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LYRICA to the PBS

  • Collins
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5 years 4 months ago #13505 by Collins
Collins created the topic: LYRICA to the PBS
Great news that Lyrica is about to go on the PBS soon


There are so many of us CPS that benefit from taking Lyrica that its about time!
I have been without it for so long due to its expensive costs but it helped me better than any other nerve type medicine


So a big thankyou to the Federal government for making this happen for us all!

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The following user(s) said Thank You: kazfromtas

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5 years 4 months ago #13514 by BIY
BIY replied the topic: LYRICA to the PBS
Hi Jamie,

Great to see this is going to be really helpful to you.

:-) Fee

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5 years 4 months ago #13515 by Peter
Peter replied the topic: LYRICA to the PBS
Hey Brother, where the heck have you been?
We missed you!

Glad to hear from you again and yes, it's about time that people can access this drug at a reasonable cost. It is going to help so many people and i certainly hope you can get back on it when it is put on the PBS.

Take care Buddy and don't stay away so long next time. Okay!


Peter

I wish the ring (this Chronic Pain) had never come to me. I wish none of this had happened. (Frodo Baggins)

So do all who live to see such times. But that is not for them to decide. All we have to decide, is what to do with the time that is given to us. (Gandalf the Grey)

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5 years 4 months ago #13528 by kebsa
kebsa replied the topic: LYRICA to the PBS
this is great news, i had been on lyrica and it worked very well but i was put back on tegretol for funding reasons. tegeretol has generally been ok but i do have more bad days with severe phantom pain taht had been very infrequent with lyrica. if i take the dose of tegretol to reduce the phantom pain more, it makes me queasy so i will be pleased to get lyrica back again as i had no noticable side effects from that- tegretol also makes me more sun sensitive too i i sunburn very easily on it!- thanks for the heads up i will ask bout it

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5 years 4 months ago #13529 by Collins
Collins replied the topic: LYRICA to the PBS
Hey Pete

I missed everyone here too, just have been through hell trialling different meds and pain levels have been all over the place so I just wasnt able to write, only pop in and read / keep up with whats happening - thanks for your post - I have missed you and all my other friends here as well even though I have been watching the forum, it just helps make you feel better when you can actually post back replies instead of just looking quickly from being in too much pain. The newsletters the CPA sends me really are of such a great benefit - they keep me close even when I'm not well - pat on the back to the CPA for that good service that keeps me connected at all times - they are valuable!

Hey Kebsa - the neurologist was going to put me on tegretol at one stage but my awesome pain specialist (the best pain specialist in the world!) stepped in and said its nasty stuff (you supposed to have regular blood tests when on it I might add) and she intervened and put me on Epilim instead, didnt really feel any different with Epilim though. So after that trial my pain specialist gave me her trial packs of lyrica since I did well on it before - I have only been on it for a day but it definately calms my nerve pain down overall in a geberal sense - so I'm really glad its going on the PBS. There are just so many CPS people that have responded well to it, that I'm glad the government stepped in for us all. - Yeh to the governement - thanks heaps from all of us that need Lyrica!

I seem to be responding well to targin at the moment, I just hope I dont develop a quick resistance to it like I did Norspan.
Lots of trials over the last few months trialling every med available looking for something that actually helps and doesnt make me throwup and develop a quick resistance, but its been worth it, as I am now settling down to meds that are helping me, hopefully I will be able to continue posting here with you all if the targin keeps taking the edge of the pain. It doesnt cure me but it makes life a lot more bearable to the point I can write here occasionally instead of reading a post or two every couple of weeks.

I owe a real lot to my pain specialist, its easy to see why she is regarded as one of the leading authorities in the world in the pain specialist profession, I have had better treatment with her in six months than I have had over the last twelve years with every other Doctor and Specialist, simply because we are working together and trialling for the meds that actually work instead of prescribing the same useless crap all the time - we are both willing to try everything to find out what works best for me, thats a change to all previous medical help. I feel we are part of a team instead of being just a patient being dictated to.

Theres a name for it - integrated medicine - and its sweeping the U.S. at the moment and making a big comeback - it where the Doctor acts as part of a team instead of diagnosing straight out - you cannot get anywhere with a 15minute/ 30 minute appointment ! It take an hour for a Doctor to find out whats happening in your life in regards to all your medical issues - only when he undertsands your life intimately, can he begin to understand your problems for a proper diagnosis and treatment plan.

Anyway enough of me rambling on - just excited that I can write again - lol
See you all soon!

Yeh - for LYRICA to the PBS
Yeh for all those that made submissions here to make it happen!
Yeh to the federal Gov for helping us!

Cheers
Jamie

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5 years 4 months ago #13542 by grappers
grappers replied the topic: LYRICA to the PBS
Well I can say Jamie we are glad you are back and by the looks the decision on the big move and all those struggles early on are paying off for you and your family, just goes to show that having a good pain management team behind you is life changing. If only there were more around Australia, especially for those who live off the beaten track so to speak, which is anywhere outside major towns or cities.

Don

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