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Am I right in being suspicious of, 'pain specialists'?

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3 months 2 weeks ago #28400 by b1b2j3
b1b2j3 replied the topic: Am I right in being suspicious of, 'pain specialists'?
Yes you are right to be suspicious, no you are not "right" to be suspicious. I suggest you are one of many many many. But, please try and think a little more strategically. I'd probably be a bloody angry as you if I didn't get to paddle in a hydro pool, plant things, talk in short sentences and pat my dog a lot... plus take my below the limit medications. I hope I never have another breakthrough because, when I did, I was about to eat my dishwasher! However, I am preparing for the possibility of the same shit pain sometime, eventually and I've got a few personal strategies ready.

I hope you are going okay. Everything is not running away from you......feels like it, but that is not happening.
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3 months 2 weeks ago #28401 by b1b2j3
b1b2j3 replied the topic: Am I right in being suspicious of, 'pain specialists'?
Norspan patch is great and quite wearable for gardening edible fetishists like me. It's small, stays on, picks up steam after first applied ie first patch. Just ensure the bit it's going on is not a usual sweat fountain pool... not the chest.

I find the outside of my arm pretty good. I never put it on my chest or back so I have to interchange every week arm to other arm. Please don't write telling me the rules here, I know them.

I make sure my arm is clean. I do not use anything but water... (don't shower after swimming maybe). Don't scratch and do not panic if it peels or opens a tiny bit.

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3 months 2 weeks ago #28404 by myalgic1
myalgic1 replied the topic: Am I right in being suspicious of, 'pain specialists'?
The first time I went to a pain clinic, it wasn't actually a pain clinic...just an anesthetist pretending to be a pain specialist...and he really did my head in, as well as completely stuff up my pain management regime. Thankfully, my doc completely understood my dilemma and put me back on my usual low dose oxycontin and endep regime. When her higher ups put the brakes on her, preventing her from perscribing opiates to me, I was forced to another pain specialist...believe me I didn't want to go, my life was great, my pain was being managed and I was active in the community. Thankfully, the pain clinic at Royal Womens in Brisbane is excellent, although it was a long wait to get in. For me and many others low dose opioids, correctly mananged and incorporated into a multi disciplinary health care regime, are fantastic and since being put back on them, have regained the good quality of life that the nefarious, pretend pain sepcialist had taken from me. Due to my own personal experiences with low dose opiates , I find that the current hysteria surrounding their use to be ridiculous, given that there is clear evidence, in the form of many peer reviewed medical papers, that low dose opioids do in fact, work well for some chronic non cancer pain patients. One of the concerning points to think about is that under the current pressures and misinformation regarding opioids, doctors are increasingly perscribing medications off label, to chronic pain patients. This means that people are being perscribed anti convulsants, such as gabapentin and lyrica, epilim, which is used to control epileptic seizures, ketamine, which is an anesthetic drug, and a number of different anti depressant medications. The general idea behind this is that these drugs are not addcition forming, but what isn't commonly discussed, is the horrendous side effects these drugs can have on people...some of which that are far worse than side effects of opioids.

I really feel for you in the situation that you're in. I was a self employed sign writer for years and worked full time, while being a single mum to my lovely daughter and I know that the pressures of having to be fit enough to work, as well as care for someone, when you, yourself are in stupid pain, is a nightmare at times. Please don't be scared of the meds you've been given. If you work alongside your doctor and your physio and tell your doctor the minute you find your dose isn't working for you, then you won't get into trouble with your meds. I can't give you medical advice, 'cos I'm not a doc, just a pain veteran, but if you're concerned about becoming too dependent on your meds, you really should talk to your doc about as soon as you can.
PS: I've been using low dose opioids now for over fifteen years and I ain't dead yet. Or addicted. Just happily dependent.

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3 months 2 weeks ago #28405 by myalgic1
myalgic1 replied the topic: Am I right in being suspicious of, 'pain specialists'?
Cats. I have cats. And as of Monday just gone, my daughter's beautiful little kelpie, Fly. I would've gone mad years ago, if not for my pets, my garden and my crafty thingummybobs. My pain clinc appointment was last year and as a result, proved myself to be a reliable and sensible user of low dose opioids. What screwed me up was a forced vist to someone who really wasn't a pain specialist, but who had a massive ego and believed he could cure the halt and the lame, by simply applying wishy washy, 'you can do it - turn that frown upside down', platitudes and a bit of, 'midnfullness'. I could describe him in far more detail, but I reckon I'd be booted out of the forum for bad language, so I'll leave it at that. I regularly have flare ups, because I refuse to literally become a part of the sofa, but I do pace myself and switch activities to compensate.

I'm going really well. Thanks. Please don't eat your dishwasher..they taste awful. Hope that you're going okay, as well. Take carex
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3 months 2 weeks ago #28406 by b1b2j3
b1b2j3 replied the topic: Am I right in being suspicious of, 'pain specialists'?
Phew, I am glad to hear you are okay. Please keep those strategic ideas flowing. As I have said twice today... Everything is not running away from you.. .............Bron
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