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Venting

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3 months 4 weeks ago #28501 by Wendles
Wendles replied the topic: Venting
Morning Fibro Fuzz
Yes it is hard when the pain is taking over your life and there seems no solution we have all been there. Have you you been to a pain clinic they can be a great help in giving you more tools to throw at the pain. But there are just some times especially in the wee hours that it all seems too hard. I must say that is me this morning as my jaw, head and neck are making it very hard to think straight. I try to remember that this will not last, 'this too shall end' and that I have got through it before but sometimes i feel like saying how many times do i have to go through it?
I hope your day improves
Wendles

There is always a SMILE
in your day,
you just need to find it!
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3 months 3 weeks ago - 3 months 3 weeks ago #28502 by myalgic1
myalgic1 replied the topic: Venting
Hi, Will,
So sorry that you're being treated like this. I've heard all sorts of rumours as to why the hysteria over perscription opioids continues to bring trouble and stigma for chronic pain patients. I'm not a huge fan of pain specialists, as I've had a few experiences with people who were most certainly not pain specialists, but enjoyed the fiscal benefits of being called one. Having said that, maybe a visit to a reputable pain specialist is what you and your doctor need, in order for you to continue using perscription opioids. My doc had the brakes applied to her, from higher up and she was unable to perscribe me opioids, until a pain specialist had confirmed that I was not an addiction risk and that all the main off label medications gave me horrendous side effects. As a result, I am able to continue using low dose opioids as a part of my pain management regime. Good luck! And don't let the system grind you down.
Last Edit: 3 months 3 weeks ago by myalgic1. Reason: spelling mistake

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3 months 3 weeks ago #28503 by myalgic1
myalgic1 replied the topic: Venting
Hi, Fibro fuzz,
I was in a similar position to you, when I was in my thirties. Had to keep working to support my child, but the pain was impossible and I ended up hitting a wall in 2005, which saw me bed ridden for six months, before discovering that I could not return to my job as a sign writer, due to pain and body damage. Does your doc know of your circumstances? I mean, completely know your story and how important it is to you, that you continue working? The frustration of knowing that you need to work, but are unable to, used to drive me mad, until I was seen by Allied Health professionals, which included physios, psychs, dieticians and the ilk. They can work out a pain management regime for you and help you with particular parts of your body that are giving you grief. Also, if they are still around, there is the Commonwealth Rehabilitation Service, that can help a person with chronic pain and injuries re - train, in order to find work in a different sector. Another suggestion would be for you to see a reputable pain specialist. They have considerably more knowledge of pain meds, (usually), than your GP and they may be able to give you something that works better for you. A lot of doctors throw off label medications at chronic pain patients in the hopes that they'll work, instead of perscribing morphine based medications, because doctors who do perscribe opioids often attract unwanted attention from their superiors and fnd their jobs at risk.

Please tell your doctor as soon as you can, about the bad reaction you've suffered. Evidently, that particular medication is not for you. Sadly, treating fibromyalgia is very much a hit and miss affair, because every patient has individual symptoms, that may not be present in another sufferer, so it is difficult for your doc to find a medication plan that works for you. It takes time, but often we don't have that time to spare...

I wish I could offer you some actual, practical advice, that would help you straight away, but all I can really suggest is that you allow your body time to get through this flare up. Don't try to push on, depsite the pain and get into to see your doc as soon as you can.
Will be thinking of you,

Myalgic.
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3 months 3 weeks ago #28504 by Johnno
Johnno replied the topic: Venting
Hi will,

I know exactly what you mean I went to a pain conference last year and that was one of the main subjects I questioned all of the very educated people there that if opioid use is on the rise perhaps GPs the front line doctors have found a medication that works and help those of us in chronic pain to manage to live a life that’s as normal as possible.

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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3 months 3 weeks ago #28505 by Fibro fuzz
Fibro fuzz replied the topic: Venting
Thank you so much Wendles and myalgic1,

I really appreciate the support and advice, I have made an appointment with my gp and will discuss a referral to the local pain clinic.

It’s just so dispiriting finding that I am reacting so poorly to the drugs and getting no relief. I just want something that will take off the edge and allow me to start non medication based interventions.

Thank you again for listening and lending your wisdom
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3 months 3 weeks ago #28507 by Wendles
Wendles replied the topic: Venting
Hi Fuzz
Glad we could help. I have just been excepted into a pain clinic for a refresher, hopefully it will get me back on track. I hope you get a chance too.
Wendles

There is always a SMILE
in your day,
you just need to find it!

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