1 year 3 months ago - 1 year 3 months ago#27326by Mango
Mango replied the topic: Started second dose
Thanks for that. I do already do all of the non med stuff too. Been on this hamster wheel a long time. Having said that, it is always very refreshing to see someone else say it "outloud" so to speak. Thanks.
What I found very intersting was that you only took the Lyrica at night for a long time. I see my doc on Thursday so I will discuss that option with him then. And thanks to your reply You have given me the confidence to cut back to night times only. Plus I need to be functioning during the day, I have too many people relying on me.
I am uber sentsitive to meds and am severly limited what I can take anyway. The Lyrica is new for me and to be honest I had no idea these sort of meds were available. Been in a visious cycle of doing the same thing for a long time. But for the first time in a very, very long time I actually have some hope. Bloody powerful thing hope.
So thank you Peter, I will drop myself back to just night dose, effective today and I'll discuss with my doc about it on Thursday.
Finding this forum was one of the better things I have done recently.
"It's time to play the game" HHH
Last Edit: 1 year 3 months ago by Mango. Reason: Spelling mistake
If this was any other drug, I would advise against dropping back without your doctors knowledge and them giving you a reduction plan. It was explained to me by my pain specialist that Lyrica is one of those drugs that can be safely reduced without fear of withdrawal side effects, especially if you are only on a low dose to start with.
But just remember, that super sensitive people like us do not follow the rules as set down by drug companies and our bodies react to just about everything. So be careful!!!
I never give out advice on this forum and that is also a policy of Chronic Pain Australia. So take from my post what you will and if you decide to give it a shot, then be objective about it. Just remember, if you reduce this drug and it makes you suffer more, then go back to what you were taking and wait till you see your doctor. There could be issues with other medication you are not aware of.
Don't ever discount what the doctors say, but also expect that they will fully explain and make sure they devote the time to do so.
You will find that many doctors like patients to take responsibility for their pain condition and come into the clinic asking all the right questions, but also expecting to do work themselves. Too many people expect doctors to be God and fix everything. That is just nonsense and it also makes life hard for the doctors, especially when things go wrong or the pain doesn't go away.
What you are doing by coming here and trying to further your education, is a good thing. Tell me, have you been to a multidisciplinary pain clinic?
If not, you might find them a good source of information on how to self manage your pain condition with reduced medication levels. Worth a try.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Although I've been a bit awol posting lately (moved house, say no more) I have been following all the posts.
So a belated welcome to the CPA forum.
I'm like Peter highly sensitive to most drugs so the side effects outway the benefits most of the time. I started on a very low dose and only now after about 10 months have only been able to tolerate 50mg am and 75mg pm!!!! However, the biggest side effect for me has been the 10kg weight gain this is only adding to my problems as my knee is sore again, my foot has tendonitis again and I'm just feeling sluggish. I've had some B12 to try and help but I just feel like the benefits of Lyrica are not there for me. So I'm on the withdrawal stage and reducing again. I'm due to see my pain specialist this week to discuss the other options given to me by others(spinal stimulator and Botox therapy) She is not directly going to gain from either procedures and I value her opinion.
Good luck with the Lyrica and I agree just take it steady as any symptoms you get from it will subside if you take it slowly.
All the best with all your added commitments too, at least it's a distraction (hopefully)
Look forward to getting to know you.
"Just thinkin' about tomorrow
Clears away the cobwebs and the sorrow 'til there's none
When I'm stuck with a day that's grey and lonely
I just stick out my chin and grin and say, oh
The sun will come out tomorrow
So you gotta hang on
'til tomorrow, come what may!"
Totally agree with peter and jo. but you can also talk to your pharmacist if you have a good one they have everything on file and are generally very helpful and willing to give you advise re: your medication and you.
GPs are the most underrated doctors as they need to be able to work out what is wrong using the symptons you have given him/her and be able to prescribe medication or send you to a specialist , a specialist specialise in their chosen field, and a pharmacist knows about medication and if they need to know something about a drug they can certainly investigate and or advise you to discuss things with your doctor or with them.
I wouldn't reduce any prescribed medication without discussing it with you're GP
as long as I wake up alive I'm happy
Because it could be worse
I heard from my doc this afternoon and he is fine for me to drop the daily dose and just keep the night dose.
We will discuss it in detail on Thursday.
Johnno, I have an excellent pharmasist, he has been giving me my meds for all these years. I will ask him Thursday about only taking a dose at night. My GP is also pretty awesome. Like I said we've been stuck in a cycle for a few years now.
Peter, I did try a pain clinic years ago, two of them infact. In Melbourne. They were not good experiences for me at all, so I am a little "gun shy" about them. Also my doc informed me there aren't any really in our area. There's only a Chronic Pain Management group run by a shrink, which I have tried. And it's the kind where you do it the one cycle, like for 12 weeks I think, and then it starts to repeat again. And there's no like level up. Basically teach you some techniques and then send you off. I did get some benefit from it in the begninning, but then it just gets really repetative, and since it's really hard for me to be in that sort of environment, I haven't been back.
For the short to medium to long term I will focus on the Lyrica. That's a major change from what I have been doing, and like I said, first time in a long time I have hope. Once I stopped wobbling all over the place I did notice my teeth were not as sensitive today. Because of the nerve in play here it also causes me teeth to pain. And today I noticed not as bad. So that is a positive,
I will be taking the Lyrica slowly.
Thank You all.
Thank You for the Welcome. Ahh yes the weight issue. I am trying to loose weight so I will be extra vigilent with my diet. The last thing I need is to gain it back. My knees and hips really don't cope with the heavier weight.
And moving house... urk! Worst job ever.