Go Nadz replied the topic: Introduce Yourself Here.....
Thanks for the thoughts. Yes I have had fentanyl, it did help a bit when used in conjunction with the kapanol but the effects wore off very quickly and the doctors only want to use one painkiller at a time, no cocktails in the long term, lol. Perhaps my high metabolic rate plays a part in how long stuff lasts. Really though, the morphine still works as does the hydromorphone. The problem is mainly that my age now means that the dosages I require to overcome the absorption issues and tolerance are such that my body is cracking under the strain. What caused no probs in my late thirties is now causing me to stop breathing while I sleep.
Unlike most people here, its not that I can't find something that works or can't get enough to help, my body just can't handle what I need to take and am being prescribed. The jurnista is more effective ( after 20 years that's not surprising really) and I really hoped that rotating to it would mean I could taper myself further than I already have. Just no luck with that so far.
I guess I always knew it would come to this eventually but that doesn't mean you are ever ready when it does happen. I have had 20 years I would not have had if they hadn't got me on this regime. I was quite ready to top myself when I first went to the pain clinic. I am sure a lot of people here know that feeling well and there are certainly worse things than dying.
I had thought about asking for a "ketamine reset" but you can't really ask for anything or it's seen as drug seeking behaviour and if the doctor doesn't listen to your "suggestions" there isn't a lot you can do. In spite of the fact that the only one who truly understands your pain is yourself the people treating you are the "experts" (the definition of an expert is a has been drip under pressure) and seem to believe that as a 'god' they know it all so much better than you possibly could, rofl. Bitter much, probably, lol.
Anyway please keep the ideas coming, I appreciate any and all of them.
Just to finish up, I do wish you all well on your own personal journeys.
Someone once said "What doesn't kill you, makes you stronger."
What doesn't kill you probably leaves you with enough chronic pain that you kinda wish it had,lol.
That said, on the edge is living, all the rest is just waiting around to die.