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Spinal cord stimulator implanted .

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1 year 7 months ago #25619 by grappers
grappers replied the topic: Spinal cord stimulator implanted .
Hi Carissa,
When they first implant the leads, it's to address where the pain is experienced, so if they were implanted for leg pain, then that is the nerve area targeted with the leads, mine was both back and legs, the problem was getting the two leads to cover both areas, while it covers my legs well, I get some relief in the very lower part of my back, but not the pain higher up, they have changed the porgramming lots of times without success, perhaps if a 4 lead version would have worked out better, but that option wasn't mentioned, being public costs come into the equation to treatment.
In short the leads can only target the nerves in the area they are placed, and will not target all the pain.

DON
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1 year 7 months ago #25621 by bluerob
bluerob replied the topic: Spinal cord stimulator implanted .

grappers wrote: Hi Carissa,
When they first implant the leads, it's to address where the pain is experienced, so if they were implanted for leg pain, then that is the nerve area targeted with the leads, mine was both back and legs, the problem was getting the two leads to cover both areas, while it covers my legs well, I get some relief in the very lower part of my back, but not the pain higher up, they have changed the porgramming lots of times without success, perhaps if a 4 lead version would have worked out better, but that option wasn't mentioned, being public costs come into the equation to treatment.
In short the leads can only target the nerves in the area they are placed, and will not target all the pain.

DON


Don, this is exactly what happened to me, except my pain is generally lumber (the constant pain) with an ocassional knife stabbing feeling in my left lumber when I go to stand up. I ocassionally get the sciatica pain, in my left buttock which stops at the knee.

I'm hoping that the 4 lead device will sort me out. My neurosurgeon and PM dude is freaking about my medication intake (up to 660mg of morphine based per day). I'm off for another detox program soon, more surgery or the 4 lead device. Waiting to hear....
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1 year 7 months ago - 1 year 7 months ago #25624 by Carissa
Carissa replied the topic: Spinal cord stimulator implanted .
Hi guys

Thankyou for your responses, you won't believe how this problem has been sorted over the past week !

On Sunday night I woke at 11pm with intense chest pain and vomiting and ended up in emergency 7 hours later as nothing I done would stop the pain and I was actually scared I was having a heart attack. Three days of tests later I had surgery to remove my gall bladder and gall stones the bladder was a mess and I had pancreatitis.

The miracle above all is that my back pain has reduced by at least 80%, it seems it's been the gall bladder causing the intensified back pain for the past six months which I didn't even know could happen. I've come home from hospital today and am feeling very hopeful that once the battery is moved I will be able to continue my life with only 20% pain in my leg and back and that I can handle.

Thankyou for your responses I really appreciate your answers when you are all going through so much of your own pain.
Last Edit: 1 year 7 months ago by Carissa.

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1 year 7 months ago #25625 by Peter
Peter replied the topic: Spinal cord stimulator implanted .
Wow, that looks a bit like a pot of gold at the end of a hair raising roller coaster ride. Sorry to hear that you had to endure such a traumatic experience, but it seems it all happened for a very good reason. And now you have a good prognosis. Good for you!

I do hope your life turns around now. It should do if you want it too.

Please keep us updated as you improve!


Petere

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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1 year 7 months ago #25626 by Johnno
Johnno replied the topic: Spinal cord stimulator implanted .
Hi Carissa,

What a great result I am just grateful that it was found in time .

Johnno

as long as I wake up alive I'm happy
Because it could be worse

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1 year 4 months ago #26612 by Carissa
Carissa replied the topic: Spinal cord stimulator implanted .
Hi Guys

I'm looking for some advice, my last post on here I was so excited because my back pain had reduced dramatically unfortunately it's all resumed and is giving me hell nearly 24/7.

I've tried osteo, massage, walking, yoga, meditation, anti inflammatories everything works for an hour and then it's back. I have an extra vertebra in my spine which means there is no space and the bones compact, there is nothing that can be done to fix it and even if they would let me I don't want to have the Stim changed to cover my back because I need all of the cover for my leg.

It's to the point where my lower back hurts constantly with a burning aching pain and I just want to crawl in bed with a heat blanket on me and cry but I still get up and go to work each day it's just that it's getting harder and Ive been through 11 surgeries to fix my leg pain only to be in the same situation with my back.

My SCS only covers my leg and doesn't go to back at all, what I'm wondering is, do any of you know if you can have cortisone injections if you have an implant ? I'm so lost as to what to do and because I was a public patient I don't have ongoing access to the pain specialist that done my implant surgery. Because my implant was only for my leg and nothing to do with my back I would have to go back on waitlist and wait probably 12 months. I will go back to my GP who is great but I just wanted to get opinions from you before I mention the cortisone to him.

Thankyou in advance I hope you are having as good of a day as is possible x

"Knocked down but not out, crying but still breathing, broken but brave. I'm still strong enough to survive this

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