5 years 4 months ago - 5 years 4 months ago#13009by Eliza
Eliza created the topic: Ketamine
I just found out my pain specialist has asked my insurance company for permission for a Ketamine infusion for pain relief and to reduce me off my opiates.
I am very worried I will be left with no pain relief and be left to suffer. If this is the case I will be talking to him about it before I agree with going through with it. He also told my Pain Psychologist that I said the spinal stimulator is out of the question and that was not the case. I said my concern is that I live on my own and I have nobody to care for me without putting my working family out. I lived with them for 2 months after my spinal fusion and I helped out with rent plus I had to pay my mortgage on limited funds that I was paid.
Having another operation is very worrying to me and it's very hard to make that decision knowing I will be dependent on someone again. I've always been an active and independent person so this is a huge DECISION to make!
Anyway re Ketamine infusion: months ago I was told I would have to be assessed by a Psychologist before this would happen, maybe this won't be the case now that he has asked for the infusion, I'm not too sure...
Were you aware of these conversations between your specialist and the insurance company prior to them happening?
If not, you need to have a talk with this doctor and ask him to please inform you of the conversations he is planning on having with other specialists or indeed the insurance company. I know somewhere in the paperwork they would have gotten you to sign some obscure document giving permission for the doctors and the insurance company to discuss your issued behind your back.
However, there is one thing many of these people forget about and that is the issue of respect for the patient.
And on another note, do not agree to anything at all, be it a procedure or a new drug, until you have had plenty of time to research it, and if necessary get a second opinion. These doctors and insurance companies will tell you all sorts of things to get you to comply, but at the end of the day, IT IS YOUR BODY. They cannot force you to do something that you believe will harm you and you believe is dangerous.
I don't know anything at all about Ketamine, but there others here who can assist you with that. But the fed govt is pushing health professionals to try and reduce the intake of Opioids in our community, which may be a factor in your case. It may not too.
You need to ask your doctor WHY, if you are not sure what is going on? Don't be afraid to speak up and ask. Write down a list of questions and take them with you on your next appointment and don't let him do anything till he has answered your questions and you are satisfied.
I don't know your specialist. He could be a good doctor, but maybe not so good when it comes to communication. But please make sure you listen carefully, in case you miss something he says. I don't know about you, but after being on medication for many years, I do not hear everything that is said to me and I often ask them to repeat themselves, or I simply forget.
It is difficult to remember everything they say, so you make him do his job properly and respect you by communicating better!
I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)
So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)
When the old forum comes back there was a thread called 'ketamine infusion for chronic pain - does it help?' I had a ketamine infusion last week. It was a really horrid time for me and may have only had minimal effect. I'm glad I did it just because it was really the last thing on my 'treatments' list and now I just have to start to accept all of this. If I hadn't done it, I'd always have been wondering if I was keeping myself from having relief! Definitely do your research. Take someone with you and try and have someone there first thing in the morning each morning for you (for me, this was the time it was really overwhelming for me), get something for anxiety, don't expect to be able to read clearly or feel like eating. Take something lighthearted and hilarious to watch on a laptop or something with you. I could concentrate enough to watch a full season of 'new girl' ah, it's so funny it really did help pass the time. Xx
Oh and I didn't need psychological assessment to go ahead with it, but... Even for a person of relatively stable mind, this drug made me terribly emotional and upset!
Hmmm you might be left without pain relief after - I was sent home with no painkillers whatsoever and was just dying, but went to my GP and got a non-opiate painkiller (slow release tramadol) which is working quite well for me. Previously, no weak painkillers would have any effect whatsoever... Gosh I hope all this makes sense - I'm so tired and typing on my phone!
I do wish that we had that old thread now because there were people in there who had received benefit from Ketamine. Everyone reacts differently and I think that, from what I have read and heard, a positive outcome is more likely than the experience that Kate has been unfortunate enough to have had. I personally know of a lady who has Ketamine infusions every 4 months and swears by them.
However, your medical team needs to keep you informed as to what is going on and you need to stress that to them. Your care is a "team" thing, not a unilateral decision making process!
Not every day is a good day, but there is good in every day.
"“It’s delightful when your imaginations come true, isn’t it?” ― L.M. Montgomery, Anne of Green Gables
I agree that you should be being kept in the loop about your treatment. Strange that the specialist wrote to wc without letting you know...although maybe a sign of a proactive one too? Usually they don't go to that trouble so easily. I wonder if he is perhaps looking out for your needs and knows how much prodding and time wc needs before they take some action (they certainly do down here ). Perhaps he is trying to get the ball rolling???
Wc is so different down here so it is hard to know what the processes are like in NSW so I only have my own experience to go by.