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Venting

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5 years 1 month ago #16336 by peppa
peppa replied the topic: Venting
hi retread, its peppa here

hope you don,t mind that i,ve been reading all the posts and added my bit,
but i got really angry,
when i
read all the challenges and ongoing difficulties, that people are going through ;all the time!

I know, anger does,nt help the pain issues, but it was good; getting things off my chest.

you sound really caring and thats a special quality,
so
thank you heaps ,for being out there on the forum; with the rest of us

P.S. i sincerely hope that you have some much needed respite from the pain, you are currently
going through and trying to deal with; from your hip opp!

warmest regards peppa
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5 years 1 month ago #16337 by peppa
peppa replied the topic: Venting
Hi jonno its peppa here

it might be good if the doc helps keep on eye on the Lyrica, with you,
as
he might be tritrating the doseage, to see if it is manageable for you

(as there are quite a few side-effects with this medication, to try and deal with)

jonno,
we all try to do more than we can at times and yes, we do pay for it later
but
at least you are trying, and more importantly; talking about it

we all care about others here, as i,ve found out in my short time on the forum;
which is brilliant and amazing- just wish i,d found this site years ago!

i don,t know about the accupunture guy though, we all get stubbourn about stuff at times and thats okay too

we don,t need to be judged, even if it is under the guise of trying to help you!

i think that until you,ve exerienced C.P, there is no way you can honestly know, what you have to try
and
deal with or overcome; on a daily basis!

i,ve been to accupunturists before , but they never said stuff like that to me
and
they would only provide the session as needed and try to help where they could

suppose i,m waffling again, but when you are in pain, the last thing you need to hear
is a negative,
especially when you are trying to get on top of things

warmest regards peppa.

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5 years 1 month ago #16338 by Johnno
Johnno replied the topic: Venting
Hi peppa ,

Don't get me wrong the acupuncturist wasn't saying that I was stubborn he sees a lot of people who suffer cp and he does understand but the one thing he notices is that people with cp try to hide it and don't sit and whinge about it.
If you know what I mean he is very quiet and calm and cares for all his patients he is a registered GP but does the acupuncture and bulk bills.
He has his surgery in Inala so he is there for the people funny thing is he is an Australian born Asian yet he can't speak or understand Asian so funny to see when he calls his wife to translate for him:)))
I actually didn't help my legal claim by carrying on working as I did not want to let work down and didn't know how to say that I couldn't cope and he saw me when I was in a hell of a mess and tried to help but again I suppose I kept on trying but was not coping with full time work luckily my psychologist sat me down and told me to reduce my hours or I wouldn't be around .
Luckily my wife was with me and basically I was railroaded into reducing my work week by having Wednesday off best railroad company I've been with as I have a mini weekend during the week.

Sorry I'm rambling not venting
That could be another topic page where we could ramble on it would take our mind off things for a bit
Johhno

as long as I wake up alive I'm happy
Because it could be worse
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5 years 1 month ago #16339 by Retread
Retread replied the topic: Venting
Hi Peppa, Thank you for your kind words, we all really need to be here for each other, and thank you again for being there for me, you are indeed a special person. This forum is helping me to cope, and I appreciate the contact, and comments from so many caring people.
I do post a lot of dribble, but I just put it out as I am feeling it. Sometimes probably too much so please bare with me, I put a lot of trust in our administrators, and hope that they will delete anything that isn't beneficial for the forum.

After soooo many years of bottling it up, I have really let fly, not just about CP, but about my mil experience as well, which probably isn't appropriate here, but I have finally realised that I really need to get it out. Years of counseling have helped, but even then I was a bit of a closed book. I guess at this late stage of my life, i have got to point where pain is pain is pain, if you know what I mean.

On a positive note, I am starting to think that I do have a future :) , and that life is manageable thanks to this forum. I have to admit to a bit of depression, and for the last 4 months I was seriously feeling that I wouldn't see Christmas this year, but now that has been turned around.


I know it sounds strange to look forward to an operation, and spending time in hospital, but I had a trip to the anesthesiologist last week, and he said they will be keeping me topped up with a variety of pain meds, so I am looking forward to some respite. As you well know, this is hell!
My only concern is that they don't prescribe anything that calls for more withdrawal.

Peppa, keep up the good work, you are an uplifting presence on this forum, and your support is doing more good for everyone than you realise.
Sending a HUGE HUG.

Retread
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5 years 1 month ago #16340 by Retread
Retread replied the topic: Venting
Hi Johno, I just picked up that your doc has his surgery in Inala, that was a blast from the past. I spent most of my school years there. It was about 45 years ago so Guess it has changed a lot, but I do have some fond memories.
It used to be a small community stuck way out in the sticks.

All the Best

Retread

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5 years 1 month ago #16341 by Johnno
Johnno replied the topic: Venting
Hi peppa ,
Johnno again retreads right on the button it does take a long time for someone with cp to admit it and by then your a babbling wreck you burst into tears you forget things you shut off you tend to try and shut everyone out because you are trying mentally to cope , but our bodies aren't meant to do it on their own we need help .
I am glad I streamed out when I did because if I hadn't I would not be here today it puts a hell of a strain on any relationship but a lot of us are lucky to have a rock of a partner who helps .
Just remember

People who commit suicide
Don't want to die
They just want the pain to stop

Which is what we all want and with our partners help and love we will be able to be strong .

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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