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Still in diagnosis stage

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3 years 11 months ago #20383 by wench7
wench7 created the topic: Still in diagnosis stage
hello, i am very new to this site but i feel the need to reach out. I am a single mum of 2 kids and i have been suffering chronic pain for 2 years now. I am still at the stage where they are not sure why. I have had MRI scans multiply CT scans and have recently been put on Lyrica to help with what looks to be neuropathic pain. In the past i have been on Tramadol and Baclafen to help ease my symptoms.

The sad side to this is i struggle with everyday duties. Some days i cant even do the dishes. I have started getting numbness in my hand and leg all on my right side. My hand is so bad that i have lost grip and i constantly drop things. My leg is bad enough that some days i have to pick up my leg by hand to get in the car.

I am really scared for my future as no one yet knows whats going on.... i am worried about how bad it will get. I am only young and yet i cant do "normal" everyday stuff.

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3 years 11 months ago - 3 years 11 months ago #20384 by Mary
Mary replied the topic: Still in diagnosis stage
Hi wench7 and welcome!

I guess that it is a case of them ruling out anything that you could have. If they say that nothing is wrong after all the tests, then you are looking at a multidisciplinary pain clinic. However, I guess you need to complete the diagnostic tests first.

You say that you have recently been put on Lyrica. Is it helping? I have neuropathic pain and it is about the only thing that has ever helped me. I also have a severe form of degenerative osteoarthritis which has been giving me grief ever since I was in my 30s. I was on Baclofen for a few months, but it did nothing for me. I couldn't take Tramadol because of the side effects. I also had problems with Lyrica in the beginning, but it was helping my pain levels, so I continued and eventually the symptoms basically disappeared. It didn't take all that long.

I am glad you have joined us because we all need someone to talk to. I know how scared you are because I was petrified, but I think I would have been more petrified if I had small children.

Keep talking to us and let us know how you are going.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last Edit: 3 years 11 months ago by Mary.

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3 years 11 months ago #20385 by wench7
wench7 replied the topic: Still in diagnosis stage
i have found the same with the tablets i was on.... Tramadol pretty much knocked me out... baclofen did nothing... lyrica has helped a lot.... did get a lot of fatigue to start with but a couple of weeks than it was gone.

So far they have found a mild disc bulge in lower back. Facet joint damage/early onset of arthritis... im 30.... was thought it may have been sciatic nerve although there is no evidence of that in the scans so far. I am due to go for nerve testing in a few weeks.

I am already on the list for the pain clinc ( the waiting time is huge) plus i am on the cards to see a neurologist... My gp just wants to narrow down the search while we wait... I just get so frustrated that it isnt an easy fix... My girls are only little and this is when they need me most. I just cant do what i would like to...

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3 years 11 months ago - 3 years 11 months ago #20386 by Mary
Mary replied the topic: Still in diagnosis stage
You have a great GP wench1. It's good that he is ruling out anything else while you wait for the pain clinic. There is a lot that they don't understand about chronic pain yet. Some people have backs that look as though they should be in agony 24/7 and others have mild degenerative changes like you, but are in a lot of pain.

I also have a quite severe form of osteoarthritis and I have had problems since I was in my 30s too. However, I often wonder how many people in their 30s might have the same degeneration but with little or no pain.

I am glad that the Lyrica is helping you. You don't develop tolerance to it as much as a lot of other medications, so it should go on helping you. Do you mind if I ask which state you are in? PM me if you don't want to put it up here :)

Most states have been able to reduce their waiting times due to adopting the recommendations of the National Pain Strategy of 2010, but SA has not done anything. However, I believe that there are still some lengthy waiting lists in some areas. SA is by far the worst off at this stage.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last Edit: 3 years 11 months ago by Mary.

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3 years 11 months ago #20388 by wench7
wench7 replied the topic: Still in diagnosis stage
I am in SA... it was 3 months on the triage list to see the specialist before i recived a letter saying i am now on the actual waiting list. The doctor cant even tell me how long the wait is... he just says it is huge and thats why we are doing all the tests now... I am lucky to have my GP he is hard to get into but thats cos he is so good... other doctors dont beleive me.... they only take the scans results and figure that they show nothing much therefore i must not be in pain.... i have been seen as a drug addict before just because of what i was on

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3 years 11 months ago - 3 years 11 months ago #20389 by Mary
Mary replied the topic: Still in diagnosis stage
Hi again, I was so hoping that you weren't in SA, but I guessed you were. If it's any consolation, once you get to the pain clinic (I am guessing it's the RAH because they are closing or have closed the Flinders Pain Clinic) you will find some wonderful, caring people who will be able to give you some help.

I am in SA too and there are people fighting to get this situation attended to. Sometimes I feel as though I am bashing my head against a brick wall, but I will NOT give up.

I will send you a PM.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
Last Edit: 3 years 11 months ago by Mary.

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