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Ketamine infusion for chronic pain. Does it help?

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5 years 9 months ago #8662 by Red
Red replied the topic: Re: Ketamine infusion for chronic pain. Does it help?
Hi Phil, it is quite a journey you have been on with your pain. Dreadful how life can unfold. I have recently had a ketamine infusion and I posted how I found it above.

Yes, you can shower yourself, go to the bathroom by yourself. Just be careful you don't dislodge your infusion. Everyone has a very individual response to the ketamine. I was fully aware at all times, only one dream and had to force myself to lie quietly and relax. Wasn't that sleepy. Others have a very vivid time! Interestingly, I've had a couple of visual hallucinations since then.

For three weeks I slept quite well, last night back to pain waking me up constantly. My radiculopathy has settled quite a bit. In the last week i have had a bad flareup of the neuropathy pain. I am miserable. Since I did have an initial good response I believe my doctor will suggest further treatments.

And I will go ahead as my specialist seems to use it, even as an adjunct to your normal medications. He also said if you are a person who responds to it, as I am with further treatments better benefits can be obtained. And I meet a patient who has top ups about 4 monthly and keeps on her regular meds and this helps her greatly. So certainly only not use of once or twice.

As for morphine the correct dose is one that gives you pain relief. In other words it should be titrated to give you relief of your pain. Certainly, something to ask your pain doc.

I really feel we are the guinea pigs having the ketamine infusions. There have been very few trials, but we are all desperate people who for a variety of reasons will give it a go. Because my pain went down to 0 - 1 during the infusion I have tasted life without pain and will have more infusions and see if I can obtain a more lasting benefit.

Good luck with it all.

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5 years 7 months ago #9762 by BIY
BIY replied the topic: Re: Ketamine infusion for chronic pain. Does it help?
Welcome to the forum Di.

I put this post back to the top because you were asking about Ketamine infusions. I had wondered about them myself when a pain specialist suggested it to me so started this thread a while ago and thought you might find people's responses helpful.

Best wishes,
Fee
The following user(s) said Thank You: Philby, di

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5 years 7 months ago #9782 by Philby
Philby replied the topic: Re: Ketamine infusion for chronic pain. Does it help?

Red wrote: Hi Phil, it is quite a journey you have been on with your pain. Dreadful how life can unfold. I have recently had a ketamine infusion and I posted how I found it above.

Yes, you can shower yourself, go to the bathroom by yourself. Just be careful you don't dislodge your infusion. Everyone has a very individual response to the ketamine. I was fully aware at all times, only one dream and had to force myself to lie quietly and relax. Wasn't that sleepy. Others have a very vivid time! Interestingly, I've had a couple of visual hallucinations since then.

For three weeks I slept quite well, last night back to pain waking me up constantly. My radiculopathy has settled quite a bit. In the last week i have had a bad flareup of the neuropathy pain. I am miserable. Since I did have an initial good response I believe my doctor will suggest further treatments.

And I will go ahead as my specialist seems to use it, even as an adjunct to your normal medications. He also said if you are a person who responds to it, as I am with further treatments better benefits can be obtained. And I meet a patient who has top ups about 4 monthly and keeps on her regular meds and this helps her greatly. So certainly only not use of once or twice.

As for morphine the correct dose is one that gives you pain relief. In other words it should be titrated to give you relief of your pain. Certainly, something to ask your pain doc.

I really feel we are the guinea pigs having the ketamine infusions. There have been very few trials, but we are all desperate people who for a variety of reasons will give it a go. Because my pain went down to 0 - 1 during the infusion I have tasted life without pain and will have more infusions and see if I can obtain a more lasting benefit.

Good luck with it all.

Hi Red, thanks for your post and information, sorry not posted back to now. I am schedled to go into Hospital next Thursday for what they say will be a week for a Ketamine Infusion, to be honest I am getting very cold feet about it, the more I think about it, makes me feel very anxious, week in hospital by itself is enough to turn me off idea as I have so mcuh time in Hospital, especially when docs have said oh it wil be only for this time frame and ends up not being so I think I will ring clinic Monday and try and speak to Doc who runs it about my feelings about it now, I am quite concerned about how posts I have read here and elswhere about it not having much long term benefit, I have no plan to have it done again if it doesn't work or only gives me a few weeks or so benefit. I see no point in that. There is no suggestion from my pain docs that I have to have it done, they just are keen for me to try it. Maybe one of them a little too keen and he is one who runs it and I have only met him once. Am I over reacting here or Thanks Phil

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5 years 7 months ago #9784 by di
di replied the topic: Re: Ketamine infusion for chronic pain. Does it help?
Thanks for bumping this thread Fee. ♥

I feel your anxiousness Phil and relate to what you're going through with the uncertainty ATM. I too am due to have the ketamine infusion very soon. I'm just waiting on the confirmed date at a private hospital in Brisbane.

I've not even had an outpatients appointment. My neurologist believes I'll be booked as an in-patient straight off.
Now I'm wondering if that's what I want!!! I do have a lot of questions but I also have a lot of pain. I do have a great deal of confidence in my neurologist and his judgement.

My current daily medications are: 225mg Lyrica; 30mg Cymbalta; 50mg Topimax; 3990mg Osteo Panedol

Di

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5 years 7 months ago #9852 by di
di replied the topic: Re: Ketamine infusion for chronic pain. Does it help?
I just phoned the doctors office that does the ketamine and pain management. I will be having a consult prior to the ketamine infusion. Looks like the next available consult time is in January. Nothing happens quickly, does it?

Anyway, I feel better about getting the chance to ask questions and know exactly what I'm in for what to expect direct from the specialist themselves. Especially seeing I'm in this entire mess because of my last hospitalization procedure!!

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5 years 7 months ago #9879 by hopeful_kate
hopeful_kate replied the topic: Re: Ketamine infusion for chronic pain. Does it help?
I'm having ketamine too! Hopefully in January. Scared.... But more scared of living in pain forever!

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