to previous pain levels (sorry Eliza that resting doesn’t give you relief) I have to lay down. and generally I have a nanny nap which seems to help.
as long as I wake up alive I'm happy
Because it could be worse
illeatyu replied the topic: chronic pain beating methods
I couldn't agree more, at my worst I take 80Mg Targin twice a day, 100Mg Lyrica three times a day, 10mg Diazepam at night for cramps, Panadene Forte for break through up to 8 a day, and Stilnox at night so I can sleep long enough to be able to function at work. Oh and Reflux medication, Antidepressants, Laxatives and Skeletal muscle relaxants to combat the side effects of the pain meds and the depression that came with the constant pain.
In return for taking all of that I am able to walk (some days less than 20mt at a time)and hold down a full time job, although my boss knows about my issues and I don't have to do anything that aggravates it or I wouldn't be able to hold down my job.
I have various people telling me that the meds will kill me (none of them are doctors), but my doctor and I manage my meds very closely and I have 6 monthly blood tests to make sure nothings getting damaged by the meds.
And just to be clear, taking all of that does NOT make me pain free, it drops my pain from an 11 (yes it does feel like someone is hammering a chisel into my spine if I try to walk without them) to somewhere between a 4 and 6 depending on how much and what quality of sleep I get.
I don't know anyone with chronic pain that enjoys taking these pain meds, we don't get high, we don't get euphoric, we do get quite a lot of the usually two pages of side effects from each med, and I can only speak for me but when I started on these meds I found out quite unpleasantly that I don't tolerate quite a few of them very well, I had hallucinations, Vomiting, Gastric, Vertigo, blurred vision, Insomnia, just to name a few of the more pleasant symptoms, so If someone offered me the choice between being mostly pain free (4 or less) and taking the meds I would stop yesterday and be ecstatically happy.
As Eliza has said we are all different and we all have different tolerances and body's and what works for me may not work for you and vice versa, where we usually win out on this forum is that we have such a diverse range of people and conditions that usually when someone asks for help or advice at least one of us has some experience with whatever it is.
Anyway hope you have a better day Eliza.
“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.
Had read many of the posts across the forum & have much respect for what people have gone/going through.
I'm a 39 y/o male who stated having issues a few months ago. As I was a bit of a sceptic on what was wrong I saw 5 different GPs, 2 physios, a myotherapist & an osteopath. I paid for my own scans & maxed out my health insurance. All stated it was muscular & it is still is. I'm not recovering though which is my issue.
I put a post in 'My Illness and Pain Condition'. All I'm hoping for is a little guidance or reassurance or recommendations.
I've had family & friends on perscription pain killers which has changed their personalities & their lives. Not wanting to follow them & given my psychological hypocondria I'm thinking it's the worst automatically.
Artio replied the topic: Introduce Yourself Here.....
Hello everyone, it's 5am and I can't sleep due to pain so I went hunting and found myself here! I'm 34, mum of three gorgeous kiddos and fellow sufferer. Current diagnosis is 3x herniated discs with nerve root impingement and a soft diagnosis of Ehlers-Danlos Danlos Syndrome pending genetic tests. Ten years of chronic pain, at least 15 different pain medications and I'm still trying to find something that works. I'm sure I'll get to know you all soon enough and I'm so glad to find somewhere that understands.
Go Nadz replied the topic: Introduce Yourself Here.....
I have dealt with chronic pain for over 50 years. It all started with a neck injury when I was about 4. Since then, as a result of a couple of motor vehicle crashes, I have had arthritis, 2 severe closed head injuries, torn nerves, torn tendons, at least 2 spine fractures and 20 or 30 other assorted fractures to various body parts. As to drugs, I have at times been on morphine, methadone, codeine, oxycodone, hydromorphone, various anti inflamitories, barbiturates, anti-depressants and other psych meds.
Currently I am on kapanol, celebrex and endone for the breakthrough pain and have been for the last 20 years. As a result of the painkillers becoming less effective I am currently in rotation to jurnista. I am also prescribed an anti-depressant which I don't take. Since the pain clinic insisted I take them and threatened to withdraw my pain meds if I didn't, I just take the scripts and don't get them filled. I did try the anti-depressants but they were of no benefit so I stopped them after a couple of weeks.
It appears that I am one of those who only absorb about 10% of my dosage so to talk about how much I am on would be a little pointless but up till a couple of years ago it was enough to control the pain.
Anyhow, the first attempt to rotate me to jurnista instantly left me in severe breathing difficulties at night while I was sleeping so they stopped the change over. A few months later, even without the jurnista, I noticed that I was having times at night when I was simply stopping breathing and would wake punch drunk and gasping for air. I realised this was a case of opiate toxicity. So, I self tapered my meds as much as possible and the problem stopped. Now I am in another try at rotating to junista and I had hoped that this would mean I could get better relief on a lower equivalent dose which has been the case up till now. However, after a few months and about a third of the way through the process, I have become aware of the breathing difficulties returning. I cannot reduce my meds further without them becoming totally ineffective. For the first 16 years I had no probs at all with the dose I was on and the dose has been constant ( apart from the recent self taper ) the entire time. It just seems my body is no longer able to deal with what I need to take.
Here is the dilemma, I have a choice between going back to the constant intolerable pain or continuing as is and quite simply, not waking up.
FYI: I do not fear death; I am also not quite ready to go yet either although it is preferable to going back to the constant intolerable pain.
Any thoughts anyone??? Is this a common issue???
Someone once said "What doesn't kill you, makes you stronger."
What doesn't kill you probably leaves you with enough chronic pain that you kinda wish it had,lol.
That said, on the edge is living, all the rest is just waiting around to die.
Artio replied the topic: Introduce Yourself Here.....
I'm much the same, I've had issues with opiate absorption both orally and transdermally (is that an option you've considered? Fentanyl or Norspan patches?) as some people have a gene mutation that means opiates aren't processed effectively in the gut. Recently I went to my doctor and said that opiates weren't working for me and I gave him a list of different things I wanted to try. I've recently started on low dose naltrexone for pain relief, it's not doing much for pain, but us helping with fatigue and depression greatly. My next step (hopefully) is ketamine troches, which are showing great results for neuropathic pain. I'll keep you posted but as someone famous once said "The definition of insanity is doing the same thing over and over again and expecting a different result" sometimes you need to give your pain specialist a nudge to think outside the box. I tend to provide articles from reputable medical journals for my doctor to read to support why I'm asking to try certain things and we work collaboratively to try and make my life better. Best of luck to you x