robbotopaz created the topic: Handling long term pain
I am writing in the hope of helping my mother. She is 68 years old. Her heart, lungs, mind etc are great.
She has had pain for many years. It started with Osteoarthritis which is extremely severe now.
In the past she has had a Hysterectomy, two hip replacements, multiple breast lumpectomy (all clear), major ankle fracture, amputation of one toe.
She has Neuropathy and Restless Leg Syndrome.
Her list of medication is long - Celebrex, Ferrous Fumarate, Karvea, Palexia, Pantoprazole, Pregabalin, Sifrol, Temaze and Zumenon.
I went with her to the Neurologist for the first time last week.
He has been working with her to try and help her understand that whilst she has severe pain she is at the limit on her medication and she needs to learn to help herself overcome some of the pain (not sure I an explaining the correctly). She does not understand that the medication cant fix her on its own. I believe she has grown accustom to the pain and it becomes like a habit.
My understanding is as she has been in pain for so long, when she feels pain coming on, she tenses and causes the pain to become worse. By no means is there any thoughts of her not having the pain but she needs to find another way to "help herself".
Has anyone else been through this or offer any advice on where to get some help.
We live in Tasmania.
They (clinical researchers) now know that too much strong pain medication, especially opioid meds, can actually increase the pain if they are not doing their job anymore. This 'could' be happening to your mother. Could! You will need to see someone about this. I would strongly suggest getting a fresh pair of eyes to look over your mother's condition and medication list. She would benefit from a multidisciplinary pain clinic. She would also benefit from exercise too, even if only a little bit is better than nothing. Exercise is good medicine for chronic pain sufferers, but it has to be regular and long term.
See her GP about a referral to a pain clinic, because they are there to teach people how to self manage their pain condition. Great source of help and information!
We don't have a clinical services directory, so I'd suggest you contact the Australia Pain Society, because they may be able to assist you with finding another specialist for your mother to see. Here's the link:
As for her restless legs syndrome. Is she taking Magnesium?
If not, try Blackmores Bio Magnesium or another magnesium product that has all the other associated minerals and vitamins with it. I've been told you can't take magnesium on its own apparently, because it will unbalance your system. I think it leeches calcium or something like that. Don't quote me on that, because I am no expert.
The other thing you can try is Epsom Salts in a warm bath. Get her to use a face cloth in a warm bath (without any soap) that has had a good handful or two of Epsom salts diluted in it, and ask her to vigorously scrub her legs from her ankles to the very top of her legs. This will assist with the uptake of magnesium into the body through the skin. And make sure she drinks lots of water too, because that will also help.
Please go to her doctor and ask all these questions. If her GP is not responding, then go find one that will. And give the APS a call or email, to see if they can help you.
Keep reading on this site, because you may find some more info that could be of help to your mother.
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)