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Am I right in being suspicious of, 'pain specialists'?

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6 months 2 weeks ago - 6 months 2 weeks ago #27857 by Peter
Peter replied the topic: Am I right in being suspicious of, 'pain specialists'?
Well it seems as though you are already living a fulfilling life with all that you have going on. I only have one thing to say to you on that, is to be careful that you don't over do it. Remember, stress is the one thing that sends our pain levels through the roof, instantly. And it may take weeks to get it back down again. So be careful you don't overload yourself.

Good for you with caring for your autistic grand daughter. That would be both challenging and rewarding.

I can't do gardening. It's on the ground. You know, that place that is 20,000 feet below me and out of reach. For me to get down there to do anything, I need something to hold onto, to get down there. Then once there, I only have a short time before my knees and back start screaming at me, so I have to then struggle to get up. Suffice it to say all my gardens are full of weeds.

As for the JP work. It is very interesting and often times challenging. Doing restraining orders is an interesting one. The media tells us that it is only men who abuse women in Australia, but believe me, different story when you sit in court. Women are equally as abusive as men are. And they are just as dangerous too. The media are lying!
Like all people, I too have a bias, but it is toward children. So I will do all I can to protect them.
And I tell all the people I know in my district to not get done for drink driving or any traffic offense that will see them in court, cos they could be in front of me. Hehehe!
Actually, you get some very tragic cases that come in. Just like here in this forum, we see some very sad people who have inadvertently broken the law. They don't mean to do bad things, just get caught up in the moment. So when they show remorse and give a good explanation and mea culpa, it is hard to slap them with a hefty fine. And yes, we have all their history in front of us as well, so if they have a long history of doing these things, then their mea culpa is ignored somewhat.

EDIT: I didn't say that right. We don't have sad people here on the forum breaking the law. Sheesh! I had a bad night last night.
No, we have some sad stories and people whose lives are upside down. This is the same in court with some people who have found themselves on the wrong side of the law.
Right, I hope that sounds a bit better!


I joined the Heart Moves class at the gym a couple of years ago. Best thing I ever did. I go there twice a week for an hour each time. They do mostly movement exercises, which helps with all the joints, ligaments and tendons. Plus some other work for muscles and lots of walking to try to get some cardio going if you can walk fast enough, which I can't. It's actually pretty full on.
So for me to get cardio, I carry my wood to the house each day instead of using the wheelbarrow. By the time I get to the house, I am puffing away and the ticker is thumping away in my chest. Good exercise!

Well, I think you are just as strong as me. Don't discount your strength. And it is okay to come here and have a good ol guts-ache to get the crap off of your chest. It's amazing how helpful it is to do that, then you can go about your day.

Take care!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
Last Edit: 6 months 2 weeks ago by Peter.
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6 months 2 weeks ago #27861 by myalgic1
myalgic1 replied the topic: Am I right in being suspicious of, 'pain specialists'?
well done, Peter...

you gave me the first laugh of the day with your, 'sheesh'! I agree completely with what you've said and I also agree completely that women are just as guilty of performing acts of domestic violence as men. My Dave says, "Women are nasty and men are mean', and I think that pretty much sums it up. Sadly, irrespective of gender, too many people are being hurt by their partners and too many children are growing up with complex trauma as a direct result of being around spousal abuse. I believe the lobbyists made a big mistake when they decided to highlight the plight of women affected by domestic violence, as that pathway has led to thousands of abused men feeling alienated and without help and understanding from their community. The campaign should have focused upon violent acts impacting upon people, not just one group and I say that as a survivor of the most awful physical and mental abuse.

I wouldn't worry about your weeds...a weed is simply a plant that is in the wrong place :) but just do as you do, knowing your limits...not that I'm trying to teach you to suck eggs or anything! We all find different coping mechanisms, some more helpful than others. I can't explain to you how much better I feel in myself, after having speaking to you about my plight. Today, for the first time since I received that damn letter, I have felt happy and even ventured out for a mooch around Mitre 10's garden centre, (coming home with a box full of plants that will in all probability, die of neglect before I get around to planting them). Dave says thank you to you as well. I showed him how you responded to me and he was well impressed. Seriously, the man deserves a medal for all the trials I put him through....

You've made me feel much better.
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6 months 2 weeks ago #27862 by Peter
Peter replied the topic: Am I right in being suspicious of, 'pain specialists'?
You and Dave are most welcome!

Just to touch on that topic of DV for a bit more. There have been a few studies done recently, but one bad study done on behalf of the govt. Two of the studies were done by universities, on of them Murdoch in WA and the other I think University of Sydney. Both these studies found that women who suffer physical abuse at the hands of their male partner add up to 1.6 or 1.5% of the population, depending on which study.

