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  • Myra
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1 year 9 months ago #25958 by Myra
Myra created the topic: New injury
Looking for advice,I have early stage CRPS (4months),after ankle fracture my foot and ankle are swollen pin and stiff.
Yesterday I had a fall and my 3rd and 4th toes were hyper extended,resulting in excruciating pain in the joints where the toes join the foot. X Ray's show now fracture,but my foot is bright red and more swollen and extremely painful. I can't weight bear and need crutches to mobilise.
In a case like this can I put ice on it I heard it's not good for CRPS.. Apart from pain meds and elevation,what can I do,I'm very worried this has caused the CRPS to flare up.HELP!

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1 year 9 months ago #25959 by Myra
Myra replied the topic: New injury
That was supposed to read no fracture,and foot has turned bright pink,

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1 year 9 months ago - 1 year 9 months ago #25963 by CathinOz
CathinOz replied the topic: New injury
Dear Brown Dog,

My heart goes out to you. CRPS is debilitating.

My advice would be to find a good, Multidisciplinary Pain Unit and get advice. There is no magic bullet.. and if a doctor tells you their is, be wary of a possible alliance with a medical device company.

Assistive devices such as drug pumps and neurostimulators should be looked into with great caution. They all have their downsides. Neurostimulation tends to work for a short time and can involve multiple surgeries into the spine to recite electrodes etc. Drug pumps also involve some invasion into the spinal cord and depending on what drug is used, tolerance can become a problem. All of these options are invasive and can cause serious issues with scar tissue formation in your spine. This can increase pain and reduce nerve function and in severe cases, even lead to a spinal cord injury from scar tissue.
I am sorry the news is not comforting. However, finding a reputable , multidisciplinary pain team for advice and look at doing the pain programs they offer to help you learn to live with the issues you have.

Try to take control of what you can in your life such as diet.. reducing sugar intake to help reduce inflammation. Learn helpful things such as meditation and whatever works for you. This is something a good pain team will help you with.
Best of luck going forward. keep looking for good advice and just be wary of pain consultants who are not part of a team. Get as much good advice as you can and start to look at what aspects of your life are helpful to your condition and what are unhelpful. Look at those most closely.

My heart goes out to you. Just seek out a good pain team and be aware that surgery involving the spine may have some short term benefits, but longer term can lead to serious scar tissue formation which can make the pain worse and can even cause a spinal cord injury in itself.
Good Luck going forward. talk on these forums but most of all listen to your pain team.
Last Edit: 1 year 9 months ago by CathinOz.
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1 year 9 months ago #26181 by Johnno
Johnno replied the topic: New injury
Hey brown dog ,
You say that you've got early stage CRPS I'd try and work in with your doctor and get as much help as you can get from him/her and see if you can get a referral to a pain management course and maybe a Specialist Pain Medicine Physician they are very good I suppose it's their job.
Search through the forum and see some of the other posts and you may find some things that would help you out and make your life a bit more liveable.
Don't despair we will give you support and guidance.
Johnno

as long as I wake up alive I'm happy
Because it could be worse

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1 year 9 months ago #26188 by Peter
Peter replied the topic: New injury
HI Everyone,

For those who would like to find a good pain specialist, which includes one for CRPS, please visit the Australian Pain Society website: www.apsoc.org.au/
You can email them or even phone them up. They have a clinical services directory and a list of good pain clinics throughout the country.

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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