Good luck Wednesday!
Ask every question possible, I kind of winged it. I think I made the decision on a very intuitive level but I have a lot of trust in my specialist.
In the end the decision is a very personal one because there are no gaurentees that it will work.
One thing to consider is your general pain levels. I'd only had a couple of flares in the month leading up to the first needle and I think it made a huge difference to my recovery. When you're not already worn out it's easier to deal with.
I'm very glad I sat down with my boss and made a mini "return to work" plan. I have next to no sick leave but a whole heap of rec leave, so we booked a couple of rec days after and I needed them. I did go back the Monday after and did light duties but it was too much too soon, we chose to book another couple of rec days in. It was very reassuring to have a plan.
Still doing well. Panadol only. I'm much more active around the house and can walk further and stand longer each day.
I've just been reading about the prolotherapy today for the first time. My DHEA levels came back as being low in my blood tests which is what brought me around to the this treatment... in a very roundabout way.
So I interested in your experience and how the outcome is going. I'd be thinking of this purely for my sacroiliac joint stiffness, not the arachnoiditis at my L5-S1.
I've yet to check out where there's a practitioner on the north side of Brisbane that does this procedure.
Oxy, how did your appointment go today? I hope it all went well for you.
Can't say I know much about the "spider-itis" (please excuse the word play, but that's how I remember the name. Hope I don't offend.) I do remember you posting a while ago that injections and arachnoiditis aren't a good mix, I'd be having a big chat with the Doc about that one.
If it sorts out the SIJ pain, that's a blessing in the long run.
The inflammation pain I had prior to the injection is gone. I still have pain, but it's almost easy to ignore, which sounds really strange. lol.
5 years 3 months ago - 5 years 3 months ago#14106by di
di replied the topic: Prolotherapy
Can't say I know much about the "spider-itis" I love that Brook, it has to be up there as one of the crappiest names for a condition... I mean every single person automatically asks; "Oh! Are you scared of spiders or something?" ...and you can't blame them either.
I honestly doubt if my neurologist will entertain the idea of Prolothereapy but hey... it's another possibility for the SIJ pain at least. All I can do is put it on the table with supporting facts and documented trials for him to reference.
Personally, I'm not convinced myself yet and I'm having trouble locating a Prolotheraphy practitioner also with MD qualifications anywhere in Brisbane. There's lots in Adelaide but its a bit far from Qld.
I'd like to go and have a consultation first to find out more about the entire procedure and the administrator.
It concerned me to find a weekend course being done to learn how to preform the procedure. Granted, the course was only open to qualified allied health professionals and MD's but that's a very short course to learn a rather invasive technique, IMO.
Anyway... that's what checking these things out is all about I guess. It's really encouraging to hear you're getting good results Brook.♥
Lots of the feed back I've read are mirroring the exact same outcomes. Apparently the site of the injections seem more painful than the previous pain area needing treatment.
Thanks for keeping me informed because I am very keen to learn how you're going with it Brook.
Hugs to you,
A little off topic, but the spider-itis name comes from an amazing man I met a few years ago. He would come in to work absolutely going beserk on a regular basis. It was a little intimidating (in fact my work mates all refused to deal with him) any way, after a few chats with him, I found out he had an arachnoid tumor on his brain that messed with his ability to control his voice and facial expressions so he seemed to be going troppo when he was actually calm and chilled out. He was the nicest guy!!! we got pleanty of looks because he'd greet me by yelling at me, and I'd respond with a cheery hi and a big smile. I did have to tell him that he had to tell me if he was upset with me, I never could tell the difference (I don't think I ever upset him). He originally told me he had a spider on his brain and I figured it out from there - and from there on we both referred to it as the spider tumor. He taught me a big lesson to never judge a book by it's cover, had I stayed scared like everyone else I would have missed the pleasure of chatting with a really great guy.
The following user(s) said Thank You: Mary, Oxytotem