Sure is a blessing , was kind of freaking out about them withdrawals a bit.
BUT 2 days on kapanol 30mg x twice a day. More wide awake than ever , be lucky if I had 1 hours sleep each night, just so bloody tired. The kapanol don't make me drowsy at all so can't even have a power nap. Grr.
But I have noticed that the bone aching fatigue has eased and my limbs and they only feel like heavy dead weights.
I hope everyone is having a better day.
I am so happy for you that you're not getting the withdrawels you were fearing. Prepare for the worst, hope for the best.
I have all my fingers crossed for you that it continues. Although I am so sorry you are not sleeping. That would be a deal breaker for me. Not sleeping is my worst enemy. As I am sure it is to everyone. But as I've mentioned before, not sleeping puts me in a terrible cycle and I will do just ablut anything to stop it. So I will live with any other side effects, as long as I can sleep.
And yes, the lower appetite is very refreshing, but I am very careful, as I know it might change and the last thing I want is for it to lift and I'm left with bad habits.
Oh trust me buddy, I have a lot to lose without Lyrica increasing my weighht. My doc and I have been working on it for a few years now. I lost 10kg, put back on 5kg and am currently back getting it down. Mind you I still have another 20-25kg I must lose. Its just really hard with the CP. Walking is the only exercise I can do, and sometimes it just hurts far to much to do even that. But I plug away. I am making the most of the lower appetite, I record everything, so making sure I eat my three meals. And no more donuts. No matter how good they taste.
I am noticing I am making more typing errors lately, and I think the Lyrica is midly affecting my dexterity. I am very wobbly when I get up at 6am to take my Thyroxine. But by the time I get up, get up by about 9am I am better. Not as wobbly. And able to function during the day, as I need to.
Well latest doc update.
Staying on 50mg Lyrica at night for now. It is still kicking my butt, so he wants to wait a little longer.
I still have a much lower appetite. And the doc says that as long as I make sure I eat properly, it works in our favour. So he's not at all concerned about it. And case and point, my niece had a birthday yesterday and usually I will induldge well and truly. Not this time. I had a small portion and just one slice of cake. And oooohhh do I love cake. Usually I would have 2 slices and take what ever was left over home. Not this time. Just the once slice, one malteaser and didn't take any home.
The sleeping through the night - oh wow. I love this side effect. I have taken myself off the Temaze completely. The Lyrica has taken the need for it away. I like that, a lot.
The not so good side effects
* Clumsy - oh boy, now I am a little on the clumsy side at the best of times. Now days I drop everything, at least twice. So I justt have to be careful.
* Lethargy - the doc wants me to push through and make sure I walk or wander around the garden for at least 15 minutes a day. It is a struggle, but I will try.
* Dexterity - I have noticed when typing I am making a hundred times more mistakes. I'm also stumbling over tying shoe laces and the like. So far I am managing, obviosuly, but it is frustrating.
The benefits - (not including the lower appetite)
* Sleep at night - Awesome
* My teeth don't hurt - I was starting to think I'd have to have all my teeth pulled out. They were so painful. That has imporved by 90%. Love it.
----> No other pain decreases as yet. Having said that, if all I get out of the Lyrica is the sleep and the much, much lower teeth pain. Then it is worth it. I will live with being clumsy and lethargic. I just have to be patient with myself. But this drug has givenme hope, than with higher levels, when we get there, I might possibly get lower pian levels, and maybe even have less ear issues.
So for now, its steady as we go. Just very slowly for me.
I was working and slowly going up to 300mg twice a day and I found it helped reduce the nerve pain to a point , but I also have the clumsy dropsy thing TV remote controls ,crockery to name just two.
But the light switched on and the fog cleared to a point you should see me try to text on an iPhone it is so funny but bloody frustrating.
as long as I wake up alive I'm happy
Because it could be worse
Can anyone offer any insight on the difference between lyrica and gabapentin? I know lyrica is pregablin which is closely related pharmaceutically but is much newer.
I dont think gabapentin does mmmuch for me anymore (i take it for nerve damage) and i might ask my doc to switch to lyrica potentially...
thanks in advance anyone