Thanks Mary for your kind words. Yes I think I will get a second opinion. I didn't think it was good him not keeping records. He pretty much gave up on me. I felt it was all a wast of time in the end. I think people with pain need ongoing support. As we all know Its a very difficult thing to live with. It can destroy a person, if they don't get the support they need. .. Which is very sad. We all live in hope. I'm optimistic .. With new technologies and research.. Some day there will be a better treatments for our condition. We have come along way already! all the best.
Hi there, I see a Dr, from Monash for pain. He is of no help to me what so ever. He has given me pain patch's, and now I have dreadful pelvic pain. He can't keep his notes either as he thought I was someone else. I have seen him for over a year. I have asked to see another pain mang person, but have got nowhere. I have fibromyalgia, and so far, nearly every gp I have seen thinks its not a real thing to have. It would be wonderful if all gps have some agreement over FM, and not just have their oven ideas of what it is. I got asked yet again this morning, why are you on these drugs? by gp. Makes it so hard.
4 years 5 months ago - 4 years 5 months ago#19328by Mary
Mary replied the topic: Victoria?
Hi Snapper88 and welcome to the forum!
This sort of stuff makes me so cross! The idea that Fibromyalgia is not "real" went out of the window many years ago. Obviously certain health professionals chose not to keep up to date with the facts, or else they don't believe them! It may be worth your while to ask a GP for a referral to a Rheumatologist. As far as I know they all acknowledge that Fibromyalgia exists and treat it accordingly. The other alternative is to try and find a multidisciplinary pain clinic that does more than just hand out medication. That alone will not treat pain adequately. No one in those clinics will accuse you of having pain "in our head" either.
Thanks Mary, this has been doing my head in. I have followed all Dr's advise as best as I could. I changed GP's half way through last year. It is my partner's gp. I tried to see another women gp at same place and she did a test for me and I got a texted message back that I had to see the guy Gp. I have told the guy many times, I have other issues going on. I am 55, things happen. Yes, I have seen a Rymie, she wasnt that great. She told me I was chemical sensitive and there was nothing else she could do for me. I am going to see her again, next month, but I was told that I am red flagged by her, so seems a bit pointless. I feel like, I was going ok with these pain patch's and had a bit of a life, till I got a bladder infection last May, and have been suffering since then. Every Dr', I have been too in Bayside, say at first they understand FM, but they don't at all.
You are certainly having more than your fair share at the moment. I have friends with Fibro and they have all been treated well by Rheumatologists. Perhaps you could find another one? Also, that won't be the whole answer. You may need physio (only by someone who understands your condition and its limitations), a psychologist to help with relaxation (vital) and other management strategies and perhaps a pain specialist. I know that I nag about multidisciplinary pain clinics at lot. That is because the current research is telling us that is the best route that we have for CP treatment at the present time. They have good outcomes for many people.
FM is a difficult condition to treat and no two people with FM (or any type of CP for that matter) will do well on the same treatment. We are all different and that makes it even harder.
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables