Good to hear your doing ok.
Sure is great to have some sunshine, I am looking forward to the warmer days too.
I really hope that magic wand works for you too.
I am struggling. Got six weeks before I see my pain specialist again , I think his wand is buggered. I had to see the physio last week for these migraines but didn't help this time she told me to try stemitol for the dizziness . So will get some tomorrow .
Good to hear you are both heading to see your pain teams and looking forward to some more assistance. I just want to say something to you and I want you to take it the right way.
None of these pain specialists or pain clinics have a magic wand. To be frank, you guys already have the magic wand yourselves, but you just don't know it or know how to use it. These pain people can give you the tools and instructions on how to use this wand, but you have to be prepared to put in the effort when the time comes.
And you must have an open and free mindset that is accepting of all that is happening to you.
The magic wand is your ability to accept your lot, work with it, then look for a better lifestyle for the future. I say this to you with all humility and caring. If you are like most of us, there will not be a cure and you will have this thing till the day you die. That sounds depressing and full of despair, but believe me it isn't and it's not a life imprisonment sentence either.
I am now 60 years of age and have been suffering moderate to severe chronic pain for the last 57 years of my life. That's right, I have really never known what it is like to live without a lot of pain. Prior to the age of 3, I have little memory. At the age of 3 we had a bad car accident and that is where my journey started. But to make sure I wasn't getting complacent, the road devils gave me more spinal injuries in 1985 when a fully loaded Metro bus that had no brakes, cleaned me up in the rear at the traffic lights. I was just sitting there minding my own business, when this monstrosity ploughed into the back of me.
I have done all that everyone else has done. Been to all the doctors, chiros, physios, pain specialists, rheumis and acupuncturists, but still I'm left with high levels of pain that will never go away and that never let me sleep a full night. I am out of bed almost every night between 1.00 am and 3.00 am, going for a walk so that I can ease the terrible pain in my body. Then I go back to bed and dose until about 5.00 am, which is when I usually get out of bed.
Tried all the drugs, with most of them making me seriously ill, including 2 trips to hospital, with one trip from Serotonin Syndrome.
So now I take just a bit of codeine/paracetamol 3 times a day and nothing else. I suffer over 80% of my pain. The drugs only take the sharp edge off, but leave the rest for me to put up with. And yes, if I dwell on it like right now as I am typing this description it to you, the pain really hurts. Normally, I don't acknowledge it and it leaves me alone.
Plus, I have been on this drug regime for well over a decade now. I was taking a small amount of Lyrica, but decided to stop it and see what happened. Nothing happened, so I haven't taken it for a while now.
I can't describe how I do this. All I can say is that a long time ago I decided that the pain was not going to rule my life and that I was going to ignore as much as I can. Making sure I rest when my body tells me to, pace my activities, but ignore any extra pain I get when I do a bit of work or some activity. I go to the gym twice a week for an hour each time and I make myself walk as much as I can until my Fibromyalgia starts to fight me back, then I ease off and rest. Most days, I make sure that I am lying down for an hour in the arvo. I never sleep, but I shut the place up, make it dark, get into bed and put a pillow over my head so I can't hear anything. Then I just zone out. That is my way of doing some brain relaxation. It's my form of meditation and it works for me. I can't stay longer than an hour, because then I am really hurting. So I get up. But I feel quite refreshed afterwards.
It's an ongoing full time 24 hour a day job, but I find that if I keep at it, I can live a fairly normal existence.......well, close as I can get anyway, even though I suffer all this pain. I will never have a good garden around my home, I will never do all the work on my car again, I can't carry between 60 and 80 kg on my shoulder anymore. I let my 6'3" son who can carry half a wheel barrow's worth of wood in one arm, up to the house and I carry what I can.
You just have to do all you can to mitigate the risk of injury, but you must learn to ignore much of the pain you have and keep moving, because this pain is not going to harm you. Yes, it will hurt the shit out of you, but it won't harm you. So get determined and start telling the pain to pee off , cos you're gonna do what you want to do anyway.
Just be smart about it and don't do stupid stuff that's going to put you into bed.
No boom and bust stuff. Only an idiot would do that and you will pay for that sin ten fold every time!
Live your life, 'steady as she goes,' and you will do just fine.
Anyway, now I'm just waffling. I hope you can get the gist of what I'm clumsily trying to say. You have the power to live, regardless of how much pain you suffer. Have some faith, because believe me with faith, you can do this!
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Thank you Peter, what you wrote about putting up with pain etc is what I have been doing also since I was 29, I am 64 now. Yes I have had surgery 5 times on my spine and hips and I was on some very strong medication but like you it reacted badly with me, so now I just take Endep25 and Lexapro for my mental health. Panadol osteo and Palexia when required.
So my reference to magic wand was tongue in cheek, I will be keeping an open mind and hope I learn how to become a better me.