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Help finding a pain clinic

  • Deanm
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2 years 6 months ago #23923 by Deanm
Deanm replied the topic: Help finding a pain clinic
It may be less than the time quoted once I fill out their questionaire. I am also seeing 4 other specialists at the Alfred who may bump me up the queue.
I have tried electronic stimulation before but due to the MS thats not going to work for me, the myoclonic jerks are bad enough as is. And i have no idea what effect it would have on the adrenal gland issue, its that active without zopiclone I went for 11 days with no sleep before having to give in and go back on it as it was making my severe depression even worse to the point of wanting to end it all.

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2 years 3 weeks ago #25050 by pamcarr
pamcarr replied the topic: Help finding a pain clinic
hi all, I am currently looking for a pain clinic in Sydney( western) I have private health insurance, so can use public or private - I just want to find one that has a good reputation, if anyone has any info, would be greatly received :-) thanks in advance
Pam

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  • Peter
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2 years 3 weeks ago #25051 by Peter
Peter replied the topic: Help finding a pain clinic
Hi Pamcarr,

Sorry to see you having such a bad run of it lately. I hope things do pick up for you soon. Please see below 2 links that might help you find the clinic near you.

www.apsoc.org.au/facility-directory
Scroll down this page until you come to the part where there is a tab for each state. Just click on the NSW tab and scroll down the list. I don't know about any on that list, except for the Hunter Integrated Pain Service (HIPS). Dr. Chris Hayes works there and he use to be on our Board, so I'm sure he and his team will be up with all the latest for those who suffer chronic pain.


Here is an initiative done by the NSW govt to help those who suffer pain. The video on the home page has Dr. Chris Hayes speaking in it about this resource.
www.aci.health.nsw.gov.au/chronic-pain

A multidisciplinary pain clinic is what we all need to learn to self manage our pain. There could be a bit of a waiting list, but if you hang in there and when you do go in to the clinic, do so with the right frame of mind and don't go looking for a cure. If you do that you will be heartily disappointed. Life can be just as satisfying once you learn how to control your pain and not let your pain continue to control you.

I hope this information helps you.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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1 year 10 months ago #25853 by Myra
Myra replied the topic: Help finding a pain clinic
Hi Peter,I have just joined,tried to introduce myself self but couldn't get find where to enter the info.
I'm on this site looking for a dr who can offer me treatment for early CRPS. I have developed CRPS after an ankle fracture 41/2 months ago,my fracture is healed,but my foot and ankle are pink,odemateous restricted flexion with varying degrees of pain. X-rays show low bone density,MRI showed extensive bone odema plus ligament and tendon damage from the acute fracture.
I had fractured my other ankle 8 years ago and had CRPS the symptoms are the same now probably worse this time than last. My CRPS resolved after 6 months.At that time I was lucky enough to find a doctor who was treating another patient with CRPS. I researched and took prednisone as well as a channel blockers called nifedipine. Whether this treatment worked or it just resolved I wi never know.
My current GP knows nothing about CRPS,and was reluctant to prescribe those medication,he called a pain specialist who prescribed Lyrica. I have an appointment with him in 4 weeks. I watched a video on a talk given by Dr Chopra and have started on all the medicines he suggested eg. DMSO,magnesium chelate,liopic acid and Vit C. The Lyrica has helped with the pain at night,I also take panadol osteo ,and ibuprofen.
I know I have a small window of opportunity to get on top of it,what is your advice,should I start Dr shopping or wait for the pain specialist,there is only 1 in my area. I am doing daily hydrotherapy,see a physio and have foot massage.

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1 year 10 months ago #25856 by Peter
Peter replied the topic: Help finding a pain clinic
Hi Brown Dog,

Welcome to the CPA Forum!

I'm sorry, but we cannot give any of that kind of advice here. We aren't a clinical organisation. My only suggestion is that you contact the Australia Pain Society to see if they know of any doctors who can treat your CRPS. We don't have a clinical services directory, so I can't help you with that one.
Here is their website address: www.apsoc.org.au/

We do have others here who suffer this condition, so please read through the different categories and maybe you could get a few tips from them. Or join in the conversation and you should get some responses from others.

Just know that we are a supportive bunch and you are most welcome here.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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