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Venting

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10 months 2 weeks ago #27837 by Juliemackay590@gmail.com
Juliemackay590@gmail.com replied the topic: Venting
Sorry Mango, called you Johnno ;)

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10 months 2 weeks ago #27838 by myalgic1
myalgic1 replied the topic: Venting
Hi, Julie..
For many years, I was on 60mg of oxycontin a day, 30mg in the morning and 30mg in the afternoon, along with endep at 150mg, for pain, sleep and depression. When I had to move and change doctors, I was accused of being an addict and a malingerer; I've written about all that elsewhere on this site. Lyrica for me, is a big NOPE. Never again. I personally believe that Lyrica and it's cousins are to be avoided at all costs, but each med works differently for each person.To cut a long story short, I finally found a compassionate gp, who was willing to continue my regime, but only if I promised to try , Celebrex, Paroxetene and Palexia, to replace the old meds, once I was comfortable to do so. I never was. But the crunch came when I had to take over the care of my darling, autisitc grand daughter, who at age three, was an absolute pocket rocket! The 60mg of oxy was quickly becoming useless,a s I found myself doing more and more to look after the little one and predictably, I ran myself into the ground and into a really awful breakdown, with the worst pain I've ever had to endure. My doc insisted that I now try the Palexia, paorxetine and Celebrex and unfortunately for me, I suffered horrendous side effects, piled on over ten kilos and was so lethargic that I couldn't find the energy to stay awake for more than a couple of hours. I persevered for about six months, while keeping a detailed journal of pain rating, mood and activity, which I then showed my gp and she conceded that I was far better on oxycontin and endep than the more modern drugs. Since then, it's been about six months and I'm coping very well on a lower dose of oxy than I've ever used before and I'm slowly regaining my life. From this, I've learned that should I no longer get coverage from the oxycontin that I'm supposed to, I am to tell my doc and she'll put me through a palexia based detox of sorts, ad then return to my old dose of oxy. That way, I will never need high doses of oxycontin...unless of course, I'm hit with cancer stick...hope not..

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10 months 2 weeks ago #27839 by Johnno
Johnno replied the topic: Venting
I just checked my phone and you didn't call me

as long as I wake up alive I'm happy
Because it could be worse

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10 months 2 weeks ago #27840 by wildturkeycanoe
wildturkeycanoe replied the topic: Opioids
For two and a half years I was on Targin and in that whole time it never felt like it really made the pain go away. Sure it was bearable, but was that the Targin or was it because I wasn't working anymore and not aggravating the symptoms? The nerve pain wasn't even touched by Oxycodone so I finally found relief with Endep, but again it never took it away completely but made it bearable. I could have been on this endless roller coaster of pain killers for years more but thankfully I got the treatment I needed [which the worker's comp insurer said wasn't necessary]. Now that the actual cause of the pain was fixed, via a lumbar fusion, I am free of the chronic pain, the nerve symptoms and only have a little muscle pain when I make wrong movements. This is all only 2 months post op and slowly continuing to get better.
So, in the end I was right, the independent specialist and pain doctors were wrong and it only took $54,000 of my superannuation money to prove that the pain was indeed not in my head, nor was my nervous system over-sensitive. In two months I've ditched the Endep and dropped Targin from 20mg twice a day to only 5mg twice a day. I even forgot to take it this morning and was doing pretty well till I remembered this afternoon. The only reason I'm taking it is to avoid withdrawals and I think I might not even get that if I give it up during this coming week, my personal challenge to myself. Soon I will be completely free of the mind-numbing stuff and so, so, so happy to be free of chronic pain.
I sure wish that all of you sufferers have a cure out there somewhere and that it becomes available as soon as possible. I think the medical profession needs to stop covering chronic pain with medications and find the root cause, then deal with it instead. We don't hurt for no reason, though some causes are quite difficult to find. With today's technology and medical advances, being proactive instead of retroactive about pain needs to happen more. There has to be a better way than drugs.
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10 months 2 weeks ago #27841 by Juliemackay590@gmail.com
Juliemackay590@gmail.com replied the topic: Venting
Hehehe, ooops Johnno, no I didn't call (as in telephone call) you, I accidentally called you, as in 'tagged/named' a reply message to you. All good lol ;)

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10 months 2 weeks ago #27842 by Juliemackay590@gmail.com
Juliemackay590@gmail.com replied the topic: Venting
Hi Myalgic 1, yeh you're definitely right in that everyone is different and can tolerate different meds. I tried Endep with horrendous results, hence my return to Lyrica. I thought weight gain was an awful side effect of Lyrica but I absolutely ballooned on Endep. Also it left me like a zombie for half the next day. But neither of these meds are an opiate which I believe ultimately help and I'm really leaning towards trying to go back to but sticking with a low dose and harden up to the reality of having to live with certain pain levels. As I see you and a couple of others on this forum ... I've just gotta convince my GP to give me a go hey ...
You and others here are certainly very inspirational that's for sure, your lot in life is surely a huge load and I commend you.
Cheers, Julie :)
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