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5 years 5 days ago #14218 by grappers
grappers replied the topic: Good Morning and Good Afternoon!
Florrie are you driving from Adelaide along the coast through the Coorong and to the Great Ocean Rd, if so what a lovely drive, you will enjoy stopping at all the country towns along the way, and across the border into Vic from Portland on the views are breath taking. Happy anniversary

Don

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5 years 5 days ago #14242 by Eliza
Eliza replied the topic: Good Morning and Good Afternoon!
Dear mrs s, I'm hearing your frustrations, I had the Doppler studies done on my legs after my op...the kind girl said I'm going to do both legs one after the other without a break. I hope you get a good result because you've been through enough and you have so very much to deal with already.

Hugs
Eliza x

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5 years 4 days ago #14247 by Florrie
Florrie replied the topic: Good Morning and Good Afternoon!
I came away from my appointment with the pain specialist rather dismayed yesterday. He originally authorized me to take 48mg Jurnista and at that time I had to wean off Fentanyl 75mg patches. After the weaning/changeover process was finished I found 32mg Jurnista provided me with good relief, so there was no need to take anymore. Cut a long story short, he now feels as though 36mg Jurnista is a high dose and my bones are at risk of developing osteoporosis at the age of 48. Why oh why did he not warn me of those dangers two years ago. My husband was with me and when he asked if there is anything we or I can do/take for prevention his comment was "that's shutting the stable door a bit late" gggrrr! He now recommends I have a bone density scan done and for me to go back for another review in November.

On our impending trip, we are greatly looking forward to this short holiday. I have requested brochures from the Adelaide tourist beaureau which hopefully may arrive today. I have brochures on the great Ocean Road. Don and Mrs Shingles....thank you so much for your tips on what sounds like some great highlights. We are not planning anything too structured, have our first and last two nights accomodation booked and for in between where ever we finish up at the end of the day is where we will hopefully stay!

Mrs Shingles...what a huge relief that you did not have any DVT's. I'm sorry you had to endure such great frustration in gaining your appointment. It really makes you just shake your head at the total inefficiencis at times. Hope things improve for you rapidly from here. That was a really lovely offer of yours to meet up too. We have a bit of planning to do yet, so shall keep you posted!

Hope everyone is safe from the bushfires and even more flooding in Queensland. We are quite lucky here in the West that we do not get the extremes like the Eastern side of this great country of ours.

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5 years 4 days ago #14248 by grappers
grappers replied the topic: Good Morning and Good Afternoon!
Florrie we talked a lot about this before the forum crashed, doctors never warn patients that long tern pain killer use destroys vitamin D uptake which then affects calcium absorption, another affected area is hormones these also are depleted. I had to laugh at a recent article in the news recently about Kerri-Anne Kennely's struggle with her disabling lack of vitamin D, all CPer's have this problem and should have regular blood works taken to monitor their levels, is it too late to anything no way, get yourself a good quality Vitamin D and calcium combined tablet to take every day, getting sunshine alone doesn't help at all. Next time you see your GP ask to have regular checks every 6 months for vitamin D and your hormone level.
I had no idea before my GP suggested having the 2 checked, lucky I did no vitamin D and no testosterone, the latter I have to have injections for every 3 weeks and still it is just above normal range.

Don

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5 years 4 days ago #14251 by Florrie
Florrie replied the topic: Good Morning and Good Afternoon!
Don,

Believe it or not. part of having Chronic Pancreatitis is your Vitamin D levels are almost nil. Since my diagnosis I have taken Vitamin D everyday along with a mulit-vitamin and Vitamins B & C. I will be speaking to my GP about adding a calcium tablet. The Professor I am under orders very extensive blood tests to keep a good eye on all different levels including hormones.

So far this regime of Vitamin tablets everyday has prevented me from showing any signs of malnutrition as my diet is exceptionally limited, no meat, chicken and fish only when we go out for dinner. No vegies apart from tomato. My main survival is 5 Cheds crackers with sliced tomato and very thinly sliced cheese per day. I can tolerate some fruits on good days which are far and few and quite often I do not want to risk setting myself back. Very tricky indeed! It is absolutely amazing that these vitamins have worked so well for me over the past 5 years.

I am naturally a bit worried about how my health/pain levels will be whilst we are travelling, I don't travel too well at the best of times, so day after day for a week is concerning. I will have to listen to my body plus take plenty of drugs with me.

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5 years 4 days ago #14252 by Wendles
Wendles replied the topic: Good Morning and Good Afternoon!
Florrie
Have a wonderful anniversary trip. You will see some wonderful countryside, I hope it is a nice relaxing trip for you both.

Keeper of My Heart


Today we celebrate the joining of our hearts
We were meant for each other right from the start
We were destined to be together and never to part
You are my friend, my lover and the keeper of my heart

There is always a SMILE
in your day,
you just need to find it!
The following user(s) said Thank You: Florrie

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