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thoracic outlet syndrome??

  • nessa
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2 years 4 months ago #24905 by nessa
nessa created the topic: thoracic outlet syndrome??
Hi all. I have had pain in my shoulder,arm,hand,neck,head and r side chest for 4 years. In aug last year my r hip , buttock , thigh and calf began aching viciously after electric shock likec10/10 pains i that hip. The leg aside, my shoulder and arm is getting worse and drs have no idea. Have tried acupuncture, weekly massage, exercises (which exacerbate it no end!), heat/ice, topicals (various), natropathic suggestions, nerve drugs, antanticonvulsants, opiates, nsaids, rest, stellage ganglion block (which did help), 2× lignocaibe infusions and a failed ketamine infusion.Could it be thoracic outlet syndrome pain from any ond elses personal experience with TOS? Im at wits end-just wang my arm chopped off!
The following user(s) said Thank You: Keira27.t.o.s

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2 years 2 months ago #25261 by Johnno
Johnno replied the topic: thoracic outlet syndrome??
Hey Nessa ,

Have you considered getting a referral to a neurosurgeon if you live in brisvegas I could send you a name in a Private Message.

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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1 week 3 days ago #29089 by Keira27.t.o.s
Keira27.t.o.s replied the topic: thoracic outlet syndrome??
Hi Nessa. I share these symptoms. I have recently been diagnosed with TOS. Although my calves and legs have improved (I had intense pain and numbness like my legs couldn't work and was suspected MS, I am on a wait list to see a specialist) I still have the pain there occasionally but generally it is my arms affected now. I have limited use of both arms and incredible pain if I attempt to use my right arm. It spreads through my back and shoulders. Because of my recent diagnosis and struggling to find anywhere to take me as a patient I am dealing with this pain everyday. My life is on hold and my symptoms are worsening. I am very sad to hear nothing is relieving this pain for you. I hope by now they have found a way to manage your condition. I hope your life is no longer ruled by the pain and you are able to live a somewhat normal and happy life!

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