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Am I right in being suspicious of, 'pain specialists'?

  • Peter
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7 months 6 days ago #28231 by Peter
Peter replied the topic: Am I right in being suspicious of, 'pain specialists'?
G'Day Nick,

You are not completely right, but you are right with regard the media beat up and there is a fair deal of govt hype as well. One of the things that I object to, is the 'inferred' reference to anyone who takes opioids regularly, as drug addicts. This is not just insulting, it is indeed very harmful to long term sufferers of chronic pain.

However, where you are wrong, is that there is a problem with opioids including codeine. Doctors have over prescribed them for decades and people have self medicated on them for the same time period. Contrary to what is said in the media, Opioids are effective in treating many types of pain. But they are also very addictive too. There are too many people out there self medicating for pain that they have no idea what the cause is. This is very dangerous. My own doctor told me of one of his patients (without identifying him) who has taken codeine for a long time due to stomach pain. He is now terminally ill with bowel cancer. If he had not taken the pain killers and just gone to the doctors, he might have lived to a ripe old age, but now he won't. This is just one negative to this problem.

The one thing that does work for people in pain, is a multidisciplinary approach. And exercise or regular movement is probably the greatest and most effective key to any ongoing therapy for chronic pain sufferers. You don't need to be running a marathon or trying to, with a broken spine. But being active within the bounds of your disability is what is needed from all of us. Swimming in a heated pool is also a great form of exercise. If you do it often enough, your pain levels will reduce and you will become fitter and stronger, then require less medication.

Most drugs are only good for first aid treatment of pain. So not for long term. Unfortunately, people like us are on them for a long time. I have been also. But I have reduced them down considerably, just by belonging to the local gym and doing classes twice a week. And much of what we do there is simple movement exercises that a 95 year old can do without falling or causing any harm. I know this, because we have several 'very elderly' people in our group. Since I have been doing this, which has been over 3 years now, I have been so much better than for many years before. I still suffer pain 24/7 and it is high, but I have learned to live with it. I am coming up to my 58th year of having this accursed pain.

And I can tell you that medication is a false god. You get some degree of relief, then it stops working. We need to get our heads around accepting our lot, then get out and enjoy what you can with the disabilities you have.

I know this is very hard for those who have no family or friends to help them. For those people, and we have many members like them, I feel terrible and wish I could help you out. But for those who can get out to do something, even if it is in the back yard or garden, you should give it a try. Just for a bit, then go rest for a while, but keep it up a few times a day everyday, and you'll start to see improvements.

Regardless of what we all here think, the govt is forcing these changes and some of it is due to being ill informed, but much of it is needed. We will have to learn to live with it and try to do what we can to help ourselves.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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6 months 4 weeks ago #28261 by b1b2j3
b1b2j3 replied the topic: Am I right in being suspicious of, 'pain specialists'?
My first post and one as a Thank you Peter. I am maybe posting to the wrong spot...new here.

I am very active and have overdone the small area farming so now must bludge out with tv and hydro. Glad it's 34 deg. outside and all plants tucked away for summer with mulch etc... (probably why I have breakthrough agony)

It is good to hear / see a calming voice in the sea of pain we are all in. It's true, pace oneself, all medications are potentially harmful (so is double cream yum), use common sense, develop a relationship with GP, physio, chemist, emergency dept (breakthrough horrors). Research good research, ring someone (anyone) when it feels like euthanasia time, read about others pain. And always remember it may pass....
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6 months 3 weeks ago - 6 months 3 weeks ago #28279 by Johnno
Johnno replied the topic: Am I right in being suspicious of, 'pain specialists'?
Hey Nick,
Please don’t criticize our medical professionals there are as in all professions some brumby’s but there are also some bloody thoroughbreds.
We have a lot of professionals who are pain specialists and not aneasthetists if you see below a pain specialist is a profession and they do a degree in any and more of the below and they are then qualified .
I myself am lucky to have seen Dr Lnow this guy knows his stuff and can see if you are handling the medication I see on a regular basis Dr J who is ranked in the top 3 in Brissie she is incredible and has helped me to lower the message go to the noggin when she burn nerves back .

Johnno

About pain medicine - Faculty of pain medicine
fpm.anzca.edu.au/about-fpm/about-pain-medicine
The fellowship in pain medicine is an "add-on" specialist degree. Thus, those wishing to enter the field usually will have or be training toward a specialist qualification in one of the participating specialties, namely anaesthesia, medicine , surgery, psychiatry or rehabilitation medicine.

as long as I wake up alive I'm happy
Because it could be worse
Last Edit: 6 months 3 weeks ago by Johnno. Reason: Damn I forgot about darned names

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6 months 2 weeks ago #28296 by michael mc
michael mc replied the topic: Am I right in being suspicious of, 'pain specialists'?
Hi Pitto,just a short note regarding the norspan patch.Like all meds.some work and some don't.The patches worked well for me, well,thats was when the weather was cool.Iam like yourself, trying to stay in the workplace.the patch reduced the amount of capsules I had to take.I work outdoors and for some reason or other when it got hot I received a larger dose than was supposed to and was all over the place.Information regarding the patch says not to go into heated baths or saunas for that reason.also,if going swimming, might be a good idea to waterproof the patch as I found out It comes off easily.when you first put it onsite takes around 3 days to feel full effect and maybe again being sensitive me,I didn't;t feel like it lasted the full 7 days but you have got to give it a go.Anything that gives the stomach a rest is worth a go.Hope this has been of a little help.

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6 months 2 weeks ago #28302 by Trinity
Trinity replied the topic: Am I right in being suspicious of, 'pain specialists'?
I'm so glad to be back on this site. *breathes sigh of relief. Finally others who understand!!

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6 months 6 days ago #28399 by b1b2j3
b1b2j3 replied the topic: Am I right in being suspicious of, 'pain specialists'?
I actually tried to self refer to my local pain clinic. They said I couldn't and also stated, that they would gradually wean and stop regular medication taken for chronic pain, in association with my GP advice and give support around achieving this. They suggested, the overwhelming evidence is that medications, especially opioids don’t offer long term benefit but may increase pain by causing nerves to become more sensitive and in addition cause unwanted side effects the most serious being sudden death.

I found this a pretty scary idea at first, then I started researching the above further. Only been on meds for about 4 months this time (last time a shoulder replacement followed plus ceased meds). So, I obviously don't want to stop medication of any kind right now. I need them to drive to the pool every day, do my self employment edible garden, support my husband as his Carer and do my home cleaning, maintenance and finances. But,

Just before I get that final appointment for a knee replacement in about 2 years (!!!!), I will get a referral from my GP. Now how stupid is this system hey... ? I'm not waiting for 3 years tops for bone on bone agony without some form of medication.
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