Molly111 created the topic: Endless symptoms, no answer. Fibromyalgia?
Hi, This is my first time here and i'm hoping some people can relate/advise/discuss my ongoing issues.
I have for as long as I can remember suffered from polyarthralgia (pain in most of my joints, wrists/ankles/back/knees/shoulders/hips/feet/elbows). I have hypermobility, which has been used to explain my chronic pain in the past.
I have always suffered from depression which fluctuates from mild to severe, as well as severe sleep problems characterised by a difficulty falling asleep as well as an inability to stay asleep for any length of time. This I have suffered since birth.
Mid last year I was diagnosed with post-infectious irritable bowel syndrome. It came on relatively suddenly in what seemed to be a severe case of gastroenteritis that lasted months and developed into IBS. Endoscopy and colonoscopy ruled out ulcerative colitis and Crohn's disease.
This year alone I have had a cold about 4 times, tonsillitis 3 times, vaginal thrush 3 times and I am currently experiencing oral thrush for the first time. This case of oral thrush came on suddenly 2 weeks ago and I have been on nystatin, fungilin and corticosteroid cream and nothing seems to be helping it dissipate.
All of this combined seems to add up to a singularly unlucky individual and I struggle to believe it is all simply coincidence. My immune system seems to be getting worse and worse and my joint pain never ends.
I have just had all the blood tests that have ruled out HIV, diabetes, hepatitis, arthritis etc and the only things that came up were low B12 (i'm taking regular injections for), and high levels of s. creatinine and s. chloride.
Quite frankly, i'm sick of not being taken seriously and not getting any answers. I'm in constant discomfort and pain and am regularly sick. My GP has referred me to a rheumatologist to look further into the possibility of fibromyalgia and what not, however the earliest available appointment isn't for another 4 months.
I guess i'm just wondering if anyone has experienced anything similar and has any advice for me? Any idea what is wrong with me,, or am I just incredibly unlucky?
I am a 23 years old female. I am a personal trainer and keep myself pretty healthy with a semi-balanced diet and regular exercise.
myalgic1 replied the topic: Endless symptoms, no answer. Fibromyalgia?
Hi, Molly 111...
I really feel for you - it's horrible, not having a diagnosis, or even a name of a condition that you can look up and research. Sadly, a diagnosis for fibromyalgis is ambiguous at best and some doctors grasp at that condition once all others have been ruled out, via testing. When a rheumatologist handed down my diagnosis of fibromyalgia some twenty years ago, he arrived at that conclusion by pressing certain, 'pressure points', that are common to people with fibromyalgia, such as pain around the neck, the shoulders, the hips etc, (as well as others...I can't remember them all). I was so relieved to have a name for the condition that was so affecting my life at the time, that I didn't stop to consider the consequences for quite a while. The difficulty with obtaining a fibromyalgia diagnosis lies in the problem that there is no specific test for it, no concrete pathology and the fact that so many of its symptoms mimic other illnesses. I understand the frustration you feel. It is horrible to be in such pain and not know the reason why. Do you keep a pain diary? I found this to be really helpful in showing my GP and specialists of what my life was like, how I dealt with pain on a daily basis and what I did to manage my pain. It doesn't have to be a novel sized tome, with chapters for each day, simply a record of where your pain is at on their one to ten scale, which medication you've taken and how much, what exercise you've done and which activity causes your pain to flare. Keeping a pain diary for say, three months, will give your doc and other clinicians valuable insight as to what is going on with you.
Molly111 replied the topic: Endless symptoms, no answer. Fibromyalgia?
Thank you Myalgic, keeping a pain diary is an excellent idea. I will definitely try that!
I experience some pain or another on a daily basis and I do think doctors struggle to understand that or think that I am exaggerating. I have not experienced a pain free day in, I don't even know how long.. Today alone I have had two incredibly sore knees, sore feet, a sore lower back and neck. Ulcers from my thrush have spread to down my throat so it is painful to swallow and I have been suffering from a nasty headache all day. This is just an example of what I experience in a single day. Some days are worse than others, but there is always something..
I'm going to my doctor again tomorrow to see if he can suggest anything else to get rid of this oral thrush as I've had it for over two weeks now and It's still only getting worse. I feel so embarrassed that the receptionist at the doctors clinic knows me by name now.
I just desperately want answers because I'm sick of this and it's only getting worse.