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CRPS and My Virtual World

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2 years 2 months ago #24762 by Ferret
Ferret replied the topic: CRPS and My Virtual World
Hi peter I am trying to introduce my self but can not figure it out help

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2 years 2 months ago #24765 by Peter
Peter replied the topic: CRPS and My Virtual World
Hi Ferret,

Welcome to the CPA Forum.
If you would like to do an introductory post, you can do that at the end of this thread here: www.chronicpainaustralia.org.au/index.ph...ere?start=1464#24763

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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2 years 2 months ago #24766 by Josie
Josie replied the topic: CRPS and My Virtual World
Hi Ferret,
You have landed in a topic I started a few years ago about CRPS -Complex Regional Pain Syndrome so even if you have landed in the wrong spot to introduce yourself you have now met one person!
I am not an expert on navigating the forum but I suggest you go to the Main Forum page and click on the third section down -GENERAL DISCUSSIONS. You can then start a new topic and tell us a bit about yourself. You will find a knowledgeable caring lot of people to talk to and give you the support most of us need so badly especially when we first join a forum. I hope you find it beneficial and Welcome.

Josie
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2 years 1 day ago #25189 by Josie
Josie replied the topic: CRPS and My Virtual World
Hi Brian
There are doctors who validate our severe pain levels but they are rare, it took me four years to find my specialist, I'm sorry you have not found one in America. It can also be some of our friends and family who make us feel outcast and misunderstood, who dismiss CRPS as insignificant, how do you explain pain like ours?
I am grateful that I have made a few friends who have Crps, we speak the same language, share experiences, help each other through pain flares or trying to find the right doctor and treatment options. It's a tough existence at times. I hope things improve for you in the future in terms of finding supportive doctors, keep trying.
Josie

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2 years 1 day ago - 2 years 1 day ago #25190 by Peter
Peter replied the topic: CRPS and My Virtual World
Hi Brian,

Welcome to the CPA forum!

So from what you say, you live in the US and it looks like things are not a great deal different over there, than what they are here in Aus. There is a lot of back peddling with medication going on here, because a small group of criminals have used drugs the wrong way or sold them on to other users or addicts, and those people have made life very hard for all who truly suffer from chronic pain. We have all been branded with the same tar brush as far as many (not all) health clinicians are concerned.

I had a brother who lost a leg and he suffered terrible pain in the foot that was no longer there. Not sure if you lost a limb or not, but from what I have learnt over the years, losing tissue causes pain and that pain can linger for a long time.

CRPS is a terrible condition. A very painful and disabling condition. Sorry we can't really do much for you, but even if you were here in Aus, there isn't much you can do unless you find a doctor who has studied the effects and treatment plans for CRPS. And there aren't enough of them around.

Anyway, you are most welcome to be a part of our support network here and hopefully some of what we have here may be of some support for you. And believe me, there are tens of millions of us around the world. So BigFoot is real!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Last Edit: 2 years 1 day ago by Peter.

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