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Pain Management Clinic Question?

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2 years 3 weeks ago #24982 by WAP
WAP created the topic: Pain Management Clinic Question?
Can someone tell me please about these PMC and just what they do --? Is it mostly talking and Psyco analysis ? do they give medications.

I have had all the tests and it has been proved lots of damage to the spine in many areas and I am on medication -- but was wondering IF there is anything I could learn from these clinics or it just going down the same old paths I have been for many years?

Thanks for any info

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2 years 3 weeks ago - 2 years 3 weeks ago #24983 by Peter
Peter replied the topic: Pain Management Clinic Question?
WAP, multidisciplinary pain clinics have a pain specialist, a physio and a clinical psych. They spend 4 to 6 weeks depending on what hospital you go to, teaching you about your brain and about pain. They teach you how to self manage your pain condition. The physio does an appraisal of all who attend and give you exercise programs to do and you start them at the clinic in most places.
The pain specialist will go through your list of medications and if you both agree there needs to be an adjustment, then it will be done. You won't find them handing out a lot more drugs, because the goal is to get you to the point where you are managing and tolerating the pain so that you can reduce either the number of drugs you take or the strength of drugs you take.

If you go into the clinic looking for a cure, then you will fail!

The only reason you should ever go to one of these clinics, is if you have already accepted your pain condition and that you are going to never get rid of it, but that you are looking for a better way to live your life while having the pain. If you have this attitude then you will benefit quite a lot and you may find a fair reduction in pain and an increase in health and mobility.

For those of us who suffer ongoing chronic pain, it never seems like it is under to control. However, you can measure how controlled it is, by the activities you get involved in each day. So if you do attend one of these clinics and you later find that you are involved in lots of things, including maybe a bit of part time work, then you can say your pain is under considerable control, even though you still hurt 24/7.

LATE EDIT: Sorry I forgot to say that if you find yourself doing lots of little things. They may not add up to much, maybe a couple of hours a day, then you need to go home and rest is quite a lot for a pain sufferer to cope with and if you can achieve this, then you are doing well. The fact is, if you are able to do some physical activity each day, you are moving, mixing with other people, doing something constructive which helps keep depression at bay, then your life is going to look and feel a whole lot better than it was, compared to when you were just sitting locked up in prison, looking out at the world wishing you could be part of it. Believe me I know what that is like. I've been there!

I'm sorry, but the reality is for 'ALMOST' all people who end up with chronic pain. There is no cure!
So the sooner you all accept it and start finding ways to live with it and self manage it, then the sooner you will live a much better life, be happy with your lot, and start enjoying the things you do, even though you still have pain all the time.

It is amazing how much pain your brain will tolerate each day so that you can function to some degree, without being drugged up to the eyeballs.

I hope this has given you some insight into a 'Multidisciplinary Pain Clinic.'


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Last Edit: 2 years 3 weeks ago by Peter.
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2 years 3 weeks ago #24986 by WAP
WAP replied the topic: Pain Management Clinic Question?
Thank you Peter, I have been having this pain since a spine fracture in 1972, I did eventually managed the pain after quite a few years -- plus I was a lot younger then also -- however, it has got so much worse now and along with Osteoporosis and Osteoarthritis I now have spinal stenosis in about 5 areas of the spine, I am on pain patches (Norspan 10mg one a week) and have the occasional Endone when I HAVE to be on my feet ( or have to go to town) but I do not take those unless I absolutely HAVE to, None of these pain meds makes me sleepy or less aware, I took particular notice as I would not drive if they did.
I do take Panamax every 4 hours every day and they do help a little -- very little.
I have been to many Physios etc and they all say what I am doing is good and I do remain very supple, however, they have said there is nothing more that can be done, funny enough I can still touch my toes no trouble , in fact leaning forward helps a little.
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2 years 3 weeks ago #24987 by Peter
Peter replied the topic: Pain Management Clinic Question?
Boy oh boy, you certainly have a lot of bad spots in your spine to cope with, but that you can bend over is amazing. I can bend over, but can't support myself, because I am that weak. If I bend over, I have to lean on something and the pain goes through the roof.

