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my pain condition and pain management

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4 years 4 months ago #18900 by shadycurt
shadycurt created the topic: my pain condition and pain management
Hi, I'm new to Chronic Pain Australia. Actually just joined up today January 20th. I had just gotten my cert 4 in Mental Health and Drug and Alcohol Counselling when I went into a shopping centre. It was raining and there were holes in the roof, no signs, no mats, nothing. I went down with one huge thud. Injured my knee and hip. Now have life time injuries. Am still waiting for insurance company to pay, probably in 2020. lol. Something Bursitis in hip, sorry don't know the first word. And arthritic changes and damage to my knee, another slow progressing injury. So lucky I love writing, because that's what I do now. I have to use a lap top and lay back as I can not sit and use a computer due to my hip. I use meditation, swimming or just float around the water on my back. I'm on 40mg Oxy and 10mg endone, now I am wearing a Norspan 5mg patch and have had it on for seven days and guess what? The pain is worse with the patch. I also have P.T.S.D. was nearly murdered twice in one day. Hard to believe I know, but it all went through court. I was one of 22 victims and he was aquitted on the first wittness so therefore the judge ruled that he be aquited on all other charges. It is true and now I am writing a book about it. So if anyone else has increased pain from using a Norspan patch please tell me. I mean it seems humanly impossible, but it's happening. I was reluctant to join due to my bizzare story, but I thought I would give it a shot. My name is Jan and I'm 53. Please don't reply if you think I'm crazy, or making all of this up, but I would like to think that someone out there is genuine and able to chat one day.

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4 years 4 months ago - 4 years 4 months ago #18902 by Mary
Mary replied the topic: my pain condition and pain management
Hi Jan and welcome!

We certainly don't think that you are crazy :) We have heard some amazing stories over the years. I guess that you have some kind of damage in your hip that means that you can't have a hip replacement - is that correct? I was wondering why they haven't done a hip replacement considering the amount of pain you are in.

Writing a book about your awful experiences is certainly a good way to distract yourself from some of your pain, especially if you love writing. I have heard it said that if you can find your "passion", it goes a long way to helping with pain management. I think it is a combination of distraction and the pleasure that we get from doing things that we are passionate about.

Anyway, read the forums and feel free to ask questions or answer questions from other people!

Welcome again,

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last Edit: 4 years 4 months ago by Mary.

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4 years 4 months ago #18913 by shadycurt
shadycurt replied the topic: my pain condition and pain management
thankyou mary for saying I'm not crazy. It's hard to connect with people who don't suffer from chronic pain. So the friends list goes down and down. People don't understand when you say. "No, really. I couldn't go for a drive. I would be in absolute agony. They can't do a hip replacement because it is not the bones, it's inflamation which is so bad they have me on prednisone to lower my inflammaton levels. Sometimes I try to lower the dose because it has made me 12 kilos heavier and that's depressing in itself, but I am allergic to anti inflammortiers. Sosorry about the spelling, I'm use to spell check. I also have fluid sacs in my hip as well as my knee. The best thing they can do is dose me up on pain killers and drain the fluid at some stage. Wish it was as simple as a hip replacement.

Thankyou so much for the feed back. It was so nice to hear from someone else you gets me. Thinking of you always Jan :cheer:

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4 years 4 months ago #18916 by illeatyu
illeatyu replied the topic: my pain condition and pain management
Jan

We all have people who think we are crazy, most of my family for a significant part of my life couldn't deal with my pain, as they thought it was just in my head.

Anyway welcome to the group, we float in and out as pain permits but even if we don't post we usually troll.

Welcome

Illeatyu

“All the elements in your body were forged many, many millions of years ago, in the heart of a far away star that exploded and died. That explosion scattered those elements across the desolations of deep space. And came together to form you, you are unique in the universe.

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4 years 4 months ago #18918 by gemini
gemini replied the topic: my pain condition and pain management
Jan,I do so empathise! It's such a long hard road back...if one can get there.
I was "tackled" as I was leaving my workplace 5.5 years ago. I was an Govt officer. I was made redundant last year after being on leave without pay for over 4 years.(when w/c wouldn't pay anymore).
I had a torn rotator cuff,3 fractured vertebrae & deep cut on my knee. Worst thing was that it worsened the degenerative OA I was employed with. I declared all my health issues when I had my Commonwealth Medical. I had heaps of Physio/Hydro etc.My Specialist did not agree with the Insurer's Doctor....but it was so good while it lasted. I'd been retired for a few years when I got bored & decided to have a Retirement Job. Had moved from Mid North Coast NSW to Brisbane now in rural Darwin, after moving from Darwin's northern suburbs after all this happened & house had to be sold. I was advised by Union to go through a legal process but been there done that & for me, ten years older than before I didn't need the stress. So.,I now take strong pain meds, see Pain Specialist & pace what I do.(still have packing boxes to get to, but having downsized perhaps they will stay in the Seatainer on the block!) Welcome & be kind to yourself.Deb

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4 years 4 months ago #18920 by shadycurt
shadycurt replied the topic: my pain condition and pain management
To Deb and everyone else, You have welcomed me like an old slipper, thankyou. I have my cert 4 in counselling haven't been able to use it yet, maybe I could get some practice. Has anyone tried relaxation C.D.s? They are hard to start with and you feel like they will never work but try and give them a go. I battled on with them and after one month have a special place I can go to and just switch off. Deb the legal stuff is just as painful if not more than my injuries. They knew more about me than I did. I wouldn't recommend legal action to anyone until I told them what you really have to go through. Good luck with all the unpacking, and remember pace it out. Wow don't we learn the hard way.

Thankyou all again


Jan from Brisbane

P.S. If anyone in Brisbane needs a good osteo specialist Dr. Doug King P.A. Hospital. He is incredible because he's human. :lol:

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