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Victoria?

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3 years 11 months ago #19264 by jess_scott
jess_scott created the topic: Victoria?
My 17 year old daughter has had chronic pain for 2 years now, diagnosed with CPRS, fibromyalgia and a connective Tissue disorder.
Has anyone got any reccomendations for pain clinics in Victoria, preferrably Melbourne? I'm not entirely sure whether or not to pursue the Pediactric route as she will be 18 in July.
It's so hard to see my child in constant pain, any help would be so greatly apprecitated!

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3 years 11 months ago #19266 by Mary
Mary replied the topic: Victoria?
Hi Jess,

Welcome to the forum. I really feel for you having to watch your child in pain. It's much worse than having it ourself1

I would recommend that you contact the public hospitals in Melbourne and ask about their pain management programs. See if you can find one that will treat the pain from all angles. These clinics are called Multidisciplinary pain clinics and they usually have a pain specialist who will look at the whole picture and provide any necessary medication, a psychologist who will help with relaxation (vitally important) and any other management issues and a physiotherapist who will work with your daughter to help her to move at her own pace. Moving is vital, but only at a slow pace and then build on that if you are able.

The public pain clinics usually have quite a long waiting period. I am not sure of the situation in Victoria. All the above can be accessed privately if you have extras cover. People can also have up to 5 allied health visits/year covered by Medicate. However, the multidisciplinary pain clinics are the best way to go because the health professionals all work in together. If you do access the services privately I would suggest that you see a psychologist and physiotherapist who have experience with chronic pain. It makes a huge difference. Seeing a psychologist does not mean that the pain is in people's heads. They provide a very important part of pain management; I can say that from personal experience.

Please feel free to ask any questions that come up and let us know how you are going or if we can help further.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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3 years 11 months ago - 3 years 11 months ago #19267 by powerbeck
powerbeck replied the topic: Victoria?
HI.

Sorry to hear about your daughter.

I am looking for another pain clinic as well. I need a recommendation. I have been to the one at Monash Medical Centre. It took about 12 months to get in.. They basically couldn't do anything for me really. They thought about giving me Ketamine... But in the end decided it wouldn't help me. They just said stay on Tramadol if this is helping. The only problem is I have to go every 2-3 weeks and get another scrip. Doesn't give me any repeats. Although I think the pain clinic is sending a letter to my doctor to allow repeats.

I wasn't that fond of the doctor really. He didn't keep any records about me and had to explain my situation every time i went....He said there is nothing they can really do for me. He said that's a unsatisfactory answer.. Maybe there is nothing more they can do? He was just telling me the truth I guess. I am going back there in December. This is just to see how I am going. He said usually that is the end. But he has booked me in again to check on me. I might ask to see another doctor for a second opinion. I suffer from undiagnosed upper abdominal pain.

Wish you well and your daughter.
Last Edit: 3 years 11 months ago by powerbeck.

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3 years 11 months ago #19268 by Mary
Mary replied the topic: Victoria?
Hi powerbeck,

I am sorry that you had such a bad experience. That is not what a pain clinic should be. All that doctor appears to have been looking at is medication and if he wasn't keeping records, then I would not be visiting him again. It was said to me the other day that we should liken our health service experiences to our cars. If we take our car to a garage and it doesn't get fixed properly or they charge too much, then we look for another option. It is the same with our health. If the pain clinic that you visited did not help at all, then it is time to seek other places. Perhaps your GP could help? Or, like I suggested, try ringing the hospitals and see if you can find a multidisciplinary pain clinic.

The current evidence tells us that these clinics are the best way we have at the moment to treat CP as we don't yet have a cure.

You are certainly not being told the truth if they say they cannot do anything more for you.

Stay in touch with us!

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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3 years 11 months ago #19269 by jess_scott
jess_scott replied the topic: Victoria?
Has anyone had any experience with Melbourne pain group? They're private and it will probably be costly but we're pretty desperate for some relief at the moment.

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3 years 11 months ago #19270 by Mary
Mary replied the topic: Victoria?
Hi jess,

Here is a link to a whole lot of Pain Clinics in Victoria:

www.painaustralia.org.au/consumers/pain-clinics.html#VIC

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables

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