I got myself into the local Heart Moves class at the gym. They do gentle exercises for people with bad health and heart problems and it suits me to the ground. You only do what you can handle and although they use all the equipment, it is easy and light weighted.

I can't tolerate those drugs. I tried both Endone and Cymbalta, and both of them made me very ill. One of them had me up all night with the runs. It went through me like a dose of salts. And boy was I sick the next day. That was only after one tablet. Never took anymore!

So I am stuck with out of control pain levels, just taking a small dose of Lyrica 75mg at night and no more. Then a little bit of paracetamol/codeine 3 times a day. Even the codeine makes me sick if I take just a bit too much. So I have had to learn to tolerate a lot of pain, which I do do each day. It is a difficult ask, but I get there. The hardest part is not sleeping properly. If I sleep well, I feel like a million bucks, but if I don't, then I have a rough day and that seems to be the norm for me lately.

For most of us the drugs are not the way to go. The drugs and I mean all of them, have a sting in their tail. They all come with a price. So if we can do more to help ourselves get by without them, then that is the best way to go.
So even though I suffer over 80% of my pain each day, I am still engaged with the local Men's Shed a few times a week, still go to the gym twice a week and I do all my own shopping and housework. Plus I'm a single Dad to two teens as well.
I have just learnt that each day has to have a rest period where I can just chill out. I go to bed for about an hour. I never sleep, but I can just shut down and do nothing while my afternoon tablets start working. Then I can get through the rest of the day not feeling like I had just been run over by a road train.

Spinal Stenosis is a terrible thing. I do hope you are able to overcome this. My mother suffers a very bad form of this and I had to organise an epidural for her, just so she could get some physio. Once she could, then she was able to move around again. She is 90 years of age and struggles each day, but is much better now she can do the exercises.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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2 years 3 weeks ago #24988 by WAP
WAP replied the topic: Pain Management Clinic Question?
Peter I was on Lyrica --I had 2 tablets and although I have never been drunk in my life I suspect this was close, as for 2 days I could not walk straight and bumped into the walls and no way would I have been able to go anywhere let alone drive, also had Tramadol, these did help the pain but 6 hours after taking I was violently ill every time, have also had Targin -- they did nothing, there are quite a few others as well that never worked or made me very ill, Panadiene forte makes me ill and also ver constipated.
I still throw up from time to time and go nowhere without a vomit bag -- although it has been 2 months now since I threw up.
The pain in my spine seems to be the compression when I am on my feet for say about 1/2 hour and I get pain down the legs and also in the shoulder area and thoracic area because of the stenosis there also.
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2 years 1 week ago #25078 by Suellen.bartley64@gmail.com
Suellen.bartley64@gmail.com replied the topic: Pain Management Clinic Question?
Hi, i am currently managing my pain with lyrica, 200 mg in the mornings and 275 mg at night, i have 25 mmg fentanyl patch on 24/7. Change it every three days. I have endone for break through flare ups. I have been on this dosage for over a year now, i dont get bad side effects from these meds, just the constipation. Couldn't handle the tramadol, even though they did help with pain the best. I lost alot of weight on them, severe runs, as soon as i ate within minutes it was gone. As with the norspan , that was way worse. Horrible things.
I am the opposite WAP , I can sit, but standing is hell, walking is ok but if i go shopping and see a friend and stop to talk, omg its like the worse sharp stabbing into my arms, rib cage, hands and back. Then i end up like a robot trying to free up my body to get walking again. I really think the pain of the thoracic stenosis is worse than the cervical or lumber which i have all of. Because when the ribs start up, i have trouble breathing in, its the worse pain, like getting hit with a sledge hammer .

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