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At a loss

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2 months 3 weeks ago #28135 by MACCA
MACCA created the topic: At a loss
Hi all.
Ive been struggling with chronic pain since my work accident in 2014. I had a run on medication which only worked so much, a discectomy in december 2014, went back to work a month later, lasted 10 months only for the disc to prolapse again and had L5/S1 fused in February 2016. I had the whole 6 month recovery which went well and i believe i got physically fitter than i was pre injury and not to blow wind up myself but i was extremely fit. I went back to work in september 2016 and lasted 3 days before i had the worst pain ive ever had shoot from my lumbar spine down to my toes which is typical of crushed nerves. I had further scans which were to show a piece of bone 6mm in diameter that had broken off the fusion wedged in between the disc and my nerves. L3 was also damaged in the accident and was bulging 6mm in towards the nerves. I was told by my surgeon that its normal and went to a pain specialist who pushed the stimulator like there was no tomorrow. I wasnt ready for more surgery so seeked further advice. Long story short ive worked 9 days since december 2015, medication has gone up and down went to a different pain specialist who advised the stimulator but wanted to try the ketamine infusion as well as some blockers. Whilst in hospital had a 2hr window of zero pain. It was beautiful. My wife said she had her husband back. But like i said, only 2hrs.
I had a trial stimulator installed and it took 60% of my pain away. Had the permanent one installed only to have a 40% pain reduction so far. Im only a few months in so there a long way to go yet.
My pain doctor has now prescribed me ketamine lozenges to help cut the medication out. I was on 80mg of targin, 150mg lyrica, 20mg oxynorm as required and valium to assist with sleeping. Since the ketamine i am down to 30mg targin, 75mg lyrica and nothing else but ive been restricted to my loungeroom floor due to the huge increase in pain. I have no quality of life at all. He has tried to convince me that the pain is mostly in my head which i understand but my pain is real. I dont want to be on any meds let alone be off work as its crushing me financially, but from what i read on this forum, alot of you have been on pain meds for many years so why does my pain specialist need to get me off the medication? I need to be able to function at some level. I was fine on the high doses and didnt feel like i needed more. I still had spikes in pain but i managed to leave the house and do shopping or go to bunnings and pick up a new lock for example. Now like i said im limited to my loungeroom and my poor kids dont have a father.
What would you do?
Thanks in advance for any advice.

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2 months 3 weeks ago #28141 by Johnno
Johnno replied the topic: At a loss
Hi Macca,

First off I commend you for reducing your medication but if you were able to work with high doses it meant that the pain was hidden but the injury wasn’t , I’m not you but I know where you are coming from I’m screwed L3 /4;L4/5; L5/S1 I am going back in the new year to discuss nerve burning to mask the pain ,I also take 300mg Lyrica twice a day plus sertraline,endep, OxyContin 10mg, panadol osteo and circadin for sleep so you are brave to be down where you are .
I think you would be wise to contact your nuerosurgeon and see what they say as they are the professionals where about do you live as we know some awesome surgeons
Johnno

as long as I wake up alive I'm happy
Because it could be worse

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2 months 3 weeks ago #28147 by MACCA
MACCA replied the topic: At a loss
Thanks johnno.
Ive been to every BEST surgeon in sydney and they all had different opinions except those surgeons who were mates with others that i saw. The way i figure it, id rather die at 60 from medication destroying my internals and live the best i can with my kids than die at 65 limited to my floor or a wheelchair. Ive explained that my body is much different to the next guy and i need higher dosages to get the same effect. I see the pain specialist this morning to have another med adjustment and stimulator recalibrate.
Il let you know how it goes.

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2 months 3 weeks ago #28148 by Johnno
Johnno replied the topic: At a loss
Hey Macca,

Please keep us posted mate we are here to help

Johnno

as long as I wake up alive I'm happy
Because it could be worse
The following user(s) said Thank You: MACCA

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2 months 3 weeks ago #28150 by MACCA
MACCA replied the topic: At a loss
So for the update....
Pain doc has increased the targin back up to 70mg until i stabilise again. This will help alot so i can atleast be mobile enough to live.
Cheers for the support johnno amd to everyone on here stay strong.

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