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At my wits' end

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2 years 10 months ago #22892 by Marley
Marley replied the topic: At my wits' end
Hi Wernie

I have just read through this thread.

My thinking is to get on as many waiting lists as you can for most are long. You might not want their services now, but in a year or two or more, you might have changed your mind and will be put on the bottom of the waiting list. You can always refuse an offer, but if you are not on the list, you will not get an offer. For one doc to predict what another will or will not do is a bit of guess work and by the time you see that doc who knows what will be available.

I know the desperation to do anything to get pain relief. What works for one, might not work for another. Unfortunately, if something only provides short-term relief, you need to weigh up the cost/benefit, as some things can be expensive for minimal benefit (other than to the practitioner.)

You will read the good and bad throughout these boards highlighting the 'magic' treatment is not a one-size-fits-many or the reality that there is no such treatment. Chronic pain is about management and relief for the 'most,' occasionally there is a 'cure,' but I'm yet to find it. Even surgery is not always the answer to being medication free.

I have been critisised for suggesting exercise can cause more harm than good. It is how you exercise and the type of exercise I state this belief. Exercise/stretching/flexation is necessary, but an exercise physiologist or a physio specialising in pain can interpret your scans and test results to be a guide on what not to do or how to do certain exercises. Once 'Jumping Jacks' or 'Star Jumps' were done as routien warm ups. No coach with any training would now suggest either as they were once done. They have been modified as not to cause injury.

The road to find what works for you is very personal and an individual trial and error. There are no short cuts or easy way, and sometimes what works today, won't work later or quite the opposite. Your pain might not be static and change over time. With this changes to treatment and exercise need to be considered. I suggest you consider all options, cost/benefit and not reject something out of fear or a lack of information.

Sorry, but this is my experience, and reality as I see it. This does not mean you give up, just that you keep trying until you find what works best for you.

Marley

Once I could laugh with everyone
Once I could see the good to me
Holding the world inside
Now the world is grey to me
Nobody can see you gotta believe it
Oh oh the night comes down
And I get afraid of losing my way
Oh oh the night comes down
And it’s dark again
“The Night Comes Down” Queen
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2 years 10 months ago #22896 by wernie
wernie replied the topic: At my wits' end
Thanks again for the replies! I had been thinking about getting on a waiting list as you suggested Marley and asked my GP to refer me to a pain clinic when I went back for an appointment yesterday (to sort out an alternative to my Tramadol problems). I actually ended up getting in somewhere later this week for an initial appointment because of a cancellation, so that was good timing. I do know what you mean about weighing the cost/benefit and deciding what's best for me (not what works/doesn't work for someone else). I think anywhere you look online you could read something bad about one treatment and then find the exact opposite of that somewhere else, so while I can take some of those things as suggestions, I can't take it as it will or won't work for me because of x, y, z.

It's funny because I did do physio before and that didn't really help me, but I recently started seeing a new physio and he suggested that I need to learn how to move. I had another appointment with him yesterday and could barely bend without pain in the beginning, then we went through a number of exercises and by the end I could bend and touch the floor again! I did still have pain after I left, but I was amazed at the change in the range of movement, so I'm going to see how that goes over the next number of weeks before going to any neurosurgeon or anything. I know there is no magic cure, but I guess it's at least nice to know that there are certain things that can help to alleviate it when it's bad :D
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2 years 10 months ago #22897 by Marley
Marley replied the topic: At my wits' end
Hi Wernie :cheer:

I thank you for your positive sense and letting me know you have common sense overriding the desperation for pain relief.
It is always nice to read feedback./updates good or bad. Yours was good.

It is amazing the difference in the people with the same training. In this case you have found a good physio. Did you know you can get a GP Access Plsn to subsidise a very few physio visits? The physio needs to be registered for this scheme. Because of red tape lots of practitioners from what is available don't sign up. I am glad you recognise who works for you and you are getting some benefit.
Marley

Once I could laugh with everyone
Once I could see the good to me
Holding the world inside
Now the world is grey to me
Nobody can see you gotta believe it
Oh oh the night comes down
And I get afraid of losing my way
Oh oh the night comes down
And it’s dark again
“The Night Comes Down” Queen

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2 years 10 months ago - 2 years 10 months ago #22909 by wernie
wernie replied the topic: At my wits' end
Thanks for that info, Marley. I wasn't aware of the GP Access Plan to subsidise the physio visits, so I'll have to look into that!

Just an update - I did go to the pain clinic last Friday and the doc went through my most recent scan with me, which hadn't really been done up to that point by anyone else. I gathered some of it from looking at the scans myself, but it was good to have someone clearly point out x, y, and z. Anyway, he basically said it's not a pain management issue as much as having the need for surgery because I've tried everything and the disc protrusion is so large that it is clearly pressing on the nerves (hence, the constant pain down my leg). He said I've managed well to deal with the leg pain for 7 months already and was a bit surprised my GP hadn't already referred me to a surgeon. So I'm sort of debating whether continuing physio right now is of real benefit versus just waiting until after I have the surgery. I'm not sure how long it will take to have the surgery - the lady at the office said it's normally a couple weeks to a couple months, depending on the urgency. So they would most likely do a microdiscectomy to remove that bit of the disc that's pressing on the nerves. The pain clinic doc said how it's just really unlucky for me to have what I have at such a young age and discussed the acceptance part and having to change my lifestyle, which I understand and had been thinking about, but it still has made me feel a bit down over the past few days.

Oh yeah, and the physio said today about criteria for surgery etc. and checked my reflexes again and said that I do have decreased reflexes in my right leg (which is the leg where I have pain). So that was a bit disappointing too! Oh well, such is life.
Last Edit: 2 years 10 months ago by wernie.
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2 years 10 months ago #22915 by Marley
Marley replied the topic: At my wits' end
Hi wernie

It is always nice to read updates, even if it is bitter-sweet.

Physio on the GP plan only gives 5 visits, so if you are wondering if it is worth continuing with physio, these might be better used after surgery. GP Access Plans 'reset' in January (I believe) so you may get 5 this year and 5 post surgery. Just something you might consider before 'burning' the limited visits. You also need to go to a physio who has registered for the scheme, many haven't, and often there is still a gap, so it is worth doing a bit of homework.

GP access plans have all sorts of allied health, but they are bundled and sometimes if you have 'burnt' friom one bundle you then can't access a different allied health professional from the same 'bundle.' I can't find a pattern or reasoning behind how the Federal Government set this up, but I am careful whith how I access the Access Plan. I suggest you make an expended appointment with your GP and find out exactly what is available in what bundles to see what you might be entitled to.

I've got to run, but thank you for your feedback.

Marley

Once I could laugh with everyone
Once I could see the good to me
Holding the world inside
Now the world is grey to me
Nobody can see you gotta believe it
Oh oh the night comes down
And I get afraid of losing my way
Oh oh the night comes down
And it’s dark again
“The Night Comes Down” Queen

Please Log in or Create an account to join the conversation.

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