Paperman created the topic: Spinal cord stimulator
I'm 48 years old with a wife and 2 kids.
4 years ago (seems longer) i injured my cervical spine lifting large slabs of paper at newsprint mill, the disc between C7 & T1 prolapsed,
doctors, work cover etc, lots of grief and threats from my employer resulted in a fusion of the spine, 7 weeks later your good to go back to work! Bang disc between C6 &C7 ruptures.
Insurer says its not the same injury so we are not doing anything, 6mths of hassle stress pain & arbitration second spinal fusion.
Great know get a diagnosis of Chronic Pain/Complex regional pain syndrome .
Its in your head! If you can't work then no job!
mindfullness, physio,psycologists, all the therapy's and I have ended up with a spinal cord stimulator , it works great but had an electrode fracture after 5 weeks, had that replaced and now think that the new lead has also now fractured after 6 weeks.
Has anyone else had leads/electrodes fail so soon?
I'm under an insurance body
but thats another story!
Last Edit: 3 months 3 weeks ago by Johnno. Reason: Removed record of work insurer
Your story is a familiar read, not only that I can relate to you but I'm sure many more of our members are nodding their heads and know exactly what you mean!!!
I know that when I was offered Spinal Surgery and he told me it could affect the other levels as they may become weaker I decided against it and tried other options. I did a Nevro Spinal Nerve Stimulator Trial and was quite happy with the affects for my lower back and leg pain but not very successful for my Cervical Pain and CRPS, so I didn't feel ready to go down that road yet and decided to try other options, but knowing that when I was ready it could be a possibility for my lower spine.
I'm sorry you are having so much trouble with your leads etc thats not great but I hope they get you sorted soon so you can feel the full benefit again.
Good Luck and keep in touch and let us know how you are going.
I totally understand but my advise is to keep that information off the forum as they do monitor our threads and you are best to keep that information out of site of the public, but feel free to personal message me or any other member who may have any information or helpful advice for you.
"Just thinkin' about tomorrow
Clears away the cobwebs and the sorrow 'til there's none
When I'm stuck with a day that's grey and lonely
I just stick out my chin and grin and say, oh
The sun will come out tomorrow
So you gotta hang on
'til tomorrow, come what may!"
Annie - The Movie
Last Edit: 3 months 3 weeks ago by Johnno. Reason: Jo.m you put down you were with NSW Workcover as well tut tut I’ll have smack your wrist I’ve done worse
I had a Nevro SCS and unfortunately my top lead dropped on day after implant due to vomiting, so I had revision surgery 4 months later. Unfortunately, my concerns weren't listened to any earlier when I wasn't getting any relief. I finally had an x-ray which gave us the answers! Are you strictly adhering to all the restrictions that need to be followed for the first 8 weeks? Wonderful to hear your results are so positive when leads are in situ!
hi, I am down to have a SCS trial in the next 4-6 weeks, with the view to going ahead with the full implant, however nobody has mentioned this issue of leads - fracturing? what actually is this? and how often does this happen?
emmar09 replied the topic: SCS Specialists in Perth/rest of Aus?
I'm in Perth and had a Nevro SCS implanted in December 2016 and had the battery slightly repositioned this past December. It has been working pretty well, considering previously I was taking codeine twice a day plus NSAIDs (I'm intolerant to all other opiates) and now I don't take anything. However, about 5 weeks ago I knocked my battery on a chair and it caused a haematoma. My surgeon is absolutely useless (that's a whole essay-long rant waiting to happen) and literally wouldn't tell me what had happened. The pain was WORSE than after all 3 of my surgeries. I finally found answers from my GP who said it must be a haematoma and all I can do is wait for it to disappear. The pain hasn't subsided at all, and I'm now suffering more pain from some "mystery cord" that runs from my battery to my spine which I didn't even know I had. My GP today said he can't see how that could be affected by the haematoma.
I'm only 23 and this SCS and the whole experience with it/my surgeon has had a huge toll on me. I'm super open to trying a new SCS as I just want this thing out of me!
Long story short - my surgeon is useless and doesn't like me and I can't find anyone else in Perth who even knows what Nevro is. My parents have suggested I travel over east to find another doctor and possibly find an alternative to the Nevro.
Does anyone know a surgeon who implants Nevro (regardless of location!) or have any suggestions for a new SCS?
pamcarr replied the topic: SCS Specialists in Perth/rest of Aus?
hi, seems this fracturing of wires is a common issue with the SCS, when I asked my specialist, he said it is mostly due to not adhering to the restrictions until the scar tissue is formed around the wires, or by falls, trips or being silly - I think he might have blinkers on, cause I am hearing otherwise but... I am getting mine done on 5th April