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Diffuse Idiopathic Skeletal Hyperostosis

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2 years 3 months ago #24717 by Michael
Michael replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Hi Peter,
I have been told I have cervical DISH, I could well have it in other areas but have not been checked for confirmation, my lower lumbar is of more concern and one the Dr's are concentrating on. My neck symptoms are restricted movement, tension, not so much painful but a tightness aching feeling, lately I have been having headaches centred around my forehead and with eye movement, I have so much going on with my lower back the neck is secondary to my problems, I'm off into Hospital tomorrow for some nerve zapping and epidural.

I am 62 years of age

Michael

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2 years 3 months ago #24719 by Peter
Peter replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Hi Michael,

This is such a bad form of spinal problems that thankfully isn't rampant like lower back pain is. That doesn't help you guys though. Have you been to a multidisciplinary pain clinic yet?
They can help teach you how to self manage your pain condition, but not sure how they will assist you with the DISH issues. It's almost like your spine is being welded solid, losing ligament and tendon movement.

I have had no disc material in my L5/S1 joint for nearly 20 years and I think it must be finally fused. I was told back in the late 90s that it had to fuse. The neurosurgeon told me that if they do the fusing I will suffer and be back just about every 10 years for more surgery. He told me to leave it alone and let it happen naturally, which is what I did and it was the best advice I could have followed.

Since then I have also had a trapped nerve on the left side of my neck in my C4 joint. My current specialist told me it's just a bit too high for them to touch, so all I have is a limited number of options. Drugs; massage, trigger point injections and/or exercise. Well, I can't take anymore drugs, massage is just too expensive, have had the injections and they do help for a while, but the exercise has been the best help. I still get migraines, but they are getting more distant between each headache. So that is at least some help for me.

What you guys can do to ease your symptoms, is beyond me. It is such a specialised condition. I hope you are able to find the right specialists who can help you.

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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2 years 3 months ago #24720 by Michael
Michael replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Thanks for replying Peter, I do have to apologise as I meant my reply to go to the original poster McDerm, over the years I have learnt to listen to my body, the older I get the more frequent my severe episodes occur, I'm always in pain, it's just the level of it, keeping my mind occupied helps some times, other times I'm just a complete mess, I have not seen a multidisciplinary pain clinic, I'm not even sure what they are, I have seen a pain specialist, he is the nuerosurgeon who treats me tomorrow, between him, the orthopaedic surgeon and my GP that's about the extent of it, I too like massage and I really should have it more but it's expensive and my gold card doesn't cover massages, I've seen many physiotherapists and the last chiropractor I saw didn't want to touch me after the 2nd visit because of my surgery and D.I.S.H

Fingers crossed I get some relief from the back tomorrow that will be a blessing.

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2 years 3 months ago - 2 years 3 months ago #24723 by mcderm
mcderm replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Hi Michael
How did it go with the operation.Really hope it was successful.
Years ago in 2007 when I was diagnosed with d.i.s.h. I was referred to physio Roy Rankin in Brisbane by my orthopeadic surgeon.Roy designed a deep water hydrotherapy program for me ,designed to get blood flowing through the muscles and to build muscle to support the spine.Non weight bearing-very important.
Although I have severe episodes of pain sometimes due to over doing things or bumping my neck,I don't seem to have nerve entrapment.Yet.
My lumbar is possibly the better part of my dish issues,however due to what they call the long lever arms.Where dish may be more prevalent in the thoracic area, the upper back is like it is fused so the lumbar does all the work.
However everyones situation is different and of course other diseases can coincide with dish.
I have found some excellent sites recently on the internet,including a conference on dish.I find if I understand dish I can manage it better.That is, stop doing things that aggravate it.
I find that Jurnista 16mg is good for my pain, and the usual antiinflamatory Mobic 15mg.I was taking Lyrica 75mg twice a day,but am trying to get off it,through my doc,of course.
For massages, are you aware your doctor can draw up a patient care plan, where you can go to a physio 5 times a year free.Ask them for massage type treatment that is releving and they don't try and manipulate the bone.Or some chiropractors, having a stretching machine.This can help,but again do not let them manipulate you, the little gun thingy is ok.
Anyway how are you,no.
Paul
Last Edit: 2 years 3 months ago by mcderm. Reason: spelling errors
The following user(s) said Thank You: Michael

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2 years 3 months ago #24753 by Michael
Michael replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Hi Paul,

I had had some relief, it's like a tap has been switched off. What I find now is because I'm feeling 'better' I'm moving around more which is a good thing but I can overdo it without really realising it and then the intense aching starts, But is it better than before YES!

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3 months 4 weeks ago #28489 by mikaboxer
mikaboxer replied the topic: Diffuse Idiopathic Skeletal Hyperostosis
Hi I am 43 years of age, and was diagnosed with Diffuse idiopathic skeletal hyperostosis (DISH), last year. I have it in both planter fascia. After about two years of constant foot problems, caused from both my job, and running for years. (I am an operating theatre nurse - so I stand on hard concrete floors all day). I have plantar fasciitis, and achilles insertion tendinopathy in my left foot, as well as Diffuse idiopathic skeletal hyperostosis (DISH).
I know of no specialist that is an expert in DISH. I have been advised by an orthopedic surgeon, to stop all high impact sports :(
I know that it is rare for people under the age of 50, but both myself and my twin sister have it. I also have a hip issue (early arthritis changes), but weather it is related to DISH or not........I don't know. GP is next to useless, and does not refer me onto any specialist for DISH. I'm just left hanging. No one knows if pain in feet will get worse, or if feet bony growths will be really bad by the time I reach old age???

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