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Doctor suddenly stops after 9 years???

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2 years 1 month ago #24403 by Newton1!
Newton1! created the topic: Doctor suddenly stops after 9 years???
The title is possibly incorrect but I can't think of much better at the moment.

NSW Health has given some sought of mandatory guidance to reduce opiod medication in non cancerous chronic pain patients. Although this says produced by Brainman, it is a message from NSW Health.


Suddenly my Doctor out of the blue has decided I need to come off opiods altogether (Chronic Back Pain following back surgery - 9 years on), What frustrates me is that I have asked for years for an alternative that doesn't make me as dopey as I am now, my Doctor and Pain Specialist have not had a better answer then and don't now. I understand they have presure from NSW Health but, if you read the studies, the message from the video is not necessarily 100% as written in the studies (happy to provide copies upon request)

So my question is, I come off Fentanyl which is great, where do I go next?

I can't have more surgery as I had meningitis from surgery, I have foot drop, I have 24/7 pain etc etc etc you all know the story, What does a person do next? I have done Natural therapy to death, physio etc been there.

P.S I have tried 2 different GP Dr's since this started and neither would accept me as a patient as I was on Opiod medication.

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2 years 1 month ago #24404 by grappers
grappers replied the topic: Doctor suddenly stops after 9 years???
Hi Newton1! and welcome,
Yes well the people who are doing the right thing are being punished for those few who abuse the system, as for what to do next, in my case being intolerant to pain medications that help, my pain specialist offered a spinal stimulator, I have also had meningitis, but in my twenties, further ops to repair damage can not be performed, not that I would chose that option, as after each surgery I came out worse.
The foot droop, have you enquired about getting fitted for a splint to support the foot and ankle, I was custom fitted one as I kept tripping on that foot getting caught on little bumps and humps, cause of permanent nerve damage in my back, the same leg has no external feeling, and suffers edema and muscle wastage.
The stim has helped with the leg and foot pain, and some of the lower back pain, but it only reaches a certain height, it has been a bit of a trade off, but life has been better pain wise since the implant, as well as sleep, ask your specialist or GP whether this could be an option, it involves a 7 day trial to see if it helps, where only the leads are inserted into the spine, if it does then you have the option for a final implant, the trial it not invasive surgery, doesn't require stitches, just a bandaid after removal of the leads.
New ones on the market have improved a lot, some you don't even know are running, except for the pain
being reduced, hope this helps.


Don
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2 years 1 month ago #24405 by Newton1!
Newton1! replied the topic: Doctor suddenly stops after 9 years???
Thanks Don,

I had gone for a second opinion to specifically talk about a certain high frequency stim that still lets you drive etc. He didn't believe i was a suitable candidate and couldn't tell me why just "my feeling after 2 years with this stim" wouldn't do the trial. Instead he reported my GP and I to NSW Health as I understand it just now, for Fentanyl use, thus the interest from NSW Health. I was a uni qualified professional man who has held many many senior roles in society, wore a suit to our appt, 2 good kids, married 20 odd years etc, I know that doesn't stop me being a junkie but it kinda suggests that I should be given the benefit of the doubt until proven otherwise.(as should all human beings, in my opinion)

I appreciate the welcome and love reading through the forum for advice and tips thanks again Don and all who contribute.

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2 years 1 month ago #24406 by grappers
grappers replied the topic: Doctor suddenly stops after 9 years???
Hi Newton1!,
Have you looked at getting into a pain management clinic, most major public hospitals have one if you can not afford to see a private one, in saying private you have to do a lot of research, as not all clinics are what they seem to be, public ones are run for patients best interests, it was through the one I attend that the stim was made available, all you need is a referral from your GP to get into one, the downside is, because they are public they have waiting lists to get in, once in you are well looked after.
I had the only opiate I can tolerate refused to be dispensed by the drug approval authority, it all stemmed from a mistake made by the chemist, they issued the script in my wife's name instead of mine, they then had to fix the mistake, which showed up on the medicare computer as a double up of one script, I was found guilty of abusing my meds, it took lots of letters and phone calls to prove that, that was not the case, the chemist had to own up to making the mistake to get my meds back, it was up to me to prove my innocence, which is wrong, law says your are innocent until proven guilty, seems not so these days.

Don

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2 years 1 month ago #24407 by Newton1!
Newton1! replied the topic: Doctor suddenly stops after 9 years???
Yes thanks Don, I am on a waiting list for one atm.

Fingers crossed I get in before I go insane.

I have a similar story, it seems the cr#p flows downhill and we are at the bottom of the hills these days instead of being the reason they built the hills

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