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Introduce Yourself Here.....

  • Mary
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5 years 5 months ago #14678 by Mary
Mary replied the topic: Introduce Yourself Here.....
Hi Ricky and thanks for sharing your story with us. You sound a very strong person and you are coping really well with this horrid condition.

I am so glad that you have received some relief from Lyrica. I think that there will be a lot of people who will benefit from it now that it is on the PBS.

Good luck and keep us posted as to how you are going.


Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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5 years 5 months ago #14679 by kebsa
kebsa replied the topic: Introduce Yourself Here.....
nice to meet you ricky even if it is because of something like chronic pain. I think peter spoke very wise words- some years back i was so close to suicde- i had my method planned and as a nurse i new it would be successful but i did not go through with it because i did not want to hurt my parents- i had seen the effects that suicude has on loved ones left behind and i could not do that- at the time i was angry that my only option was gone but later i was glad- i did not want to die i just wanted the pain to go- well is never gone but it is more a pattern of good times and not so good - finding others like those here is what makes the difference- you are obviously a very strong person to have withstood all the ups and downs that you have- it must have been very frightening to lose the sensation in you legs. I have MS and in one falre i lost the sensation in my leg but at least i knew that it was highly likely it would improve- it was still scary

i am sorry its been such a battle but glad the lyrica has been of some use, i was lucky in that i did not have the unpleasant side effects that some have had but gradual increase of these kinds of meds is always sensible

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5 years 5 months ago #14683 by illeatyu
illeatyu replied the topic: Introduce Yourself Here.....
Thanks guy's the support here is fantastic, I wish I new you were here 3 years ago, or more I wish I knew you were here.

The only side effect I'm having from the Lyrica is an increase in my deep sleep, I,use a device called Sleep Zeo pro.

It is a portable EEG and my deep sleep has gone from 40 minutes to 55 which is great.

I've now been two and a half days without Oxy "Targin" and I'm feeling not too bad, I'm down to 4,s which is great, I can deal with 4,s.

Anyway I'll keep you updated.

“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.

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5 years 5 months ago #14698 by grappers
grappers replied the topic: Introduce Yourself Here.....
Hi Ricky and thanks for sharing your on going battle with CP, you and so many like me wish we could turn the clock back and had never buckled into having an operation for disc problems, and you are not alone in wanting to end it all in the beginning, while I never lost the use of my legs, all the other symptoms I have but in different areas apart from the common severe leg pain and back, my left shin is as dead as a door nail, and my heel is the over sensitive area, the pain in my right leg which has only started in the last year is restricted down to the knee at present. I too suffered severe constipation from taking Panadeine Forte for too long, and a long story short ended up in hospital having an emergency surgery for herniated haemorrhoids, this along with the uncontrolled pain is what caused me to tip over the edge.
I too found solace when joining this site, the help and support I found from the caring people here is what has given me the fight to continue. I opted to have a spinal stimulator as medication was not the answer because of intolerances, so I hope the lyrica works out well for you as it does for so many others on this site when administered correctly and doses slowly increased to find the right level. Sleep is grand after years of battling days on end without sleep, people just don't realise how much it effects you when you don't get much, and the on flowing affect of increased pain and depression, so to hear you are now getting good sleep is a bonus.


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5 years 5 months ago #14720 by Wendles
Wendles replied the topic: Introduce Yourself Here.....
Hi Ricky
This community provides a wonderful place to chat with others who understand CP, share knowledge and to offer support, I hope you too find it as helpful as I have.

I also found that my second round of cortisone bilateral nerve block didn't work well. The first was great but then I re-injured myself (with the same horse- such a slow learner :) )

I hope you find a smile in your day :)

There is always a SMILE
in your day,
you just need to find it!

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5 years 5 months ago - 5 years 5 months ago #14853 by kazfromtas
kazfromtas replied the topic: Introduce Yourself Here.....Hi everyone :)
my name is Karen, I'm 43, I have a wonderful partner (Rick) and a 7 year old daughter.
15 years ago I was diagnosed with chronic Reiters Syndrome (I have total joint involvement and no remissions). Since that initial diagnosis I have also been diagnosed with Fibromyalgi and Reynalds Phenomenon. I have also had chronic, debilitating migraines since I was a teenager (my father is also a sufferer). My migraines intensified greatly after my pregnancy, to the stage where I was getting at least 2 a week, lasting several days each.
I am currently on a Norspan 20 patch weekly, 5mg Prendisolone daily, 8 Panadeine Forte a day, 150mg Lyrica of a night, and 75mg of Lyrica of a morning. 0.5mg Sandomigran, 120mg Isoptin daily (migrain preventative, not for blood pressure), and 2x Imigran FDT 50mg when needed.
Over the years I have been on many, many medications and treatments. It turned out that I have an allergy to Sulphur, which ruled out a number of medications. I also prefer not to use anti-depressants, I have tried quite a few and I always end up feeling quite vague and out of it, to the extent where I wouldn't trust myself to drive. My partner does shift work, so I never felt comfortable putting myself in the situation of being alone with my daughter and 'out of it', and also if something happened, not being able to drive. Having said that, I never found any relief from anti-depressants anyway.
I have had 3 facet block injection procedures. The first one I developed kidney stones 2 days afterwards, so my Specialist and I weren't sure how much affect they had. So I tried again several months later, and really didn't notice any pain relief at all. My Specialist persuaded me to try again, but unfortunately the doctor struggled with the procedure. He couldn't get the needle in the right place and spent over 45 minutes 'trying'. It was extremely painful and I ended up with nerve damage down one of my legs, which lasted for a couple of months. Needless to say, I won't be trying any more facet block injections.
I am no longer able to work, I am a Hairdresser and even doing one haircut will cripple me for days. I have tried to re-train for a different field a number of times, both through TAFE and correspondence cources, but due to my health problems and inability to concrentrate for any period of time, I haven't been able to complete anything. For quite a while I found this really depressing, but since becoming a Mum I feel like I have a very important role that I actually can do. I am a stay at home Mum, and I truly love being able to be at home for my daughter. Depending on my health, I can volunteer at her school and help out in the classroom. My partner is our sole wage earner (I am still entitled to a Health Care Card as he doesn't earn enough for me to be disqualified), so our finances are very tight, but I'm sure that everyone here can understand what that is like.
Anyway, that's me in a nutshell. I am very grateful to have found a place where I can talk to people who actually understand what it's like to live with chronic pain. I look forward to getting to know all of you.
Last Edit: 5 years 5 months ago by kazfromtas. Reason: I forgot one of my medications.

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