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R U OK Today?

  • Peter
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5 months 3 weeks ago #27903 by Peter
Peter replied the topic: R U OK Today?
Michael, the one big difference between you and me is that I never let anyone operate on my spine. And I feel for you and for all people who have had spinal operations, especially those that don't work too good.

Back in 1998 my Neurosurgeon told me that my L5/S1 joint had no disc material and was going to be fused. He said it would work its way up my spine, which it is doing. But he said to me that because I have been going all these years living with this, I should never let anyone operate on my back. He said if you do, you'll be back every 10 years getting repair work done and the pain levels will be worse. He said if you let it happen naturally and get some good pain relief, then it will be permanent, plus the pain in that joint will slowly dull and then be replaced with pain from the degeneration of the joint above.

He was 100% on the money and I am so glad I never had my joint fused by him or anyone else. Even though my pain levels down there are not good, they are a damn site better than someone like you, who will suffer more than I do.

I have a wrecked neck and thoracic spine too, and suffer terrible headaches and migraines, which is the main cause of my suffering.

So I do commiserate with you Michael and also all others who have had these operations. You think you are going to get some relief, but then it never works out like you are told or led to believe. And I am not saying the doctors mislead people. They are trying to do their best, but sometimes like my specialist suggested, it is better to leave well enough alone and just learn to live with it.

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
The following user(s) said Thank You: Michael

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  • Wendles
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4 months 2 weeks ago #28009 by Wendles
Wendles replied the topic: R U OK Today?
Hi All
nearly a year later and I am still trying to heal my liver. I stop or decrease one medicine to give the liver time to heal but this causes other problems - increased pain, migraines and the early signs of a heart attach. I just cant win. I am in the liver damaged off some medication stage at the moment but I just cant see how this off and on roller coaster can be good and it really isnt solving anything because my pain will get to a stage that i will need to go back onto the medications and then the liver will decrease again.
Has anyone had a similar problem or got any ideas?
Wendles

There is always a SMILE
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you just need to find it!

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4 months 2 weeks ago #28010 by Wendles
Wendles replied the topic: R U OK Today?
Hi All
nearly a year later and I am still trying to heal my liver. I stop or decrease one medicine to give the liver time to heal but this causes other problems - increased pain, migraines and the early signs of a heart attach. I just cant win. I am in the liver damaged off some medication stage at the moment but I just cant see how this off and on roller coaster can be good and it really isnt solving anything because my pain will get to a stage that i will need to go back onto the medications and then the liver will decrease again.
Has anyone had a similar problem or got any ideas?
Wendles

There is always a SMILE
in your day,
you just need to find it!

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4 months 2 weeks ago #28016 by Michael
Michael replied the topic: R U OK Today?
Wendles I'm sorry I can't help you with your liver questions & problems, but I can relate to the roller coaster life we live. I've always been very concerned about what other damage I'm doing to my organs by long term medication hence the reason I have tried weaning myself off most of what I take. Depression is my #1 concern for which i take medication, I find if I can get the brain to be in a good place then it's easier to put up with my pain. I recently went to a pain clinic, it involved listening to Psychologist and Medical Dr's, it was interesting to hear that chronic pain sufferers have built up a low tolerance of pain, and that our pain receptors don't turn off and keep signaling the brain even though the injury that caused the brain has healed. A lot I took in and thought 'bunch of crap' but some did make sense. Anyhow what this has to do with your dilemma I don't know lol .. I wish you all the very best & keep fighting the fight

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3 months 3 weeks ago #28079 by Mango
Mango replied the topic: R U OK Today?
Nope! Not really. :(

I was reading through the posts here, and Peter wrote :
You have the power to live, regardless of how much pain you suffer. Have some faith, because believe me with faith, you can do this!”

I have a habit of getting a kitten everytime I find myself struggling. The theory is that ensures I have at least another 15 years of sticking around, as I don’t trust anyone else to look after my cats. I currently have 7. The youngest just turned 1. She is my baby girl. Basically she follows me everywhere. And as a strong believer in The Fates, Poppi was bought into my life for a reason.

THEN last month my best mate, who lives in th states, had a massive stroke and has been left a absolute shadow of her former self. It came outta no where, and luckily she has brothers who are doing righ right by her. However in many ways I have lost my best friend. (That doesn’t have fur) So I forced myself to think of my cats and found them all legacy homes. In the event I get hit by lightening. It was hard to do, very confronting, but I managed to match each cat to either a friend or family that I trusted to let them live out their lives.

So that is done, no plans to initiate it, but in the event something unforseen happens, my sister won’t have to find homes for seven cats.

Now my doc has thrown me a curve ball. Time to go off the Panadiene Forte, due to scheduling changes? First this has me confused. And panicked. And back to the old “why the hell do I bother?” Seriously... why?

And no, I’m not in any way thinking of taking “Option 4”, I’m just really struggling. And so I’m not ok. And I know how quickly I can get to the cliff edge. Especially in the dark hours and I have no way of getting relief. When a hammer to the head is a viable option, that’s when things get dodgey.

Ok.... now I’m waffling. Sorry.

You have the power to live, regardless of how much pain you suffer. Have some faith, because believe me with faith, you can do this!

Peter is it ok if I pinch that as my mantra for the time being? Don’t know why, but it has resonated with me.
And on that note, and with Poppi jumping all over me (its bed time) I shall say goodnight.
Mango

"It's time to play the game" HHH

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3 months 3 weeks ago #28081 by Peter
Peter replied the topic: R U OK Today?
Of course Mango. It's all yours!

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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