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Pain Management Clinic Question?

  • Peter
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2 years 3 months ago #25079 by Peter
Peter replied the topic: Pain Management Clinic Question?
Man that stenosis sounds really bad. And it sounds like you get a lot of cramping too, which is something many of us experience. And I don't know how you live with all that medication. I am sensitive to drugs and if I took what you take, I'd be either dead or on my last legs. Sheesh!

I don't suffer any stenosis of the spine, at the moment, but my 90 year old mother does and I can see just how devastatingly painful and debilitating it is. She is now fortunately under some level of control with exercises and medication. But it took an epidural to get her off the merry go round long enough to start the exercises. She was almost totally crippled and couldn't move without screaming in agony. Now she is walking around and going shopping etc. Big difference.

I can never work out how much of our symptoms are caused by the drugs in an indirect way. Some of my worst pain symptoms I experienced while on strong drugs like tramadol. That drug is really bad for people like me. I ended up with serotonin syndrome and spent 10 days in hospital withdrawing from the damn drug.

I certainly hope you are able to keep it under some measure of control. But if the pain keeps getting worse, you may need another opinion, because many of these strong drugs can increase your pain levels.

Have you been to a multidisciplinary pain clinic before?
If not, you should ask your GP to refer you to one.

Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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2 years 3 months ago #25084 by WAP
WAP replied the topic: Pain Management Clinic Question?
No Peter I have not been to multidisciplinary pain clinic, I have been to Physio and they said there is nothing that they can do, I am pretty flexible as I was always active and did yoga all my life, just that nothing really can be done about the spine and it's condition, the Osteoporosis does not help as the bones are not strong enough for an operation. It is mainly being on my feet for any length of time that really gives me hell

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2 years 2 months ago #25346 by pamcarr
pamcarr replied the topic: Pain Management Clinic Question?
WAP - I have been to a pain team, and they had physio, pain specialist and a psychologist all case managing, it was really worthwhile, that was some years ago, and I am now on the waiting list for pain management team again, and also the "back to life" program - which is an exercise program specifically for people with chronic back issues - the waiting times are long, so I expect I should hear something toward the end of the year - but hopefully sooner :huh:

good luck if you decide to go ahead and go see a pain team

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2 years 1 month ago #25440 by WAP
WAP replied the topic: Pain Management Clinic Question?
Hi pamcarr, I do hope that you get some help from this team and are able to get through your pain, I am managing not too bad -- NOT PERFECT -- on the 10mg Norspan and Panamax at the moment -- sometimes with an Endone ONLY IF REALLY NEEDED

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2 years 1 month ago #25481 by Johnno
Johnno replied the topic: Pain Management Clinic Question?
Hi WAP,
Not knowing where you are in Australia I can't help except say I did a pain management course at the Wesley hospital in Brisbane I received a lot of help and advise as they do have Occupational therapists,physiotherapists,psychologist,personal trainers etc and they are all there to help you and each person has their own set of exercises drawn up for them.
If you have private health cover you are covered for a great majority of it.

I hope this helps

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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2 years 1 month ago #25483 by WAP
WAP replied the topic: Pain Management Clinic Question?
Hi Johnno,
I am in NSW, no I do not have any private cover these days but do have a concession card -- I am quite away from the big Hospitals -- about 150ks round trip so wouldn't want to be traveling that too often, I do have a few appointments in July at these hospitals for different tests and will be glad when they are over.
I did go to a Physio but there was nothing that was done that made any sense at all, as I have always been pretty fit and supple and as was said there is NOTHING that can be done for crumbling bones and stenosis.
However I am very interested to know what Occupational therapists,physiotherapists,psychologist,personal trainers etc did for you and just what they did.
Thanks for your post and will look forward to hearing from you re the above.

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