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Ketamine infusion

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4 years 4 months ago #19671 by Farm girl
Farm girl created the topic: Ketamine infusion
I'm having a ketamine infusion for the first time in May (2014). Had chronic pain for 4.5 years. Just looking at some feedback and I'm not really sure what to expect before during or after. It will be done at the Vic rehab in Glen Waverley. I did the pain management course there so familiar with the hospital just not the inpatient bit. Having a rough night and can't seem to get any relief right now.

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4 years 4 months ago #19681 by Mary
Mary replied the topic: Ketamine infusion
Hi Farm girl and welcome to the forum,

We are gradually getting more people here who have had Ketamine infusions, so I am sure that someone will jump in and tell you about their experience.

There seems to be several ways that they carry these out. Different doctors have different preferences, so it will be interesting to hear your feedback too.

Mary

Not every day is a good day, but there is good in every day.

"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
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4 years 4 months ago #19692 by Farm girl
Farm girl replied the topic: Ketamine infusion
Thanks Mary, love love love AGG BTW. Always have.
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3 years 6 months ago - 3 years 6 months ago #21808 by George
George replied the topic: Ketamine infusion
Hello,

I have had two Ketamine infusions. Both were to maximum levels of 30mg.

Once in 2012 and again a year later in 2013.

First one gave temporary relief for about 2 weeks and then I was back on the strong stuff again (paracetamol, codeine, endone, 20mg Norspan patches, lots of Nurofen etc 20-25 pills a day).

Second infusion I suffered a toxic liver reaction. My CGT levels were 10x the norm resulting in excruciating abdominal pain. It was toward the end of the 7 days of the infusion and the pain relief afterward was less effective than the first infusion which was regarded as a flop. Remember, I experienced this massive gut pain while on Ketamine which is an anaesthetic!

Interestingly, during the first infusion on the last day while STILL ON THE DRUGS, a nice nurse came around and asked me questions for a survey to present to newbies B4 their Ketamine Infusion. The questions were worded in such a way as to make the Special K option seem even better. They should have asked me these questions weeks later while I was sober...not while I was clearly intoxicated.

Both infusions they start one on 4mg then increase every 12 hours or so till maximum dosage is reached which is 30mg.I believe it is 30mg per hour which is alot.

Would I recommend it to someone else? That's for you and your 'specialist' to decide.
Last Edit: 3 years 6 months ago by George. Reason: To add details of dosages administered.

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3 years 6 months ago #21810 by Eliza
Eliza replied the topic: Ketamine infusion
Hmmmm, 2 weeks relief only is probably why I haven't been approved for this treatment...

I thought it reset the receptors in the brain and PAIN would be, well improved or less.

I don't know the answer, seems like we're stuck with pain.

My nerve pain has changed and it thumps me in the legs and arms in the mornings.

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3 years 6 months ago #21812 by George
George replied the topic: Ketamine infusion
Sorry to hear about your suffering Eliza.

Bottom line is Ketamine is supposed to do all the things you mentioned but it is really hit and miss.

Before the infusion I was informed of the possibility it may not work but of course the glowing testimonials and the fact that I had tried all and I mean ALL options first left only Ketamine to try.

Pre-ketamine my meds list was this:

Morning 7.30am : Nexium 20mg, Panadol 500mg x2
Mid-Morning 10.30am : Oxynorm 10mg x1 if necessary
Noon 12.30pm: Panadeine Forte x2
Afternoon 4.30pm : Panadol 500mg x2, Oxynorm 20mg x1
Evening 8.30pm : Panadeine Forte x2, Valium 10mg x2 or x4 to assist muscle relaxation and sleep
Weekly: Norspan patches 30mg

I was on all that for about 3-4 years. After the Ketamine failures Dr Pain as I like to call him tried every Neuroleptic drug in their bag of tricks. I'm talking about Gabapentin, Lyrica etc. They altered my mood drastically and suddenly thought of suicide sprung up out of nowhere. I ceased them immediately after informing Dr Pain of the side effects. They did not reduce the pain at all.

Today this is my med regime:

Morning 7.30am : Nexium 20mg, Panadol 500mg x2
Mid-Morning 10.30am : Endone 5mg x1 if necessary
Noon 12.30pm: Panadeine Forte x2
Afternoon 4.30pm : Panadol 500mg x2, Endone 5mg x1 if necessary
Evening 8.30pm : Panadeine Forte x2, Valium 5mg x2 to assist muscle relaxation and sleep
Weekly: Norspan patches 15mg

It was after Dr Pain gave up on me that I took matters into my own hands. I lost 25kg in excess weight. I attend gentle yoga for relaxation and to regain flexibility. Weekly hydrotherapy and 20minutes in the steam room immediately after. I go for a short walk once or twice per day and stop at a playground and hang from the play equipment to stretch. The biggest help exercise wise has been ongoing Pilates. Also, I eat pretty much a vegan diet most days with some dairy here and there.

Slowly I have re-entered the gym and I lift weights under the supervision of my physio. I cannot stress how important exercise is. If nned be I take an endone before a workout so I can exercise with minimal pain.

I should point out that after 3 surgeries my lower back looks good on the MRI's. Apart from the L4/5 fusion all my other discs are healthy.

I need the pain killers for nerve damage due to my post op infection.

Hope that helps.

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