Then just last week the lunatic left brigade published the results of this supposed epidemic of sexual assault women are suffering in Aust universities and their own loaded and poorly done survey found that even in universities only 1.6% of women are actually suffering from sexual assault here in this country.

Australia does have a problem with Indigenous people, but in general, it is a pretty peaceful nation and there is not an epidemic of anything much in this country outside of boozing and blind bloody minded idiocy by both sexes.

There are a lot of lies being told by the media today and people really should stop listening to it. There is a lot of DV occurring that is not acknowledged and you have pointed that out. Men suffer and are not cared for, and female perps are not being punished and/or retrained to stop their violent behaviour.
And then there are all these children who are stuck in violent homes!

As for my weeds, I am certain they feel very happy living with me. At least they know they will not be murdered anytime soon!



Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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6 months 1 week ago #27864 by myalgic1
myalgic1 replied the topic: Am I right in being suspicious of, 'pain specialists'?
Ha! Trust me to be one of the one percenters...story of my life! I believe that alcohol has massive negative impacts upon our society and would be quite happy to see the stuff outlawed or at least controlled better, but then, we all know that prohibition doesn't work and the war on drugs is simply a massive waste of time and money.

may the weekend treat you well,
Bec

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5 months 3 weeks ago - 5 months 3 weeks ago #27909 by myalgic1
myalgic1 replied the topic: Am I right in being suspicious of, 'pain specialists'?
I would like to post an update on my visit to the pain clinic at Brisbane Women's Hospital on the 23rd.

Peter, your suggestions of the questions I should ask were spot on and seemed, initially, to put the pain fella on the back step. He asked, "Well, what are you doing here?", and I replied that I didn't know, that I was expecting him to tell ME why I was there. He looked perplexed for a minute, then read my notes, (from which my GP had omitted the fibromyalgia diagnosis, as well as the osteo arthritis, spondylosis, scoliosis, spina bifida, ptsd, generalized anxiety disorder, complex trauma and depression). After speaking to Dave and I for an hour, he was happy to , 'release the hand brake', on my doctor and allow me to continue my current pain management regime without further interruption. The only warning he gave me was that due to my age, (forty eight), if I continue to use oxycontin for an extremely long time, I may suffer more serious side effects...loss of libido being one I currently have, (although that has more to do with my utter and extreme dislike of sex in any form, due to abuse, more than the oxycontin, in my humble opinion). He also explained in further detail, the unrealistic and harsh penalties that GP's face, should they incorrectly prescribe opiates and I have a better understanding now of why GP's, younger ones especially, are reluctant to treat chronic non cancer pain with opiates...especially as research has shown that only twenty five percent of chronic non cancer pain patients have symptoms that respond positively to opiate treatment without causing other health issues.

I do feel very strongly that people at the beginning of their chronic pain journey should be educated more on chronic pain syndrome...how to deal with the grief, anger, depression and anxiety and also how to deal with un - supportive family and peers; the psychological effects of persistent pain are not being fully addressed and I feel that this is something that multidisciplinary pain clinics could do more about.

So, a good result for me, after all my hysterics and extreme anxiety. I hope that other people are as kindly treated as I was....
Last Edit: 5 months 3 weeks ago by myalgic1.
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5 months 3 weeks ago #27910 by Peter
Peter replied the topic: Am I right in being suspicious of, 'pain specialists'?
Hi myalgic1,

Great to hear you had a good result. And it is always a good thing to be in control over your own health, bringing your notes and asking questions. These people are there to provide a service, NOT to tell us what to do.

Also, his 25% figure is a load of bunk. Did he give you any sources for this figure? I wouldn't mind betting this is something these people pluck out of their left ear, because someone on some other country canvassed/surveyed openly anyone on the internet or actually targeted a small group. And it may not have occurred here in Australia.
So far out of all the years I have heard and read stories from people who suffer pain, it is the overwhelming majority who find Opioid meds are the ones that are the most effective, especially when they are in low to moderate doses and taken in conjunction with other therapies, such as exercise regimes.
Sure if you want to load up a CP sufferer with 2 or 3 different types of Opioid drugs, plus give them a bucket load to take, they will not only become addicted, they will sufferer a crap load more pain too, as their body fails to deal with this overload.

There are a lot of people today questioning this idiotic position that Opioid meds are not that effective for non-cancer chronic pain. There is too much anecdotal evidence out there by way of millions of sufferers, who live with these drugs and most of them still function because of these drugs.

I find it interesting all your ails and issues were not listed on the paperwork. That would have set me off!

As for your PTSD and lack of sexual desire, none of those will be improved much with Opioid drugs. Those, you'll have to get around using other methods and therapies. These drugs we are talking about do often tend to affect us mentally quite a lot. I know they get to me if I am on strong doses. They can be depressing!

Anyway, thanks for letting us know how you got on and I wish you well.


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
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