2manytyears created the topic: Travelling soon and concerned
Hi All Just looking for some reassurance or something! I have 2 distinct and different versions of chronic pain (lucky me eh) firstly I have constant chronic cramping pelvic pain from endometriosis that resulted in hysterectomy in my early 30s but left me with this pain. I have recently had lignocaine infusions that have treated it successfully (ish) so it’s well under control at present. Second is severe sciatica associated with buttock and feet burning. That comes and goes but when it comes it stays for months. Currently I don’t have sciatica but I have the intense burning on the soles of my feet and in both buttocks. Next week e are heading off on a holiday and just want to know how people cope out of their comfort zones and trying not to let pain spoil their holiday. We are flying to Sydney from Alice Springs, driving down the South Coast, back to Sydney then going on a cruise to NZ. My husband really deserves this and I want so much to enjoy it with him. Any tips will be welcomed.
Mary replied the topic: Travelling soon and concerned
Hi 2manytyears. This is a timely coincidence. I have managed to travel despite believing that I would never again leave the house. We took a few caravan trips and then we got really brave and with careful planning we went overseas. I tended to be a bit over organised - started to pack really early to avoid the rush and anything that would make my life easier, such as a very lightweight backpack for onboard and a suitcase that wheeled on all 4 wheels for checked baggage. I also used a wheelchair in airports. You can easily pre-book these - they are free and someone wheels you around from one plane to the next or to the luggage carousel. You get to go straight through customs as a bonus! I accepted that my days would be half days instead of walking around all day. We rested in the afternoon and I took a day off here and there to recover. We had a really great time. Your trip sounds amazing and I am sure that you will enjoy it.
We run as support group for people with chronic pain here in Adelaide and on Tuesday we brain stormed this very thing. Here are the suggestions that our group came up with;
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables