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NORSPAN PATCHES

  • braddo1972
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5 years 6 months ago #13322 by braddo1972
braddo1972 replied the topic: NORSPAN PATCHES
huh

life can be cruel I will get up an win.facet
joint deseise , bulging discs , mechanical pain neuropathic .

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5 years 6 months ago #13325 by weather
weather replied the topic: NORSPAN PATCHES
OK has anyone tried the temgesic tabs??? ANYONE ???? for break through pain? I have not heard one person mention that they have tried them and it mades the patches last the full 7 days. The reason I'm saying this is because when I took/wore the 3 day duogesic (fentanyl) patches they DID NOTHING but I wasn't given break through pain meds for fentanyl. Which some swear by/

Honestly I think it would be terrible if you didn't try the TEMGESIC before you moved on to a new med and went through hell when all you MIGHT need is a small top up which helps the patches work SO much better and last the full 7 days. They must make a massive difference because I forgot to switch my patch on day 7 TWICE.

**FEE this is where we come into everything works differently for everyone, my reaction that manifested was 5 days straight with no sleep but this week I have just experienced the exact same thing, if not worse and now I'm wondering if it was the Norspan, BUT because it's synthetic, my Dr. took me off it immediately. Unlike Tramal (tramadol) which is basically very similar to the make up of a SSRI anti depressant I can't touch that either, but Norspan is NOT in that catergory. So that's why we tried it. It's like that new med they are showing on the main page under Latest News called Palexia Sustained Release. I know immediately now from reading up on medications for years that I will not ever be able to touch it because it's made of two actions, one half is a NRI similar to a (SNRI) Cymbalta, Efexor XR, Pristiq, FOR ME ONLY because I can't take TCA's, SSRI's, DNRI's, NRI's and SNRI's and Milnacipran is approved for fibromyalgia.

SO Fee just keep an eye on it because sometimes these things do pass but sometimes they don't, because Temgesic is the exact same drug I don't see why you Dr. won't review your situation in the future if the side effects clear up but the pain persists. He'll know what to do for you!!!

Good luck and keeps us in the loop about how you're going on it.

I react to 80% of medications very differently to others, DO NOT EVER let one one MY stories EVER stop you from trying something. We are all so different. It might be the key to relieving your CP. May your trip on The-Med-Go-Round be a short one!

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5 years 6 months ago #13331 by BIY
BIY replied the topic: NORSPAN PATCHES
Thanks Weather for that info.

Sorry to hear that you have been affected by the depression this week. For me personally I can 100% put it down to the Norspan because it has even affected my personality so much that my husband has really noticed it (and actually called it "scary" to see how much it's affected me in mood swings).

As it is the only medication so far that has made a jot of difference to the jaw pain, I'm going to give it a bit longer to see if the new increased dose will settle down. Thank you for your concern for me to keep my eye on it and you are so right...depression and mood swings caused by medication side effects are a terrible thing because they are beyond our ability to control as the stimulus is coming from the chemical reaction from the meds.

Hoping that your cloud lifts soon.

Best wishes,
Fee
The following user(s) said Thank You: weather

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5 years 6 months ago - 5 years 6 months ago #13339 by weather
weather replied the topic: NORSPAN PATCHES
Hey Fee,

I hope you have a Dr's appt this week. I know for me that mood swings are a very dangerous sign, but remember everyone is different and I didn't get that from Norspan, just insomnia like now so I'm wondering if it was the Norspan. If your partner thinks they're bad and his noticed a BIG change in you, well maybe you should bring your appt forward. When I get med related mood swings I don't notice them at first until I have it pointed out to me. Good luck and it's great that you can recognise that symptom because that's one that always gets past me. If it does pass for you which I hope it does, did you mention the Temgesic to your Dr? The reason I say this is because instead of him putting you up to the 20mg patch if this serious symptom does pass you can use the tabs as needed. From what you've told me you're an opiate naive person and started you on a low dose which is excellent.

I'm not actually depressed I've just got terrible insomnia, which in turn flares my fibro so then I can't sleep. I'm getting stressed though and it then becomes a vicious cycle. I'll feel like it's had it's fair run with me and now I'm utterly exhausted, I slept from 4AM Sat until 4PM yesterday arvo but after being up for 3 days straight, then before that another 3 days without sleep but last night I was sleepless again. I was ok at first and was just processing my photography/editing away and being productive but by last night I couldn't even see the edit buttons, so I tried TV and couldn't concentrate on anything. Surprisingly though I'm getting anxious but my mood is OK, insomnia is something I've had since I was 15. This is just a really bad bout that's now hitting around day 9'ish, I've lost count, LOL. Your Dr. is raising your dose slowly which is great Norspan 10 is roughly equivalent to approx 10mg of Oxy-Contin or 20mg or Morphine. So he's looking out for you,

I haven't had the warning bells go off YET and I know them well, I'll brave some anti-histamies tonight because I'm on clonazepam they don't mess with my RLS. After I had a sleep study done years ago the sleep specialist knew exactly what I had been trying to explain to GP's for years and put me on REPREVE.( Ropinirole ) which although it made me projectile vomit for 3-4 months it worked so well I didn't care and it boosted my mood too, but I lost way too much weight and got switched back to clonazepam (Rivotril/Paxam) which works even better for RLS.. I've since found out about the things Repreve can do to people and I was on it when it first came out and it wasn't on the PBS and cost me an utter fortune, just like Lyrica and Modafinil have in the past.

If none of that makes sense, I apologise due to lack of sleep :)

I react to 80% of medications very differently to others, DO NOT EVER let one one MY stories EVER stop you from trying something. We are all so different. It might be the key to relieving your CP. May your trip on The-Med-Go-Round be a short one!
Last Edit: 5 years 6 months ago by weather.

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5 years 6 months ago #13360 by BIY
BIY replied the topic: NORSPAN PATCHES
Sending you some sleep vibes Weather zzzzzzzzz :)

My GP is only prescribing 2 patches at a time so he is keeping a close eye which is good. He has told me he doesn't want to go any higher than 10mg because of my sensitivities and I fully agree with him there. Those trials of all the other meds I have tried thus far was a nightmare ride for me not just from mood side effects, but also a range of horrible physical side effects too. I never had RLS before the darn Lyrica gave it to me as a now irreversible side effect back in 2011. (I seem to get paradoxical reactions to meds...even Lyrica and Endep, which makes most people sleepy, gave me the type of insomnia you are describing above). Most other doctors and specialists have had to give up the medication approach with me for the same reason which is why I'm hanging onto to riding through the Norspan hoping it will get better re side effects....and also why I'm reluctant (and I know my GP would be too) at this stage to introduce another one such as Temgesic at the moment til we've given this a fair trial and stabilized first.

I am also on Paxam, but am going to try and wean off when/if the Norspan stabilizes cos have built tolerance and dependence on it now. I found the antihistamines still exacerbated my RLS when combined with the Paxam so I am glad that combo works for you (yes; we are all different!....such a pity they can't find a 'one fits all' solution dammit!)

I can so empathize with you from personal experience about the viscous cycle lack of sleep brings with it including increased pain and decreased coping skills.

More zzzzzzzzz's coming your way,

Fee :)

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  • Collins
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5 years 6 months ago #13504 by Collins
Collins replied the topic: NORSPAN PATCHES
Hey

I thought Norspan was great even though I felt sick for the first few days.
One problem is that you ahave to move the patch around as you cannot put it on the same spot for six weeks - I liked sticking it directly onto the painful spot

Problem was that I got used to it and it became ineffective after a few weeks even when I went to stronger dosages.

My pain specialist has now put me on targemine (I think thats how its spelled/ pronounced) which is a tablet substitute.

I still take lyrica and heavy dosages of Tramal and am about to undergo cortisone injections to the neck and spine

I will see how it goes, I can write again at the moment so you will see me here again for a few days, until I start my new trials in a few days at which point I will become absent again due to being off the planet and dribbling all over myself.

It sucks but its not like I have a choice , I'm either drugged out of my brain or in severe pain - I find alternating between both is the best choice, but both disable me.


Anyway - Hello to all my friends here as well - the list is too many to name some - I have missed you all greatly
Hope your all doing well!

Love and Regards
Jamie

One of the silent voices, supporting CPA

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