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Venting

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3 months 3 weeks ago #28508 by Will
Will replied the topic: Venting
Thank you for the kind support myalgic1. I have an appointment to see a pain specialist in two months time. So I am hoping they will be able to increase my medication regime so I can be more mobile and get some life back. I saw another pain specialist just over a year ago. He suggested trialling a Ketamine infusion. While on the infusion the pain was well controlled for the first time since my spinal chord was crushed. Unfortunately, I am in the 10 to 15% of people who react with very high blood pressure to the Ketamine infusion. So it is not a treatment option for my future. But it may be an option worth exploring for other forum members.
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3 months 3 weeks ago #28509 by Will
Will replied the topic: Venting
Unfortunately the Commonwealth Rehabilitation Service is no more. It was shut down as a budget cost saving measure.
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3 months 3 weeks ago #28510 by Peter
Peter replied the topic: Venting
HI Will,

I sent you a private email. Did you receive it?

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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3 months 3 weeks ago #28512 by myalgic1
myalgic1 replied the topic: Venting
That's an awful shame. So many people need that service. Having said, although I scored highly on the disability scale, when I attended the CRS, they wouldn't help me, because I couldn't stop working at the job that was making me worse. Being self - employed, and unable to afford private insurance, meant that I had to continue working, to keep a roof over our heads. Catch 22...had i been able to stop working, they would've been happy to help...governance at its best.

Hope all gos well for you, will be thinking of you.
Myalgic.
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3 months 2 weeks ago #28526 by Will
Will replied the topic: Venting
No, I have been having a hard time of it lately. Something has shifted in my spine. It sort of feels like it slips and then it hurts like hell for several days. Unfortunately, the doctors have been no use in terms of dealing with the extra pain. An urgent MRI has been ordered, but currently that is a 3 week wait. I am seeing my GP later this morning but I don't expect much. The specialist I saw earlier in the week who ordered the MRI would not deal with medication issues. There seems to be a game going on where by it is always some other doctor who can increase your medication. But you can never find them. I just want some better pain relief. I would not let my pet suffer like this. Not sure why I have to.
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3 months 2 weeks ago #28527 by Harpy
Harpy replied the topic: Venting
Hi Will
Sorry to hear your having a tuff time. It is hard on the soul when what ever part of the spine packs in . Funny , how you call it an urgent MRI but have to wait 3 weeks, that’s rediculas. I too am having what my pain dr/ gps ect call this a “flare up” this has lasted since about October last year. I have to Take some Valium to help keep the muscles relaxed to help prevent what I call my spine “seizing” up.
I spend 7 months last year reducing my meds and coming off them . It was the worse experience of my life and I never want to go through that again.
I am told by specialists ect to what meds to take BUT they all fax off reports to my gp and he writes out scrips. I take no other meds, only Valium. I gave up the panadol osteo/endone and amytriptaline . They did bugger all.
I hope you get a little relief soon.
Harpy

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